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    • 3 hours, 31 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 4 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 4 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 4 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 7 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 7 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 7 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 7 hours, 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 11 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 10 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!)

    Home > LC Polls > For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!)
    Previous

    For people diagnosed with T1D before 2000: If you have used a CGM, in what year did you start using a CGM?

    Next

    If you have ever been pregnant while living with T1D, how much did your insulin needs change throughout your pregnancy?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. ConnieT1D62

      I was diagnosed in December 1962 back in the primitive days of glass syringes, stainless steel needle tips, and urines test kits. The before meals and at bedtime urine tests and a monthly blood draw at a lab was it for monitoring BG levels. My urines were usually mucky olive green or bright orange.

      Got a Medtronic CGM to use with 512 or 515 (I don’t remember the version of the pump). Life changing for sure! Switched to Dexcom G4 in 2011 and since then CGM dependent for the rest of my life – until something better comes along.

      2
      4 years ago Log in to Reply
      1. PamK

        @ConnieT1D62 – I was diagnosed July 1964 and I remember the “primitive days” as well. We’ve come a long way, baby! 🙂

        2
        4 years ago Log in to Reply
      2. sweet charlie

        Yup ! To Connie and Pam, 1953 for me !! I sharpened the needles on the book match striker sand paper and used the fine wire to clean it out !! The big deal then was when we went from the tablet in the test tube to peeing on a strip and watching the color change.. Oh and insulin was $1.25 a vile and you used it all!!

        1
        4 years ago Log in to Reply
    2. Jane Cerullo

      Took two years for proper diagnosis then went on CGM. Been on ever since. Like Dexcom better than FSL but used both depending on insurance.

      4 years ago Log in to Reply
    3. KCR

      My recollection is fuzzy but sometime in the first year. I remember learning about Think Like a Pancreas on the ADA forum. I was pretty lost that first year and reading TLAP helped so much! I then asked my HCP about prescribing Dexcom. 🙂

      4 years ago Log in to Reply
    4. TomH

      I started on CGM (Dexcom G6) almost immediately after diagnosis as T1 by my Endo, but that was after having been mis-dx’d for 8 years as T2. I know there are a lot of folks that delay or seemingly required delay/use of MDI for up to 1 year. I encourage anyone dx’d as T1 or T2 using insulin to seek a CGM. I’m a firm believer that what gets measured gets done and having the CGM gives people the knowledge on which to act.

      3
      4 years ago Log in to Reply
    5. Mary Dexter

      Getting access to CGM was a long process,fighting doctors, CDEs, insurance companies, their appeal board, and then fighting every year to retain it. Now I am over 65, I must fight every 6 months.

      1
      4 years ago Log in to Reply
    6. MARIE

      Started process at first endo appointment, but it took over three months to actually get approved and shipped.

      4 years ago Log in to Reply
    7. gary rind

      DX in ’03, didn’t start CGM until Dec ’20. MDI & meter guy, wasn’t wild about having something stuck in my body 24/7. as I told my endo, didn’t like the idea of scanning my arm like it was a can of peaches at the supermarket! but Libre2 has been good, wish it was more accurate. still too many confirmation fingersticks for my liking.

      4 years ago Log in to Reply
    8. Mattie Fisher

      I didn’t even know about CGMs until about 3 years ago. How long has it been since they have been around?

      4 years ago Log in to Reply
      1. Mattie Fisher

        If CGMs have been around longer than 5 years, I’ll be legit MAD that none of my, multiple Drs, never told me.

        4 years ago Log in to Reply
      2. Bob Durstenfeld

        15 years. Though I was part of a trial for CGM in 1975 and I thought it took way too long to come to market. Be MAD.

        4 years ago Log in to Reply
    9. Bob Durstenfeld

      My granddaughter was diagnosed at age 18 months. She was on DEXCOM G6 as soon as insurance approved coverage,

      4 years ago Log in to Reply
    10. Amanda Laforet

      I was diagnosed in 1999, and started using a CGM with Medtronics in 2005 for a week when it was the big brick. I then went off the CGM to Dexcom series 7 for from 2005 – 2008. Then from 2008 – 210 I was on Enlite from 2010 – now I have been back with Dexcom.

      4 years ago Log in to Reply
    11. Molly Jones

      I mistakenly chose 5-10yrs, when it was 4.5yrs.
      I was diagnosed as type 1 in Dec 2001 and started using Medtronic sensors mid 2006. After multiple attempts with upgrades, I stopped these sensors as they did not seem worthwhile due to so many errors.
      I started Dexcom almost ten years later and am still using this CGM.

      4 years ago Log in to Reply
    12. Sherolyn Newell

      Prior to Dexcom G6, it seemed like they all said you still had to do finger sticks as well. I didn’t think I needed both. Then G6 came along and replaced 99% of finger sticks, so I got one. I would hate to have to do without now that I have it.

      4 years ago Log in to Reply

    For people diagnosed with T1D in 2000 or after: If you have used a CGM, how long after your diagnosis did you start using a CGM? (For those diagnosed before 2000, stay tuned for tomorrow’s question!) Cancel reply

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