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    • 6 hours, 6 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 15 hours, 39 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 15 hours, 39 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 15 hours, 40 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 15 hours, 40 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 19 hours, 55 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 2 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 6 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 6 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 3 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 4 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 5 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days, 6 hours ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 2 days, 6 hours ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 2 days, 7 hours ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
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    Do you feel like your close friends have an understanding of your day-to-day T1D management?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    34 Comments

    1. Ahh Life

      Whether you can afford shoelaces or not, the T1D experience is like an Olympic marathon event.

      And in order to qualify you must win every single 50-yard dash along the way. ─=≡Σ(͡> ʖ ͡<)

      4
      4 years ago Log in to Reply
      1. Joan Fray

        Translation of equation please!

        1
        4 years ago Log in to Reply
      2. Sherrie Johnson

        They have us jumping hoops also

        2
        4 years ago Log in to Reply
      3. Ahh Life

        It’s suppose to be a person dashing away. Guess, the equals sign honks it up
        Sigh!

        1
        4 years ago Log in to Reply
    2. Larry Martin

      Now that I am on Medicare and Medtronic, after a year, has finally got their sensor act together, I am paying nothing. Well the $233 deductible but I spent $9,000 on medical stuff last year. Finally I am getting what every other T1D in the world gets just for being alive.

      1
      4 years ago Log in to Reply
      1. Sherrie Johnson

        Larry try to get on Anthem plan F everything covered if you are on the pump all goes under part B DME no deductsble. Higher premium but no co pays for anything. I’ve been on the plan for 10 years now it’s up to 297 a month

        4 years ago Log in to Reply
    3. Lisa La Nasa

      I was frequently concerned with affording my T1D supplies when I lived in the USA. I left the USA 13 years ago and it’s no longer a worry of mine. Healthcare and the exact same products/medications are much more affordable in other parts of the world.

      1
      4 years ago Log in to Reply
      1. ELYSSE HELLER

        I know, medical care in the USA is just too expensive. Other countries that have national health care provide their citizens with much better healthcare.

        4 years ago Log in to Reply
    4. Joan Fray

      My insurance pays 80%. 20% is nothing compared to what I’d be paying without insurance. Grateful for the insurance .

      2
      4 years ago Log in to Reply
    5. Jane Cerullo

      I said somewhat concerned because had to order my freestyle Libre supplies blind. No one can tell me copay with my new insurance. Never heard such a thing. Was 0 copay on former insurance but they charged a fortune for insulin pens. So I switched but now other things have copays that bad m not used to paying. Will really look into insurance plans next year.

      4 years ago Log in to Reply
      1. ELYSSE HELLER

        I am a federal employee, although now retired due to Covid-19, so I have very good health insurance. I will loose this health insurance when I turn 65 because I am then eligible for Medicare. Very concerned about that.

        2
        4 years ago Log in to Reply
    6. Trena harrow

      Not concerned since my insurance pays 100 percent of my supplies!! I’m very fortunate.

      4 years ago Log in to Reply
    7. Savanna Vance

      Right now, I have Medicaid that covers all of my supplies. But in May, I graduate from graduate school and will be starting a new job. I am worried about what comes next insurance wise.

      4 years ago Log in to Reply
    8. Sherolyn Newell

      I pay 100% until my $3500 deductible and then pay $0. My plan has an HSA, so I save up that first $3500 tax-free the year before.

      4 years ago Log in to Reply
    9. Mick Martin

      I’m not at all concerned as I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is funded by direct taxation from all working people.

      1
      4 years ago Log in to Reply
    10. connie ker

      I am thankful not to be concerned about diabetic supplies which come in the mail right to my door. However, when I watch the darkness in our world, I always wonder what is happening to the T1Ds in Ukraine and Afghanistan or to the people in our own country who cannot afford their supplies?

      13
      4 years ago Log in to Reply
    11. Mary Dexter

      The concern is not about the money, but having the prescriptions refilled. As someone diagnosed at age 48, this has been an ongoing battle, mainly because of misinformation and erroneous beliefs held by health care professionals: that T1 equals little kids, that the kind older people is just a matter of diet and exercise and can be reversed. So my CGM paperwork gets ignored and my insulin prescription isn’t renewed unless I spend weeks on the phone.

      3
      4 years ago Log in to Reply
      1. Karen Newe

        The myth that this is a child-only disease is crazy. I hope you at least have a T1 diagnoses. Children with T1 eventually become adults so there’s nothing unusual about an adult with T1.

