Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 8 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 8 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 8 hours, 45 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 14 hours, 32 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 14 hours, 32 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 15 hours, 32 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 15 hours, 43 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 15 hours, 51 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 11 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 16 hours, 14 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 26 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 11 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 11 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 11 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 13 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 13 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 14 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 14 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 14 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 15 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 15 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 15 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 15 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 15 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 15 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

    Home > LC Polls > If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.
    Previous

    When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Next

    In which room(s) of your home do you keep your diabetes supplies? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 7 days ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    21 Comments

    1. Bob Durstenfeld

      How about my doctors?

      5 years ago Log in to Reply
    2. Gene Maggard

      My Endo is my only share. In the past, before CGM, I used to take my meter with me to appointments where they would download them and try and fill in all the blanks. Now he calls up my Dexcom Clarity web account and we look at the various reports, and discuss the results and trends. It’s made it easy to maximize the time during each visit.

      5 years ago Log in to Reply
    3. Ernie Richmann

      I allow my doctor to look at my clarity reports.

      5 years ago Log in to Reply
    4. Jeffrey Joseph

      Other: occasionally an insurance provider requires 2 weeks CGM/meter testing data.

      5 years ago Log in to Reply
    5. Derek West

      I share with my endo through my Carelink account.

      5 years ago Log in to Reply
    6. Maureen Helinski

      I share with 3 adult children. My son who gave me the apple watch called one Thanksgiving FROM MEXICO, as I was in Baltimore at dinner and said, “No more pumpkin pie, Mom.” He saw my BG was going up toward 300.

      5 years ago Log in to Reply
    7. David Smith

      I share my Dexcom 6 data with my endocrinologist through Dexcom’s Clarity app.

      5 years ago Log in to Reply
    8. Henry Renn

      I share with my Endo to monitor & adjust settings on pump.

      5 years ago Log in to Reply
    9. Nicholas Argento

      This question was not clear in distinguishing personal Share- so others get the information in real time are therefore can actively monitor and/or intervene- and sharing with a clinic, which is for retrospective review and not actively monitored. That is a critical difference. Share with clinics is great for visits or when things have been off and you need adjustments. Share with a support person means they see what is going on right now if desired, and can get alerts to be a back up.

      5 years ago Log in to Reply
    10. Amanda Barras

      I wear a CGM and CAN NOT share my content. Medtronic is way behind on this being an active feature fir smartphones beyond Nightscout.

      5 years ago Log in to Reply
    11. kristina blake

      Like Dr Nick said, I don’t share with anyone other than my endo clinic and that isn’t in real-time

      5 years ago Log in to Reply
    12. Mick Martin

      The “research or medical team” that I share the data from my Medtronic pump is my diabetes support team … doctor/endocrinologist/diabetes specialist nurse/certified diabetes educator … but this, of course, is NOT ‘live’. I either have to give them the password to my Medtronic Carelink account, or send them copies of the data that I download to my computer.

      5 years ago Log in to Reply
    13. Catherine Van Hove

      I share when I have an appointment or need to get someone’s opinion. No one else has daily/hourly access.

      5 years ago Log in to Reply
    14. George Lovelace

      With Endo for the 3 month MC Appts and share the Clarity AGP in FB to show the power of CGM (bragging)

      5 years ago Log in to Reply
    15. Ann Auerbach

      I use Share with my husband ONLY when he is traveling and I am alone. If he is over seas, one of my adult children are my back up. Otherwise, I like to manage everything independently

      5 years ago Log in to Reply
    16. Pat Reynolds

      I download from tslim to Diasend for my team once a year. But I use Dexcom follow to share with myself (Happy Bob app). I use Clarity and Happy Bob rather than Dexcom’s own app on my phone.

      5 years ago Log in to Reply
    17. Lisa Laissle

      My daughter has Sugarmate and Happy Bob sharing with me and will likely with her twin sister when they are no longer on such covid house arrest and are on their respective campuses. Even though we are generally in same building, the apps remove/reduce the conversations, which is great. INpen remote data and linked would be even more helpful The dexcom false alarms disrupt all of our sleep entirely too much. This is really informing her process of deciding whether to request no (in room ) roommate (as opposed to suite). While she thinks she really wants a RM, she doesn’t want the dexcom disrupting more than needed. The “share tech” is less of a con than the low tech audible alert. That and a down the hall restroom, are rising to the surface as key accommodation elements. We print for the office lists or send reports or download when there.

      5 years ago Log in to Reply
    18. Sally Numrich

      I don’t share with anyone except when I am in a clinical study or if I send reports to my medical team. I just do everything myself & with alarms & a pump that turns off, no one worries about me being alone anymore.

      5 years ago Log in to Reply
    19. Jneticdiabetic

      When I wore a Dexcom CGM I shared real time with my husband for a bit. Mostly for low blood sugar back up duty when one of us was traveling. Started jokingly calling him “Inspector Glucose” though when my CGM alarms started getting followed by texts from him asking if I was doing anything about it. I love him for watching out for me, but I already think about my diabetes 24/7 and the alarms plus texts provided to be too many reminders. I diabetic gal’s gotta get some work done! With my Medtronic 670G, I can’t share. I do rely on him overnight when I tend to sleep through my CGM alarms. God bless him for that! My mom is also a T1D and we sometimes share our Carelink reports to troubleshoot or for friendly time in range competitions. Also share my Carelink reports with my diabetes care teams ahead of appts.

      5 years ago Log in to Reply
    20. Molly Jones

      I share my dexcom app with my husband and neurologist, and my dexcom account with my Endo and with my neurologist.

      5 years ago Log in to Reply
    21. Julian Reeves

      I share my results with my endocrinologist.

      5 years ago Log in to Reply

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]