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If you use a CGM and share your real-time glucose levels with other people using an app (e.g., Dexcom Share, Carelink Connect, Nightscout, etc.), with whom have you shared your live CGM data? Select all that apply!
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My husband and my daughter but only when watching the grandkids to help he know they are in good care.
I share with my diabetologist.
Only my endocrinologist.
I share with my God son
My endo has permission to view my cgm, but she rarely does except before my appt.
I selected “I use a CGM but do not share my real-time data” but the ONLY reason I don’t share my real-time data is because I don’t have the facility to do so.
In the digital age, I take “real time” to mean minute-by-minute or hour-by-hour. That number is a big fat zero. The only “real time sharing” is when the wife asks, “What is it?” and I give her a verbal, not electronic, answer.
I do aggregate data weekly to analyze it. I do have an endocrinologist download it every 3 or 4 months. But real time? That’s my baby and mine alone. 😏
I also share with my wife verbally when she asks. I typically say things like “it’s perfectly balanced” which means somewhere between high and low or “it’s a bit low” which means anything below 65, or “a bit high” which typically means over 200.
Libre does not enable real-time sharing. Upload the info to my endo each time I change my sensor
Whoops, I said I do not share my data, but I share with my doctor.
Doc who looks at it every 3-4 months. I do not share with anyone who gets alarms when I am going high or low. Yikes, couldn’t imagine doing that to someone.
Shared my Dexcom data with my wife for about 48 hours once. The BG swings and alarms scared the pants off of her! So I do not share the real time data any longer. Unless the individual has T1D they really don’t understand the BG roller coaster we live on!!
We share Nightscout with our son’s teacher (no nurse), and our adult daughter who, also, has the Follow app on her phone. We download data, via Tidepool, to our son’s Endo prior to each appointment.
I share with my endocrinologist.
My child has had camp team members follow him and also occasionally my friends when I’ve had surgery (unable to reliably watch his numbers) or if he sleeps over at their house.
I chose “Someone else,” though it’s not a person. The Share channel is used by two add-on apps that I find very useful. Sugarmate, which displays my BG at the top control bar of my MacBook laptop, and Glance, which is a clock face for my Versa Two Fitbit. Only problem with the latter is that it’s especially handy for parties where you’re having to guesstimate boluses, but it can give people the impression that I’m rudely checking the time when I’m actually checking my BG!
When I first got the G6 I shared with my husband and 2 sisters, sharing with my sisters lasted maybe 3 days. They drove me crazy. I told them that I had to pay for more than one person to have access to my real time numbers so now it’s just myself and my husband.
I use t: connect so my healthcare could follow real time data, but I think only uses it if there’s an issue or when I have an appointment.
NO one seems to want that much data. They want A1c at most.
The people who have access to this data are my husband, endocrinologist, and neurologist.
I deliberately chose an iPhone model capable of receiving Dexcom info. But So far I just use Dexcom receiver which I take twice a month to tech team for free paper download. I used to have an Epson color printer, but the frequency of ink refills annoyed me. Hmmm…🤔If I did use my iPhone, maybe I could download free printouts at public library with their fancy new color Wi-Fi printer.
Our daughter’s data is shared real time with our school nurse, and with other family members (grandparents, aunts) who provide care for her.
Readings every 5 minutes =12x/hour, = 288/day =2016/week. MY QUESTION, what the blazes does ANYBODY or can any normal human being DO with that much freaking raw BG data ?!?! Even pretending it was veinous, that’s obscene amount of information. How do you use THAT much information without drowning in it, or becoming OCD hyper vigilant because of it?