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    • 1 hour, 46 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 4 hours, 34 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 15 hours, 16 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 16 hours, 43 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 16 hours, 43 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 16 hours, 43 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 18 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 18 hours, 57 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 18 hours, 57 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 19 hours, 39 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 2 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 23 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 16 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 16 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 20 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 22 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    In the past year, have you been required to change medications because of your health insurance?

    Home > LC Polls > In the past year, have you been required to change medications because of your health insurance?
    Previous

    How many times in 2023 did you have an appointment with your main T1D healthcare provider?

    Next

    How often do you pre-bolus at least 5 minutes before eating?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    38 Comments

    1. Amber Lathrop

      Novolog to Humalog

      2 years ago Log in to Reply
    2. Donna Condi

      Yes my drug insurance company would only pay for Novalog brand insulin. I had been using insulin aspart previously.

      2 years ago Log in to Reply
    3. Kristi Warmecke

      My insurance want’s me to switch to Humalog (which I’m allergic to) from Novolog (which I’m not allergic to).

      1
      2 years ago Log in to Reply
    4. AimmcG

      My insulin brand is no longer covered. I have gone back and forth between Humalog and Novalog over the years due to insurance changes. Now my current insurance company wants me to change to Lispro.

      1
      2 years ago Log in to Reply
      1. Katrina Mundinger

        A while ago I had to switch from Humalog to Novalog but this year when my husband’s insurance changed, I had to switch to Lispro. Not a big deal, but I had to have my pharmacy call around to find a location that had enough vials for my Rx right before a trip out of town!

        2 years ago Log in to Reply
    5. Anthony Harder

      No, but I have had to fiercely fight to keep them more than once.

      2 years ago Log in to Reply
    6. Kathy Hanavan

      Not in 2023, but in 2024, I need to switch from Humalog to generic lispro. I have Toujeo for back up insulin and they will no longer cover that so I need to change Basaglar instead and they are not equivalent! Thankfully, I don’t need to use long acting often.

      2 years ago Log in to Reply
    7. Dave Akers

      Insurance changed preferred brand of basal insulin from Tresiba to Toujeo.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.

      5
      2 years ago Log in to Reply
    9. Julie Rayden

      I had to go from a brand name to a generic drug when I moved out of state. Goi g on Medicare did not help. Its not as effective that’s for sure but cost for the name brand is prohibitive!

      1
      2 years ago Log in to Reply
    10. Janice B

      Yes but not my insulin. A medication for Rosacea. The previous medication worked really well but the one I have to change to, I know from past experience, does not work as well.

      2 years ago Log in to Reply
    11. RACHEL BLEVINS

      Beginning January 2024, Medicare is not covering Novolog or Humalog. Which are the only drugs FDA approved for insulin pumps.

      2 years ago Log in to Reply
      1. Marty

        Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.

        1
        2 years ago Log in to Reply
    12. Lawrence S.

      My health insurance has not affected my diabetes medications. However, my insurance no longer will cover my Symbicort inhaler (for asthma). I will have to go to the doctor to get a different inhaler.

      2 years ago Log in to Reply
    13. Sarah Austin

      Not this year but starting in 2024 I will have to change from Humalog to lispro

      2 years ago Log in to Reply
      1. Mick Martin

        @Sarah Austin. Humalog IS one of the brands sold as Lispro, ma’am. There are, of course, other brands. I also use Insulin Lispro, but that’s Apidra brand (Insulin glulisine).

        Insulin lispro is a fast-acting insulin that starts to work about 15 minutes after injection, peaks in about 1 hour, and keeps working for 2 to 4 hours.

        Admelog, HumaLOG and Lyumjev are other types of insulin lispro. It’s a manufactured form of human insulin where the amino acids lysine and proline have been switched at the end of the B chain of the insulin molecule.

        2 years ago Log in to Reply
    14. Lindsey Whitnell

      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.

      1
      2 years ago Log in to Reply
    15. Jen Farley

      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.

      4
      2 years ago Log in to Reply
      1. Mick Martin

        @Jen Farley. Some MIGHT consider it a rant, ma’am, but being from the ‘other side of the pond’ I’ve ‘lost’ internet friends due to the American Health System when they’ve been in a position where they can’t afford insulin at all.

        1
        2 years ago Log in to Reply
    16. Katherine Kettig

      I quickly contacted my provider and requested an exception and did received one. It has happened 2 times to me. They wanted me to change to a less expensive medication.

      2 years ago Log in to Reply
    17. Annie Wall

      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.

      1
      2 years ago Log in to Reply
    18. TEH

      I didn’t have to change but I couldn’t get a new one from Caremark because it wasn’t on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!

      1
      2 years ago Log in to Reply
    19. lis be

      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan)
      I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!

      1
      2 years ago Log in to Reply
      1. Mick Martin

        @lis be. Wise words for my American cousins, ma’am.

        2 years ago Log in to Reply
    20. T1diabetic

      For 2024 I have to change insurance as my old plan won’t cover Novolog.
      I have to use Novolog with my Tandem pump, so I changed insurance plans.

      2 years ago Log in to Reply
    21. Mick Martin

      I selected “Other” as the response “N/A” appears to be for those that do not have a personal T1D connection.

      I AM Type 1, but I live in the UK (United Kingdom of Great Britain and Northern Ireland) where my medications are all paid for by our NHS (National Health Service), which is funded via taxation of all working people that earn more than a given amount.

      2 years ago Log in to Reply
    22. KarenM6

      This year, I was not allowed to start a new med (Afrezza) because it was not on the formulary.
      I lose words when coming up on something like this and can only roll my eyes and shake my head.

      2 years ago Log in to Reply
      1. Bekki Weston

        In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.

        1
        2 years ago Log in to Reply
    23. qachemist

      With Medicare’s change to the cost of insulin, my Part D plan dropped Novolog. $35 “limit” only works if insurers have your medication on their formulary.

      1
      2 years ago Log in to Reply
      1. Kristi Warmecke

        correct, if it’s not on the formulary, expect to pay almost full price.

        2 years ago Log in to Reply
    24. Bruce Johnson

      Yes, several times. Antibiotics umeds changed.

      2 years ago Log in to Reply
    25. Bret Itskowitch

      Yes, I used to take lantus as my basal isulin. My health insurance would not cover it and my endocrinologist changed me to basaglar.

      2 years ago Log in to Reply
    26. Melinda Lipe

      Medicare doesn’t want me to take Plavix daily, so they spoke with my cardiologist to change it to every other day.

      2 years ago Log in to Reply
    27. KIMBERELY SMITH

      Yes

      2 years ago Log in to Reply
    28. Megan S

      Was forced to change one early this year and already have a notice that I will be forced to change another after Jan 1st

      2 years ago Log in to Reply
    29. Joindy23

      Literally every year when I used to be covered by employer-sponsored health insurance, the plan’s PHARMACY BENEFITS MANAGER (NOT the health insurer) would stop covering at least one of my needed prescriptions-either for one of the two types of insulin I use, or my CGM. That’s because the PBMs make a fortune in rebates for limiting patient choices. The PBMs business model should be disallowed.

      2 years ago Log in to Reply
    30. tmeagher

      Had to change from Humalog to the generic version due to insurance requirement.

      2 years ago Log in to Reply
    31. Anita Stokar

      Even though my insurance quit covering one of my medications, my doctor would have switched me anyway as she said there are some potential side effects to the medication I was previously taking.

      2 years ago Log in to Reply

    In the past year, have you been required to change medications because of your health insurance? Cancel reply

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