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    • 1 hour, 42 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 8 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 8 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 9 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 21 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 23 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 5 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 28 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 25 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you.

    Home > LC Polls > Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you.
    Previous

    When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply.

    Next

    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. Trina Blake

      I was born with plycyctic kidneys. Being Dxd with T1D at age 30 didn’t help. My kidney function has worsened, but impacted my life in any real way. I knew at age 15, I would not do dialysis, and when I turned 18 my father (a civil judge – and yes he was a civil nice guy) drafted an advanced care directive for me (this was in 1970 – probably one of the first). I was away at university 000 miles away, and my parents weren’t close enough to advocate for me and my wishes. I am so very grateful. I carried copies of that document everywhere. Turns out, they had asked physician friends who said they wouldn’t do dialysis if they were in my position. I believe that made it easier on my parents to accept my adamant refusal.

      1
      2 years ago Log in to Reply
    2. Becky Hertz

      Frozen (adhesive capsules) shoulders, hips, trigger finger.

      2 years ago Log in to Reply
      1. Jana Venditte

        Wow…lots of those.

        2 years ago Log in to Reply
    3. JuJuB

      Does “peripheral retinopathy” — treated with laser and now a non-issue — count?

      2 years ago Log in to Reply
      1. JuJuB

        Oh! Now that I’ve read the previous comments, also frozen shoulder/adhesive capsulitis which, according to my endo, affects diabetic WOMEN at an alarmingly higher rate than any other population.

        2
        2 years ago Log in to Reply
    4. Jana Venditte

      With controlled blood glucose levels any complications have resolved.

      2 years ago Log in to Reply
    5. Katrina Mundinger

      Cataracts diagnosed a year after T1D. Had surgery for it.

      Also frozen shoulder(s), trigger finger/Dupuytren’s contracture…

      2
      2 years ago Log in to Reply
    6. Lawrence S.

      I have a host of diabetes related diseases and complications. I have frozen shoulders, celiac disease, gastroparesis, something called pemphigoid which causes blisters inside my mouth, tears in my retina which were repaired with laser, hypothyroid. Now, high cholesterol, although I eat a very low fat and cholesterol diet. I have cataracts. But, they may or may not be directly related to my diabetes (just had cataract surgery, last week). I also have respiratory issues, including asthma. Again, I don’t know the relationship to diabetes. And, it goes on and on …

      2 years ago Log in to Reply
      1. Sue Martin

        I hope you heal quickly from your cataract surgery.

        2
        2 years ago Log in to Reply
    7. Cristina Jorge Schwarz

      I have been diagnosed with a few listed, but they are attributes to my other autoimmune diseases, which came about the same time as my T1D, about 6 years ago.

      1
      2 years ago Log in to Reply
    8. Jneticdiabetic

      Frozen shoulder

      1
      2 years ago Log in to Reply
    9. Marty

      My last endo believed some people were genetically predisposed to complications and some weren’t and, luckily, I wasn’t. I had frozen should a few years after I was diagnosed. I currently have trigger finger-not bad enough to treat- and mild neuropathy in my feet-loss of sensitivity to vibration. I feel lucky.

      2 years ago Log in to Reply
    10. Ahh Life

      “Your foolish questions which don’t have no brains.” Is a famous line from Kipling’s Captain courageous.

      Without assuming a persona that makes Grumpy Cat seem genial . . . but a lot of comorbidities and conditions arise because of age as well as long-term T1D. You reach a point where preparation forgoes itself. Acceptance, coping, and managing become paramount.

      Or, for those of you more religiously rather than scientifically inclined: “and we all do fade as a leaf; and our iniquities, like the wind, have taken us away.”

      3
      2 years ago Log in to Reply
      1. KarenM6

        Hi Ahh Life –
        The last “religious” quote… it’s beautiful… where is it from, if I may ask?
        Thank you!

        2 years ago Log in to Reply
      2. Ahh Life

        KarenM6 — KJV Isaiah 64:6

        1
        2 years ago Log in to Reply
      3. KarenM6

        Thank you, Ahh Life!! 🙂

        2 years ago Log in to Reply
    11. John McHenery

      I have had cataracts in both eyes and was told diabetes was probably a causative factor. Both treated successfully. Not bad after 53 years T1.

      2 years ago Log in to Reply
    12. Mary Coleman

      Frozen shoulder (in each one, resolved after PT), high blood pressure.

