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    • 21 seconds ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 hour, 35 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 1 hour, 37 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 1 hour, 41 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 hour, 45 minutes ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 17 hours, 50 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 17 hours, 51 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 17 hours, 52 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 17 hours, 53 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 17 hours, 53 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 17 hours, 54 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 17 hours, 54 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 21 hours, 31 minutes ago
      Ahh Life likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 23 hours, 31 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 23 hours, 31 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 23 hours, 32 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 23 hours, 32 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 23 hours, 32 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 1 day ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 1 day ago
      Anita Stokar likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 1 hour ago
      Amy Schneider likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. dave hedeen

      Sleep interrupted 7, yet asleep within 5 minutes ea time.

      1
      4 years ago Log in to Reply
    2. Sharon Lillibridge

      I..eat..a.snack.right.before..sleep..so..that..,my..BG..stays..between..200-300…until..I..wake..up..and..take..one..unit≥.of..NOVOLOG

      4 years ago Log in to Reply
    3. Kathy Hanavan

      The disrupted sleep is one of the most challenging things with CIQ, particularly the unnecessary ones like compression lows or signal loss, much as i try to avoid them. The other unnecessary one in the middle of the night is the one that wants us to check a blood sugar because we were high 2 hrs ago, even if it is normal now – so annoying! As a senior whose sleep is getting more disrupted by age related sleep changes, more difficulty falling back asleep and needing to empty my bladder, I would love to avoid the unnecessary alarms.

      3
      4 years ago Log in to Reply
    4. Jane Cerullo

      Things are leveling out now. Just changed to MDI from Omnipod and had to play with basal. So all good last two nights.

      4 years ago Log in to Reply
    5. Sherolyn Newell

      One, it was a good week.

      4 years ago Log in to Reply
    6. Marvin Shotkin

      I hate it when my CGM wakes me because my BG is dropping, but it’s so much better than years ago when my wife had to inject glucagon, call 911, and I’d wake up with EMTS poking me.

      4
      4 years ago Log in to Reply
    7. P-O Heidling

      Almost never happens anymore. After the switch to low-carb (LCHF) 11 years ago, all those disruptions went away. I maybe have an incident of too low blood glucose level once every second year.
      Before the diet switch; maybe once every, or second, week.

      1
      4 years ago Log in to Reply
    8. Andrew Stewart

      My Dexcom G6 as it nears the end of it’s 10 day session it starts to become erratic and report LOW for 5 to 10 minutes then be back to normal again or it looses signal multiple times. This behavior is not agreeable with a good nights sleep.

      5
      4 years ago Log in to Reply
      1. Jim Cobbe

        That happens with my G6 too, I agree very irritating.

        1
        4 years ago Log in to Reply
    9. GLORIA MILLER

      My CGM does not alarm since I don’t need that feature but I do check my glucose at least once during the night. I check it any time I wake up just to be sure and I never sleep the entire night.

      1
      4 years ago Log in to Reply
    10. Mick Martin

      Although I selected 6 nights the alerts were for both highs and lows, plus requesting me to calibrate the sensor against my pump AND to change my sensor.

      4 years ago Log in to Reply
    11. Ernie Richmann

      Sometimes I am just aware and then check. Maybe an a low alarm at 78 which I ignore because it almost always just goes up. I have a tandem pump with IQ technology. I almost always wale up at about 112.

      4 years ago Log in to Reply
    12. Elizabeth Lessard

      My own fault for overeating with gastroparesis.

      4 years ago Log in to Reply
    13. Becky Hertz

      I took a guess. I don’t usually make a conscious section to “county”. More than usual this post week so I put 4.

      4 years ago Log in to Reply
    14. Nicholas Argento

      Answered 1 a week- Far less on Control IQ than in past years!

      1
      4 years ago Log in to Reply
    15. Hanneke vanProosdij

      so much better since Control IQ!

      4 years ago Log in to Reply
    16. Janis Senungetuk

      Twice this week, starting with a high alarm at 3 AM when I pulled the infusion set out with a twisted blanket. Two nights later C-IQ awoke me with a warning that I would be low in 15 minutes…didn’t happen. Since I started using the C-IQ app in my Tandem pump I’ve rarely experienced lows at night. Recently, there have been more issues with wild numbers from the G6 that trigger false alarms.

      4 years ago Log in to Reply
    17. LizB

      I often wake up on my own at least twice during the night. If I’m awake enough I will look at my pump. I’ve been experiencing highs overnight for the last week and don’t know why. So pretty much every night for the last week I have given myself corrections overnight but my sensor hadn’t gone high enough to trigger an alarm. My high is set for 160. Even though the pump didn’t wake me, it would have soon enough when my BG hit 160.

      4 years ago Log in to Reply
    18. n6jax@scinternet.net

      I always snack before sleep and may have a high in 1 or 2 hours, then most often have a low alarm around 6 AM but I wake that tine to pee any way. I set my CGM alarms at 70 and 180.. I do not use a pump.

      4 years ago Log in to Reply
    19. Wanacure

      Now I know what a “compression low” is. If I lay on my sensor/transmitter, it alerts to false low BG. I checked with my One Touch this morning after receiving a Dexcom alert, then rolled to my other side. Sure enough, the Dexcom quickly returned to normal range. The main thing disrupting my sleep is getting up to urinate at last once a night. I no longer need to eat a bedtime snack.

      4 years ago Log in to Reply
    20. Dylan Sutton

      Compression lows are the bane of CGM.

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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