        1
        4 years ago Log in to Reply
      2. Brett Jorgensen

        So frustrating!

        1
        4 years ago Log in to Reply
      3. LizB

        You should make sure that your doctors have the correct diagnosis in your file. If they have you as a Type 2 it needs to be changed.

        1
        4 years ago Log in to Reply
    12. Karen Maffucci

      Right now my finances are ok. It’s next year when my pension drops by $1500.00 a mth that I’ll have great concern.

      4 years ago Log in to Reply
    13. Janis Senungetuk

      At the moment very concerned. My primary insurance is thru my spouse’s employment. Last month that insurance suddenly doubled the deductible and out-of-pocket and increased the DME co-pay to 30%. The third-party DME supplier was insisting I pay before they would ship. I told them they would have to file claims with both my primary and secondary (Medicare) before payment. I received a call from their billing dept. with the amt. I owed reduced to less than $50 for both pump and CGM supplies. This month I haven’t received notification of monthly CGM shipment and don’t know what to expect with the increased deductible and co-pay. Increased living expenses are very much a concern.

      1
      4 years ago Log in to Reply
    14. Brett Jorgensen

      Fortunately, at this time we are able to pay for what insurance doesn’t cover.

      4 years ago Log in to Reply
    15. pru barry

      Still have my “I Love O’Bama Care” sticker on my 18 year old Mini. Don’t know where I’d be without the insurance, but know it could be improved greatly. Is Big Pharma listening?

      4 years ago Log in to Reply
      1. KarenM6

        “Big Pharma”! Yes. I know what you mean. I bought a bottle of OneTouch Ultra 2 test strips in September (without insurance – long story as to why). It was $40.
        I just went to buy another bottle and it was $172. I had to walk away.
        Big Pharma are just greedy bloodsuckers, IMO.

        4 years ago Log in to Reply
    16. Bonnie Lundblom

      Not concerned this year but my Medicare Supplemental insurance cost goes up every single year; I have to adjust my overall spending to continue with that important and necessary coverage.

      4 years ago Log in to Reply
    17. mbulzomi@optonline.net

      Medicare original, Part “B” for my Insulin Pump/CGM, DEX supplies, including Insulin with nothing out of pocket. Just for some information, an Insulin Pump is considered a Durable Medical Product, along with all the other support equipment.

      4 years ago Log in to Reply
    18. lis be

      i said very concerned, mostly because I need to get to my deductible

      4 years ago Log in to Reply
    19. KarenM6

      Insurance in the US is almost a requirement for Type 1s.
      I also replied to pru barry with this but, I just went to the pharmacy to get a backup OneTouch test strip (not using insurance – long story why). In September 2021, the bottle was $40. On Monday of last week, one bottle was $172. Oy! Guess I need to jump some hoops and hope my insurance will cover two different meters in addition to the CGM.

      More concern at the beginning of the year because my deductible is $6000. The accounting won’t hurt so much after about April or May. =:o ;p

      I have an off-topic question for Dexcom G6 users: Has anyone else had trouble with pain relievers? I only took one Naproxen Sodium (not the allowed two pills) and my G6 is going mad (saying I have a 43 blood sugar when it is really closer to 163.) I know acetaminophen is not recommended either.
      Are there pain relievers that work better than others with the G6?
      I have my endo in a couple of weeks, so I can ask her, too, but wanted to get real-life users answers if at all possible.

      4 years ago Log in to Reply
      1. Karen Maffucci

        I use Arnica. It’s a natural pain reliever. I can’t use acetaminophen due to inaccurate readings. And no NSAIDS due to kidneys

        4 years ago Log in to Reply
      2. KarenM6

        Hi Karen Maffucci!
        Thank you SO much!! (My hip says thank you, too.) I will give it a try.
        😀

        4 years ago Log in to Reply
    20. LizB

      My pump supplies are covered under a special diabetes category, not DME or Pharmacy, so it’s a straight co-pay. My deductible does not come into play with anything diabetes related, unless it causes me to be hospitalized or need any kind of special testing. But the insulin, test strips, pump supplies etc are just co-pays.

      4 years ago Log in to Reply
    21. n6jax@scinternet.net

      Very!!! because have had problems in past so always expect more from UHC..

      4 years ago Log in to Reply
    22. Michelle Saunders

      I’m currently living in a developing country where I can afford the insulin out of pocket and will submit to my insurance for reimbursement. I fear that the locals though can not afford it unless they are part of the countries 1%. Their minimum wage is a range of $1-$1.50. A vial of humalog at the value pharmacy is $55.

      4 years ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

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