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    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 16 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 39 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 36 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 22 hours, 59 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 1 minute ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 3 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 11 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    How many of the following relatives in your life have had T1D? Select all that apply.

    Home > LC Polls > How many of the following relatives in your life have had T1D? Select all that apply.
    Previous

    Do you (or your loved one with T1D) have thyroid issues in addition to T1D?

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    Have you ever had an islet cell transplant or a pancreas transplant?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Janice B

      My Grandfather’s sister this was back in the 20’s

      5 years ago Log in to Reply
    2. Britni Steingard

      My grandfather’s cousin’s son (my 2nd cousin once removed) and two of his children (my 3rd cousins) have type 1. Otherwise it’s just me

      5 years ago Log in to Reply
    3. Eve Rabbiner

      Interesting to see that most of the people responding report a relative with Type1

      5 years ago Log in to Reply
    4. Nevin Bowman

      One niece, one nephew, one child of a niece.

      5 years ago Log in to Reply
    5. connie ker

      My husband was one of the longest living diabetics in the country with juvenile diabetes, living to be 85 years of age. I became diabetic T1D with LADA, and one son became T1D juvenile. So there were 3 of us under the same roof. I also had 2 cousins with T1D. My brother is a type 2 later in his life too.

      5 years ago Log in to Reply
    6. Lakesha McDonald Kee

      Both my son and I are the only T1D in the family. Strangely he became a T1D very close to the age I was. He was 7 and I was 8.

      5 years ago Log in to Reply
    7. Kristine Warmecke

      My middle brother, his oldest daughter (my niece), 1 Uncle, Great Grandmother (Uncles Grandmother), other relatives on that side of the family that on different branches that lead back to my Great Grandmother.

      5 years ago Log in to Reply
    8. Trina Blake

      I’m the only one (aren’t I special!) back several generations (lots of medical professionals in the family – great records) No T2D or gestational either.

      5 years ago Log in to Reply
    9. Jana Foley

      My two youngest children are both T1Ds, diagnosed just 3 months and 4 days apart when my son was 6 and my daughter was 11. I am a MODY T1D.

      5 years ago Log in to Reply
    10. William Bennett

      My 1st cousin’s daughter, other than that not a one, out of probably 100 relatives at that degree of kinship.

      5 years ago Log in to Reply
    11. Janis Senungetuk

      My maternal grandfather had T1D. There’s a history of auto-immune disease on both sides of my family. I have a second cousin on my father’s side living with T1D.

      5 years ago Log in to Reply
    12. Sally Numrich

      My maternal great grandmother although she got it later in life so there is some thoughts it might have been type 2 that advanced to needing insulin. My mother remembered watching her boil her syringes. Many on my fathers side with type 2 including himself and his mom.

      5 years ago Log in to Reply
    13. Bob Durstenfeld

      T1D is Life in my family, my dad had it (diagnosed at age 18 months), I have it diagnosed at age 18 months), two out three younger brothers have it Dx’ed at ages 3 and 4), my eldest of three sons has T1D (dx’ed at 8 months old) and his only daughter has it (Dx’ed at 18 months). She is the first girl in the lineage to get it. There is no history on her mother’s side or my wife’s side.

      5 years ago Log in to Reply
    14. Molly Jones

      Autoimmune conditions run on my mother’s side of the family, thyroid, lupus, MS, Addison’s, …. I am on the only one with T1D.

      5 years ago Log in to Reply
    15. Timothy Steinert

      My brother was diagnosed when I was five (in 1971). I was diagnosed when I was forty-three (in 2009). It didn’t occur to me that it might be Type 1, though.

      5 years ago Log in to Reply
    16. Glen Heatherington

      I was diagnosed 55 years ago at age 10, my brother was diagnosed at age 7 in 1956; two first cousins (brother and sister) maternal side; and my uncle on maternal side; all type 1.

      5 years ago Log in to Reply
    17. Steven Gill

      A grandmother (maternal side) waa insulin diabetic in the ’50s. While there was probably no distinction of TYPE 1 or 2 back than, she was slender and almost blind but lived to her 60’s. A younger brother was diagnosed TYPE 1 a few months prior to my TYPE 2 diagnosis (magically changed to 1 several years later). However there were glucose concerns in both parents as they aged but at some point the the body does slow down. Another brother was diagnosed TYPE 2 but he says a1C is good, being my brother l have to trust/hope he’s doing well. An adopted cousin it’s a long term TYPE 1 with some complications, we’ve become closer through the years, even if my part of the family was the “black sheep.” BUT the

      5 years ago Log in to Reply
    18. Chip Brookes

      Father developed T2 late in life (late 70s). His father was diabetic. He was born in 1892 and died in 1957 of a heart attack. Don’t know anything about his diabetes. I am T1 due to a pancreatic infection. Diagnosed in 2008 at age 51. I don’t really know wether I would have developed the disease or not. The infection was the fruit of a gallstone pancreatitis. So who knows.

      5 years ago Log in to Reply

    How many of the following relatives in your life have had T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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