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    • 4 hours, 30 minutes ago
      eherban1 likes your comment at
      If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
      No. I doubt that there is an interest. I appear to be the anomaly in my family.
    • 1 day, 2 hours ago
      Patricia Dalrymple likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 1 day, 5 hours ago
      Lisa Sierra likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I had a problem with my infusion sets being on back order but I have met my deductible all ready.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
    • 1 day, 17 hours ago
      Bekki Weston likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I have used afrezza, the inhalable insulin
    • 1 day, 21 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
    • 1 day, 21 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
    • 2 days ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      i have used metformin
    • 2 days ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      metformin
    • 2 days, 3 hours ago
      Anita Stokar likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
    • 2 days, 4 hours ago
      Marty likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
    • 3 days, 2 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 2 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 4 hours ago
      mojoseje likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 4 hours ago
      atr likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 5 hours ago
      Bonnie kenney likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 3 days, 5 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 3 days, 5 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 3 days, 5 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 3 days, 6 hours ago
      Jaysen LeSage likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 3 days, 21 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 3 days, 21 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
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    Have you participated in a diabetes-related clinical trial this year?

    Home > LC Polls > Have you participated in a diabetes-related clinical trial this year?
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    Next

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    37 Comments

    1. Melinda Lipe

      I tried, but did not qualify for one.

      2 years ago Log in to Reply
    2. Brian Vodehnal

      Remotely thru the University of Michigan. Hypoglycemia and tips to help prevent them. Sharing CGM results thru clarity.

      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      This year

      2 years ago Log in to Reply
    4. Eve Rabbiner

      Age 77. Considered too old for all the trials I’ve seen.

      2 years ago Log in to Reply
    5. Gary Rind

      tried to qualify for the Vertex trial that didn’t require immunosuppressant drugs but my A1C was too low

      2 years ago Log in to Reply
      1. Clare Fishman

        Mine was too low as well. And they wanted lots of hypos which required medical intervention. I haven’t had that happen in 7 years.

        2 years ago Log in to Reply
      2. Gary Rind

        knock wood, never have had a hypo that required medical intervention.

        other trials for Vertex required having hypos that needed outside intervention but this one didn’t.

        2 years ago Log in to Reply
      3. Nevin Bowman

        Same here. They only want to help those unwilling to help themselves 😳

        2 years ago Log in to Reply
      4. Anne Blayney

        Same here! But I had a lovely chat with one of the nurses who does the screening. Even that was an interesting process. (Here in Canada, there are fewer trials available so this was my first opportunity.)

        2 years ago Log in to Reply
      5. lis be

        same here. I didn’t qualify because my A1c was reasonable.

        2 years ago Log in to Reply
    6. Patrick Burner

      University of Michigan and Boston Hospital. Shared CGM values, took lengthy surveys, gave permission for A1c tests, etc

      2 years ago Log in to Reply
    7. JOAN ULMER

      How do you participate in diabetes related clinical trails?

      2 years ago Log in to Reply
      1. Gary Rind

        try the all of us research program

        2 years ago Log in to Reply
    8. rick phillips

      I want too.

      2 years ago Log in to Reply
    9. Ahh Life

      Michigan studies. And Eli Lily dementia study. However, in the Lily study you had to remember at least 2 of the 10 things they mentioned at the start of a conversation. I could only remember 1.

      Now, what was I talking about? 😴🤔

      3
      2 years ago Log in to Reply
    10. Clare Fishman

      I participated in 2 clinical trials this year. One was at Mass General called T1D Beacon was a study of bone health in people with T1D over age 50. It involves 2 visits over 2 years with blood draw, ct scan, and surveys. The aim is to develop preventive measures and treatment to improve bone health in people with T1D who have a 2 to 7 fold increased risk for broken bones. The second study was the Joslin Heart & Kidney study to further understand connections between changes in cardiovascular system and early kidney disease in people with T1D. This one involved ct scan and mri of heart and kidney, blood tests, urine tests and ekg.

      1
      2 years ago Log in to Reply
    11. cynthia jaworski

      Too old for most, but I did share cgm results with U of Michigan.

      1
      2 years ago Log in to Reply
      1. Gary Rind

        did Michigan as well

        2 years ago Log in to Reply
    12. Janis Senungetuk

      I’ve applied to several but wasn’t selected. Guess at 77, I’m now too old.

      2
      2 years ago Log in to Reply
      1. George Lovelace

        I know and I’m only 3 years short of you {never mind my height 🙂 } 60 yrs T1, I’m a Survivor

        2 years ago Log in to Reply
    13. Paul McGuigan

      39 years in DCCT/EDIC

      2 years ago Log in to Reply
    14. Lindsey Whitnell

      We just did TrialNet for our youngest. Waiting for results!

      2 years ago Log in to Reply
    15. James Cheairs

      I have not this year but have participated in several over the years. Unfortunately, there are few trials for seniors with T1D. Most have an age cut off of 65. Otherwise, I would participate in more.

      2
      2 years ago Log in to Reply
    16. Janice B

      Not a clinical trial as such, but have participated in numerous surveys and questionnaires from multiple university studies

      1
      2 years ago Log in to Reply
    17. Edward Geary

      PERL fenofibrate study conducted by Joslin Diabetes Center and others. Study hopes to determine if fenofibrates slow progression of kidney disease in Type 1 diabetics.

      2 years ago Log in to Reply
    18. Nevin Bowman

      No because my A1c was too low 😡

      1
      2 years ago Log in to Reply
    19. PamK

      Other – I tried, but did not get through the qualification round for any of them (3 total tries).

      2 years ago Log in to Reply
    20. Dave Akers

      Would love to participate but I don’t usually qualify for 1 of 2 reasons.
      1) I’m on AFREZZA.
      2) my A1c is too good.

      2 years ago Log in to Reply
    21. Russell Buckbee

      I am in EDICT the longterm epidimological follow up to DCCT.

      2 years ago Log in to Reply
    22. Karen Newe

      CGM with 15 day life.

      2 years ago Log in to Reply
    23. Janelle Stallkamp

      EDIC study for years, which studies how the large organs are affected by diabetes.

      2 years ago Log in to Reply
    24. Molly Jones

      I have only participated in the multiple surveys for diabetes this year but keep me eye on clinicaltirals.gov and my doctors are aware of my desire for this body to be useful for science and inform me when they know of a good trial.

      1
      2 years ago Log in to Reply
    25. qachemist

      I’ve applied but I’m always too old (68) and I was diagnosed with LADA so no one wants to deal with that quirk. I would think that diagnosis of LADA at age 65 (with normal BG up to that time) would interest someone.

      2 years ago Log in to Reply
    26. Jennifer Farley

      I have filled out many questionnaires but not sure I am meeting requirements. Would like to contribute anyway I can.

      2 years ago Log in to Reply
    27. Thomas Emge

      It was for a Dexcom sensor and a meter trial.

      2 years ago Log in to Reply
    28. Jeff Balbirnie

      Nope, but keep looking forward to qualifying

      2 years ago Log in to Reply
    29. Anita Stokar

      I haven’t, but my doctor said she would let me know when a glucagon pump clinical trial is started in my area.

      2 years ago Log in to Reply

    Have you participated in a diabetes-related clinical trial this year? Cancel reply

    You must be logged in to post a comment.




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