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    • 13 hours, 27 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 13 hours, 27 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 13 hours, 28 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 15 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 19 hours, 15 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 15 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 26 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 20 hours, 34 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 54 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 20 hours, 57 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 21 hours, 9 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 18 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 19 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 19 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 20 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 20 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
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    How did you obtain your current ketone strips?

    Home > LC Polls > How did you obtain your current ketone strips?
    Previous

    In addition to T1D, how many other autoimmune diseases do you have?

    Next

    Do you have any programmed diabetes-related “reminders” on your phone or other technology? For example, a reminder to take your long-acting insulin every night at 10 p.m., or a reminder to bolus every day at 1 p.m.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Lawrence S.

      I’ve always gotten ketone strips through a prescription. I didn’t know they were sold over the counter.

      3 years ago Log in to Reply
      1. Lori Lehnen

        Opposite here – I’ve always purchased OTC. Didn’t know you could get them through a prescription. Hmm-I’ll have to check if it’s covered by insurance.

        3 years ago Log in to Reply
    2. cynthia jaworski

      never had ketone strips.

      1
      3 years ago Log in to Reply
    3. Jane Cerullo

      Bought OTC but have never used. Don’t go really high often and if I do I bring down quickly

      3 years ago Log in to Reply
    4. KIMBERELY SMITH

      What is ketoes strips

      3 years ago Log in to Reply
      1. Annie Wall

        If your blood sugar sky rockets up, you test for ketones in your urine.
        A ketone test can warn you of a serious diabetes complication called diabetic ketoacidosis, or DKA. An elevated level of this substance in your blood can mean you have very high blood sugar. Too many ketones can trigger DKA, which is a medical emergency.

        3 years ago Log in to Reply
    5. MT

      They expire before I ever needed them and are expensive with insurance so I haven’t purchased them in decades. T1D for 49 years and never had DKA.

      3 years ago Log in to Reply
      1. Bea Anderson

        I’ve never had them recommended by Endo. Never used. I treat highs and lows quickly. What would you do differently? Never hospitalized.

        3 years ago Log in to Reply
    6. Beckett Nelson

      Blood ketone strips through prescription, urine ketostix over the counter

      3 years ago Log in to Reply
    7. Natalie Daley

      My doctor, the head of endocrinology at a major teaching hospital has never prescribed or recommended ketone strips.

      3 years ago Log in to Reply
    8. Mark Schweim

      I had an illness about a decade ago that I bought some strips to test for ketones. They weren’t expensive then and I ended up only using 2 strips from the bottle that contained, if I remember rignt 25 strips.
      Since I didn’t have ketones at the time, whatever it was I spent for those strips was nothing to me but wasted money, but I bought them OTC, then at next appointment, my doctor said if I’d have contacted him, he had a full shelf of ketone strips not being used so he’d have been happy to just give me a bottle of ketone test strips, or write the prescription.
      My doctor said the ketone test strips rarely get used, but were covered by the insurance I had at the time.

      3 years ago Log in to Reply
    9. Joan Benedetto

      We use a blood ketone meter. The strips are covered by insurance.

      3 years ago Log in to Reply
    10. Molly Jones

      I don’t remember if I bought them OTC or with a prescription. It’s been a while, and I don’t know if they are still useable.

      3 years ago Log in to Reply
    11. Becky Hertz

      Normally I wouldn’t have them, but was on Jardiance for about a year. My endo recently sent in a new prescription but I don’t really need them anymore.

      3 years ago Log in to Reply
    12. ConnieT1D62

      OTC purchase, last supply was over 20 years ago and never used them back then. Quite frankly, I don’t see a needful use for them now at this stage in my life. T1D for over 61 years.

      3 years ago Log in to Reply
    13. Jeff Balbirnie

      Acquired-purchased during the “Civil War” (c. 1863) as I recall?! 8~D

      3 years ago Log in to Reply
    14. Heidi Kay Williams

      I wish they’d package ketone strips in packs of 10.

      3 years ago Log in to Reply

    How did you obtain your current ketone strips? Cancel reply

    You must be logged in to post a comment.




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