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    • 22 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 10 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 53 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 19 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 19 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 16 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 39 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 36 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?
    Previous

    How did you schedule your next appointment with your main T1D health care provider?

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    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Kristina Chapman

      For Oct – Dec it was like $30….however we got a new policy with hubby’s new job and in January I have paid over $1500 already AND had to change every single one of his scripts 🙁

      4 years ago Log in to Reply
    2. connie ker

      I am a senior on Medicare with a great supplement and great drug program. The premiums are my monthly costs so these policies are a perk for growing old with T1D. The monthly premiums are not cheap however.

      3
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Connie, would you be willing to share what supplement you are on? I have to pick one next year and am trying to gather data from this group about which are the best. Thank you!

        1
        4 years ago Log in to Reply
      2. Sherrie Johnson

        Connie Sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra Continued success.

        1
        4 years ago Log in to Reply
    3. Bill Williams

      Since Omnipod isn’t covered under Part B, the donut hole is a killer for me.

      4 years ago Log in to Reply
    4. Patricia Dalrymple

      My insulin and test strips are free through my employer. The only cost are my pump supplies. I go to Medicare next March and am nervous about having to change once I retire.

      1
      4 years ago Log in to Reply
      1. Sherrie Johnson

        Medicare covers pump supplies and insulin as DME. Get a good supplement and they pick up the 20% that medicare doesnt cover.

        1
        4 years ago Log in to Reply
    5. Mick Martin

      $0 as I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      4 years ago Log in to Reply
    6. Tom Caesar

      Say $190 on supplies, $1,200 for insurances. Average $450 monthly, more than we spend for food!

      4 years ago Log in to Reply
    7. Jim Cobbe

      Very good Medicare Advantage HMO; $100 a quarter each for Tresiba and Fiasp, everything else no charge (includes both strips and Dexcom supplies and a box or two of syringes for under $20).

      4 years ago Log in to Reply
    8. Pauline M Reynolds

      I answered in error because I thought it was asking about the year. Sorry.

      4 years ago Log in to Reply
      1. Pauline M Reynolds

        Should have been $1 – $500

        4 years ago Log in to Reply
    9. Louise Robinson

      Of course, this doesn’t include the monthly insurance premium costs. Because it is a question dealing with the last quarter of a year, it also doesn’t include any applicaple insurance deductibles which are experienced earlier in the year.

      3
      4 years ago Log in to Reply
    10. AnitaS

      The only diabetes item I have to pay for is insulin which costs me $35 per monthly prescription. My blood test strips, pump supplies and cgm supplies are all 100% covered, so basically I paid a tad over $100

      4 years ago Log in to Reply
    11. lis be

      I answered 1-500, but this is a lot higher most of the year, especially January-March to reach deductibles. Also, I did not include the cost of seeing the full line up of doctors.

      4 years ago Log in to Reply
    12. Randy Mees

      I said 1$-500$ but it was that cheap only because I had already gone thru the donut hole and was covered by the catastrophic part of my insurance.

      4 years ago Log in to Reply
    13. Amanda Barras

      ZERO. But, website was still loading when I hit submit and it clicked N/A and then submit so my response was not recorded correctly…

      4 years ago Log in to Reply
    14. Vicki Breckenridge

      I would have said I paid zero dollars, but Byram delayed my shipment by 3.5 weeks so I had to go to Costco and spend $300 for sensors.😡

      4 years ago Log in to Reply
    15. Andrew Stewart

      My end of the year stock up (3 month supply) of Dexcom G6 sensors and 2 transmitters, Tandem t:slim cartridges and infusion sets and 4 vials of Novolog set me back $253. What a deal, I’m not looking forward to Medicare.

      4 years ago Log in to Reply
    16. LizB

      I get 90 days at a time for everything.
      Insulin – $35
      Test Strips – $75
      Infusion sets – $30
      Sensors – $30
      Total: $170

      I don’t get reservoirs every cycle because I use one for a week or more (whenever it’s empty) so I don’t need them as often. I sometimes skip refills of test strips as well.

      4 years ago Log in to Reply
      1. Anna Kiff

        You have private/company insurance? That’s awesome depending on what you pay.

        4 years ago Log in to Reply
    17. Sherolyn Newell

      $0, but I paid $3500 in deductible at the first part of the year.

      4 years ago Log in to Reply
    18. Molly Jones

      My dependent Premera plan requires no money to be spent on diabetes supplies all year long. I cannot find a similar plan when looking at Premera without my husband’s employer.

      4 years ago Log in to Reply
    19. Randell Cole

      No comment

      4 years ago Log in to Reply
    20. Randell Cole

      35.00 Dollars

      4 years ago Log in to Reply
    21. Randell Cole

      35 Dollars

      4 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I use Medicare part “B” for all Insulin Pump and CGMS supplies. Nothing out of pocket, because on my Federal Blue Cross Blue Shield Secondary Insurance covers all rest.

      4 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021? Cancel reply

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