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    • 8 hours, 6 minutes ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 9 hours, 57 minutes ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 12 hours, 39 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 12 hours, 41 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 12 hours, 41 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 15 hours, 18 minutes ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 15 hours, 49 minutes ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 17 hours, 24 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 17 hours, 26 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 17 hours, 30 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 17 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 18 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 9 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 1 day, 9 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 9 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 9 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 9 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 9 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 9 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 15 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 15 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 15 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 15 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 15 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
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    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?
    Previous

    If you live in the United States, how would you best describe your insurance plan type and its annual medical deductible?

    Next

    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. LizB

      I fortunately have not have to use these programs. My insurance over the years (a number of different ones) has always covered my insulin, pens, needles, strips, pump supplies, sensors etc at a straight co-pay. I did not have to meet a deductible for anything. The only situation I would look into using one is if I needed an insulin that was not my insurance company’s preferred brand. I have always used Humalog and that is what my current insurance prefers.

      4 years ago Log in to Reply
    2. Eve Rabbiner

      I am grateful that my Medicare Advantage plan covers all of my supplies 100%. Insulin has a cap of $35 copay per month, which is not a problem for me.

      4 years ago Log in to Reply
    3. Mick Martin

      Although I selected “No, I’m not familiar with Patient Assistance Programs.” that’s not strictly true. I am aware of Patient Assistance Programs but I have no cause to use them.

      I live in the United Kingdom of Great Britain and Northern Ireland where I don’t have to pay for my medical supplies. This is taken care of through our NHS (National Health Service), which is resourced via direct taxation from all working people.

      Diabetes patients that receive treatment … either by oral medications or insulin do not have to pay any out of pocket expenses. i.e. medications, test strips, glucose testing paraphernalia, etc. is all paid for via our NHS.

      1
      4 years ago Log in to Reply
    4. William Bennett

      No, but I have kind of acted as one when a recently dx’d T1 friend hit the “donut hole” and was having to choose between insulin and paying her bills. I was able to give her a couple of vials from my Zombie Apocalypse supply stash, and also taught her about the necessity of hoarding insulin and how to go about it. Because the US healthcare system, y’know, sucks.

      4
      4 years ago Log in to Reply
    5. Tom Caesar

      I guess I’m lucky not to have needed assistance, but it’s getting more expensive all the time affording the things needed to treat my diabetes. $365 for a bottle of humalog, wish they were kidding me!

      1
      4 years ago Log in to Reply
    6. Jacqueline Sanders

      In the UK we all use the NHS (National health service) which we all contribute to through the tax system.

      4 years ago Log in to Reply
    7. Kristine Warmecke

      I answered no, but my endocrinologist & I have been trying to get me on the Novo Nordisk program, for a year now.

      4 years ago Log in to Reply
    8. Amanda Barras

      Back in 2011 I was forced to apply for the patient assistance program due to my employer not offering insurance but yet making too much money working p/t to qualify for government medical assistance. It was a lifesaver until my husband secured a job with benefits.

      4 years ago Log in to Reply
    9. Janis Senungetuk

      In the 1980’s I briefly used a Patient Assistance Program from Lily to reduce the cost of Humalog.

      4 years ago Log in to Reply
    10. Sarah Berry

      My pharmacy has been applying a coupon for the insulin the past 2-3 orders. I have been getting a 3 month supply of Humalog for $35 instead of $75. That is 6 vials for me.

      4 years ago Log in to Reply
    11. Mark Schweim

      When I lost my job in 2012, I tried getting on one of these, but back then there weren’t many such options available and the two I found both said that even though I lost my job in early April and was unable to find employment or income since the job loss, my income from January to April was already too much income to allow me to qualify for any patient assistance for any of my supplies!

      4 years ago Log in to Reply
    12. Patricia Kilwein

      My insurance has been paying all but $25 per vile or pen. Now that I’m on a pump and cgm my insurance allows a 3 month supply.

      4 years ago Log in to Reply
    13. Kim Murphy

      I would love to know about patient assistance programs especially any that covered Dexcom or Omnipod because my insurance coverage for these is not available.

      1
      4 years ago Log in to Reply
    14. djames313

      Qualified accidentally because insurance company would only cover a bolus insulin that my body rejects.

      4 years ago Log in to Reply
    15. George Lovelace

      In 2008 I started using Apidra and got onto their PAP until I started buying online from Canada which was an even bigger discount.

      1
      4 years ago Log in to Reply
    16. Steven Gill

      Used the Medtronic system 4 years ago but inheriting an old dog I had to choose her meds or supplies for the CGM. She survived 4 more years. Last year they offered the newest system with a warranty, I opted for the pump but declined the CGM. After a few phone calls and forms the total monthly out of pocket costs are less than the supplies for the pump alone. Was told with my income I’d have qualified back than.

      Now to see about a phone for the app.

      4 years ago Log in to Reply
    17. Bekki Weston

      I use the program with Afrezza, and get a 1-month supply for only $15.

      4 years ago Log in to Reply
    18. Lisa

      I have used a patient assistant program for prescriptions other than diabetes supplies.

      4 years ago Log in to Reply
    19. Stang777

      I have not used the patient assistant programs because I do not qualify for them, however I do use the savings cards (used like coupons or rebates) that the pharmaceutical companies offer which cover a lot of my copay costs for insulin. There is a difference between those two things, so I answered the question with “No, I am aware of these programs but I haven’t used them.”

      4 years ago Log in to Reply

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

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