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    • 18 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 18 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I said, "Unsure." I do not have enough information to state an opinion.
    • 18 minutes ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 33 minutes ago
      Katrina Mundinger likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Scylla and Charybdis being perhaps more apt.
    • 1 hour ago
      TEH likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 3 hours, 41 minutes ago
      Ahh Life likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      After 70 years with T1d and some reduced kidney function and seeing my dad's poor recovery after a kidney transplant, I have no desire to be subjected to chemicals that would further accelerate the demise of my kidneys.
    • 19 hours, 30 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 20 hours, 1 minute ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 9 hours ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day, 17 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 day, 17 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 21 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 21 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 22 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 22 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 22 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 23 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool?

    Home > LC Polls > When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    30 Comments

    1. Larry Martin

      Insulin is safe at room temperature for 1 month. Mine is used up in 3 weeks so never needs to be cool, just not sitting in the sun.

      3
      5 years ago Log in to Reply
    2. Retired and glad

      I was told years ago by my pharmacist that the insulin shipped to his store was not refrigerated in transit. I also know that when I put my insulin in my pump it sits there for up to four days with no cooling provided. Now that I’m retired, if we plan to go on a multiweek vacation, I’ll probably ensure my hotel or cruise cabin has a refrigerator. For shorter periods, I’m not worried.

      4
      5 years ago Log in to Reply
      1. GLORIA MILLER

        I have traveled for up to three weeks at a time which meant many insulin changes in my pump. I have never refrigerated the insulin while traveling and never had any problem with it working properly.

        2
        5 years ago Log in to Reply
    3. Marthaeg

      I put it in a lunchbox with an icepack when I go on day- long bike rides.

      5 years ago Log in to Reply
    4. Janice B

      Some times frio and some times insulin case with cooling pack

      1
      5 years ago Log in to Reply
    5. Steve Gold

      for a long period of time I will carry two sets, one set that I leave where it can be refrigerated and another that I take with me. That way I always have an emergency backup in case I need to have it replaced. With the way the patient/insurance company interactions work these days it can take F-O-R-E-V-E-R (a week or two) and the support people that need to approve the replacement are not trained well enough to understand that type 1 diabetics need insulin to survive. Otherwise….

      1
      5 years ago Log in to Reply
    6. Amanda Barras

      Insulin is fine at room temperature for up to 30 days. So I don’t worry about it when it’s with me.

      2
      5 years ago Log in to Reply
    7. Eve Rabbiner

      Always try to find lodging with a fridge. Cooler with icepack, stored between suitcases for insulation for summer. Traveling in Iceland was really easy. Always cool, so I didn’t have to worry about the insulin heating up in the car.

      5 years ago Log in to Reply
    8. Keira Thurheimer

      I use a Frio pack when traveling.

      1
      5 years ago Log in to Reply
    9. Sahran Holiday

      Vial currently using doesn’t need refigeration. Backup does if gone for extended time or as a backup. Carry that in a cooler with a cold pack from freezer.

      2
      5 years ago Log in to Reply
    10. Henry Renn

      No, but I do not let my supply bag in hot environments nor sitting in sun even if ambient temp is cool.

      5 years ago Log in to Reply
    11. Nicholas Argento

      Room temperature is good enough for insulin on any trip under 1 month, and I don’t take those.

      2
      5 years ago Log in to Reply
    12. Trisha Oldenkamp

      I put my extra insulin in a Frio gel bag. It stays cool with just water. I’ve had hotel refrigerators that freeze the contents so I stay away from them. I’ve traveled to Africa where My lodging didn’t have full time electricity let alone a refrigerator. My insulin has always been fine.

      1
      5 years ago Log in to Reply
    13. Chrisanda

      I have always used a Frio to carry my insulin on trips (Novolog), as I was told it needed to stay cool. But as other people noted, I have been recently told by a pharmacist it doesn’t need to be refrigerated for up to 20 days. Then the logical idea that it’s attached to my warm body in a pump for days. I may get brave and not worry about it staying cool. However, the Frio does protect the glass bottles :). It is shipped to me in a cooled container. I do always request a fridge in hotels.

      5 years ago Log in to Reply
    14. ConnieT1D62

      I use a Frio when I travel on extended trips away from home. That hasn’t been happening lately for me due to the pandemic.

      5 years ago Log in to Reply
    15. Meerkat

      If a small ice chest is a unique case then I would answer yes.

      5 years ago Log in to Reply
    16. Bob Durstenfeld

      I use a FRIO evaporative cooler pouch.

      5 years ago Log in to Reply
    17. Mary Dexter

      Frio

      5 years ago Log in to Reply
    18. Janis Senungetuk

      I put an extra vial in a FRIO for backup.

      5 years ago Log in to Reply
    19. Beverly Crosby

      When traveling for a few days I always carry my insulin in my purse. It’s going to be with me and I’m going to be in a cool place.

      5 years ago Log in to Reply
    20. Kevin McCue

      Unique like a cooler maybe

      1
      5 years ago Log in to Reply
    21. Thomas Cline

      Everything goes into a Frio when the temperature goes above 86 F on a trip. I try to avoid trips to particularly hot climates.

      5 years ago Log in to Reply
    22. rick phillips

      I use a Frio. Works perfectly.

      1
      5 years ago Log in to Reply
    23. Vickie Baumgartner

      I have a Frio case. It works GREAT!!!

      1
      5 years ago Log in to Reply
    24. Sjoymex

      I rarely go where there won’t be an easily accessible refrigerator. Until I get there, my insulin is usually kept in my purse (never in the trunk of the car). The rare times I go somewhere without a fridge, I’ve kept it in a lunch bag with some ice packs seperated by a washcloth so it doesn’t freeze.

      5 years ago Log in to Reply
    25. Carol Meares

      Frio for over night. I have a small electric cooler for longer. Goes in car and hotel. I have had insulin freeze in hotel refrigerators. I have also used a small yeti. The costs of being diabetic that isn’t counted.

      1
      5 years ago Log in to Reply
    26. Chris Deutsch

      I use a Frio bag until we reach out destination. Then I put it in a refrigerator if possible.

      1
      5 years ago Log in to Reply
    27. Arlie Peck

      I keep it in a waterproof case and try to keep it in a cooler or refrigerator when possible on the road or traveling.

      5 years ago Log in to Reply
    28. Molly Jones

      I wasn’t sure what cool meant, so I chose other.
      I do not keep it with an ice pack where it would last more than 28 days, but it is kept in an insulated container that keeps it safe not to rise above room temperature or freeze.
      We often travel internationally and I find it easier to pack prefilled cartridges along with bringing my vial of insulin.

      5 years ago Log in to Reply
    29. Brianna Lyons

      If I don’t have access to a fridge (road trip, in between hotels, during flights) I love using a Frio bag, it provides a ton of peace of mind

      5 years ago Log in to Reply

    When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool? Cancel reply

    You must be logged in to post a comment.




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