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    • 24 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 12 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 55 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 22 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 22 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 18 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 41 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 38 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    Have you had any issues obtaining life insurance because of T1D?

    Home > LC Polls > Have you had any issues obtaining life insurance because of T1D?
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    If you have never participated in a T1D research study, what stops you from participating? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Anthony Harder

      My parents bought a life insurance policy for me as an infant before being diagnosed with T1D. I have never purchased life insurance individually because of the extremely high cost, proof of eligibility, and low benefit. I have purchased life insurance through employers, but extending it has the same issues as individual purchase.

      3
      5 years ago Log in to Reply
    2. Philip Bunsick

      I am not able to get life insurance on my own. I have high blood pressure also but for some reason the industry seems to think I am going to drop dead tomorrow. The only life insurance I am able to get is Group insurance or if I am luck to be able to get guaranteed issue – which I found and took advantage of for a small amount of coverage.

      5 years ago Log in to Reply
    3. Henry Renn

      In early 1980s had offer of group insurance for diabetics. Disqualified bc I was diagnosed before age 5. Missed cut off by 5 months. I’m still here. Dropped individual $10K policy that had been converted from group life after retirement. Increase in rates showed that company was encouraging people to drop it. Holding down funeral costs by choosing cremation & burial in church memorial garden.

      5 years ago Log in to Reply
    4. Kristine Warmecke

      I was lucky, my parents bought life insurance for myself & my brother before either of us were diagnosed. Thankful for this, as my brother was diagnose at 7 months old.

      5 years ago Log in to Reply
    5. connie ker

      Fortunately, I had life insurance before diagnosis and so does my son who is an adult now with T1D. He has very low premiums because he was young and healthy when his policies were purchased. My husband bought 2 policies rated up because of his T1D and the premiums ballooned higher and higher each year that he lived. We managed to keep those policies, but they became cost prohibitive as he aged into his 80s. I had trouble getting health insurance and was on the state high risk plan which was replaced with OBamaCare. Thankfully, the doors opened up that year and I could get onto Medicare with a supplement and RX plan. Who knows what to expect forthcoming.

      1
      5 years ago Log in to Reply
    6. Greg Felton

      I am lucky to get basic life insurance for myself through my employer’s benefit package, but I can’t “enhance” the policy without “evidence of insurability” (the insurer’s term) and T1 disqualifies me.

      5 years ago Log in to Reply
    7. Jimmy Boling

      Was able to purchase but was rated.

      5 years ago Log in to Reply
    8. Joan Fray

      Tried to get it when Our son was born, for myself, but t1d at age 12 made it way too expensive. We bought land in California instead. He will be well fixed when we die

      2
      5 years ago Log in to Reply
    9. Megan W

      I only have term life through my employer. I can increase it by 10k every year without having to do the evidence of insurability, so I do that as it isn’t too expensive. Otherwise, it is much too cost prohibitive or I won’t be approved to have a policy on my own. I prefer to save through other avenues because of that.

      5 years ago Log in to Reply
    10. Nicholas Argento

      Expense was a major issue. I was rated at 400% even with good control and no meaningful complications, many years ago. I got it with multiple small policies over time, some as term which did not require medical screening, but have now let them all lapse, because their cost was going up too much based on my age, and my kids are grown, etc. No longer worth it.

      1
      5 years ago Log in to Reply
    11. Derek West

      I did not have an issue obtaining life insurance but I did have to pay a higher premium because of T1d

      1
      5 years ago Log in to Reply
    12. Alison Neumann

      My mortgage company denied life insurance for me, but accepted for my healthy husband. Instead we went to our independent insurance agent who found a great life insurance option for me, although it is about $100 more per year than my husband, but I’m happy with the coverage.

      1
      5 years ago Log in to Reply
    13. Bob Durstenfeld

      The only way I could get life insurance that was not tied to an employer was on a chance employment that offered a roll over policy upon leavjng.

      5 years ago Log in to Reply
    14. Alyne Branson

      I have term life but it is more expensive than my husband’s and he has more family history or problems. All I have against me it the T1D.

      1
      5 years ago Log in to Reply
    15. Steve Rumble

      Years ago I was charged a higher premium for whole life. I subsequently cancelled that policy and obtained term life through my Federal employment. That policy got more expensive as I aged, but I had less need of the insurance once my kids were grown and let it revert to 25% (free) once I retired,

      1
      5 years ago Log in to Reply
    16. Jerome McClellan

      I have term but pay 3X what my wife’s premium is. Both the same age. Fortunately the policy has been the same price for 20 years and we’ll probably drop it in 4 years once my son’s out of college.

      5 years ago Log in to Reply
    17. Lynda Covello

      I find that insurance companies do not distinguish between Type 1 and 2, with the result that the larger and generally older Type 2 population obscures the Type 1 data and skews the ratings so that Type 1 is penalized with unfairly inflated premium rates — as far as i am aware, this hasn’t changed since 1983, when i first applied, at the 10-year mark of living with Type 1.

      1
      5 years ago Log in to Reply
    18. Ken Raiche

      No problem what so ever just super expensive.

      5 years ago Log in to Reply
    19. KarenM6

      I’ve been flat denied life insurance a couple of times. I didn’t even get a chance to be offered super expensive life insurance!

      5 years ago Log in to Reply
    20. Julie Akawie

      Like many have already said, my parents purchased LI for me as a child, which I’m certain has a TINY payout. I also get guaranteed coverage from my employer, but will never apply for any additional coverage that requires a statement of fitness. The actuaries do not seem to care that my A1c is below 6%, or that my weight is stable, or that people diagnosed before the age of 5 statistically have a lower rate of kidney failure or other life-threatening complications. Sigh. Now that my kids are older, it’s less of a concern, but I’m still a bit cranky about it all.

      5 years ago Log in to Reply
    21. Cheryl Seibert

      Yes, I am unable to get an affordable individual life insurance policy. However, I always have taken out supplemental life policies through my employer. At exit from the company, they are normally convertible to private policies without re-enrollment questions about health conditions.

      5 years ago Log in to Reply
    22. Ginger Vieira

      Insurance companies treat T1Ds like we’re a walking death sentence. They’re basing this on extremely outdated data about the longevity of people with T1D and it’s really, really wrong!

      1
      5 years ago Log in to Reply
    23. Sally Numrich

      It has always been an issue. Anyone with diabetes or cancer is done. I can now only get it through work.

      5 years ago Log in to Reply
    24. NAK Marshall

      I was able to get it during the one time my school district (I was a teacher) offered it from a company that had no medical questions. I had researched and researched and no company would do it and they absolutely did not care how well controlled I was and had no side effects although I’d been Type 1 already for 35 years. so I was lucky.

      5 years ago Log in to Reply

    Have you had any issues obtaining life insurance because of T1D? Cancel reply

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