      2 years ago Log in to Reply
      1. Daniel Bestvater

        Both shoulder’s frozen about 10 years ago. They never really recovered and the last few years knees & hips seem to be trying to freeze. Seen several different specialists and they have all said it is some sort of connective tissue disorder. Maybe due to T1D and maybe not. Also I have had “delayed” gastric emptying for ~5 years. They say maybe from T1D and maybe not, seems like gastroparesis to me!
        T1D 45 years, A1c’s around 6 and 60 years of age.

        2 years ago Log in to Reply
    13. Anneyun

      Both shoulders frozen for 6 years but they eventually unfroze. Many trigger fingers and I had the surgery on them all.

      2 years ago Log in to Reply
    14. Steve Rumble

      I have been diagnosed with level 1 neuropathy (micro aneurisms) which have required no treatment. The original diagnosis occurred in the late 1980s and has remained relatively constant since that time.

      2 years ago Log in to Reply
      1. Steve Rumble

        Retinopathy, not neuropathy!

        2 years ago Log in to Reply
    15. lis be

      also, trigger finger

      1
      2 years ago Log in to Reply
    16. AnitaS

      I should have read others’ comments first as I put “no complications”, but I have had trigger finger and frozen shoulder and those didn’t even come to mind when I first read the question. Trigger finger required surgery and frozen should resolved on its own after a few years.

      2 years ago Log in to Reply
    17. KarenM6

      Bad hip & knees (knees maybe because of age?), trigger fingers and thumbs (all the treatments possible for that), carpal tunnel, cataracts (no surgery yet), one point away from having glaucoma, DR (both eyes), Low (and deficient) calcium and D3 levels… probably more, but that’s what I’m remembering right now.
      If bad memory is a diabetes “thing”, I have it!

      1
      2 years ago Log in to Reply
    18. dave hedeen

      Hope cataracts would be included with diab eye problems?

      2 years ago Log in to Reply
    19. Carol Meares

      Mild cardiovascular, gum recession and dry mouth.

      2 years ago Log in to Reply
    20. Sandy Norman

      Frozen shoulder both of them 20-22 years ago- had 2 surgeries and has never bothered me since.

      2 years ago Log in to Reply
    21. Molly Jones

      I had gastroparesis before the onset of diabetes, then frozen shoulder about seven years after.

      2 years ago Log in to Reply
    22. PatC

      Diabetic Neuropathy wasn’t listed for some reason, but it was the diagnosis for the pain in my hands.

      2 years ago Log in to Reply
    23. ConnieT1D62

      I have lived a very full and active life with T1D since the age of 8 years. As an older adult approaching age 70 I have neuropathic and osteopenic joints in my hands, fingers, feet and toes. And another challenge not listed above: Cardiac autonomic neuropathy – slow heart pump function. Have a pacemaker to keep my heart rhythm in sync. Also have chronic dental issues, resolved background retinopathy and lower than normal kidney function. Other than that I am a lot healthier than a lot other Baby Boomers my age who don’t live with TID.

      1
      2 years ago Log in to Reply
    24. PamK

      I chose “None…” but some people tell me that my hypoglycemia unawareness is a complication. Not everyone thinks it is though, so I am not sure.

      2 years ago Log in to Reply
    25. mbulzomi@optonline.net

      No matter how well you keep your numbers in check, the Eyes always suffer. Every six or so weeks I get a shot of Eylea in both eyes. (57 years of the disease, five insulin pumps, been on a CGMS for over 11 years. Both eyes’ cataracts operations performed (Over 20 years ago). Both cataract lens growth removed via leaser (Most people do not know this happens, a film the grows under the lens and my cause your sight to change. surgery in the left, I went blind in the eye because the small veins started to bleed, over 350 quaternizations performed, Thank God my insurances cover(ed) most of the medical procedures.

      2 years ago Log in to Reply
    26. eherban1

      This question really should be banded (in 10 year bands- E.g. for those with t1D 10 years or less…, for those with t1D more than 10 years but less than 20…,) by duration of the individual’s t1D experience. I didn’t have any complications for the first 30 years, then things started showing up.

      2 years ago Log in to Reply
    27. Trish Hubler

      I was diagnosed with retinopathy but that has resolved following being placed on an insulin pump and CGM over 15 yrs ago. Currently I have some neuropathy in my feet but nothing serious as of yet.

      2 years ago Log in to Reply

    Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you. Cancel reply

    You must be logged in to post a comment.




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