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    • 6 hours, 6 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 6 hours, 6 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 7 hours, 22 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 7 hours, 22 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 7 hours, 23 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 7 hours, 24 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 7 hours, 24 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 7 hours, 25 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 26 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 7 hours, 26 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 9 hours, 27 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 10 hours, 5 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 10 hours, 6 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 49 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 11 hours, 11 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 11 hours, 34 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 35 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 11 hours, 35 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 11 hours, 50 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 51 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 12 hours, 52 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 3 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 9 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Which of the following do you use most frequently for reviewing your T1D management (e.g., blood glucose levels, insulin usage, etc.)? Select all that apply.

    Home > LC Polls > Which of the following do you use most frequently for reviewing your T1D management (e.g., blood glucose levels, insulin usage, etc.)? Select all that apply.
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    Have any of your T1D devices been recalled by the FDA? If yes, please share more about your experiences in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Steven Gill

      Use the Libre3 with the xdrip+ app (in hope to use with the fitbit watch someday) which has a superb set of stats. With Medtronic have used the pump with the CGM but not since February.

      3 years ago Log in to Reply
    2. Jane Cerullo

      Have Dexcom G7 with Clarity on my iPhone. Also do MDI and have an InPen which gives me all the data a pump would.

      3 years ago Log in to Reply
    3. Barbara Bubar

      I kept records for YEARS of my 20 – 30 daily finger sticks, insulin doses and time of day so I could SEE day-to-day what was happening. Although I download to Tidepool all of my data with my Dexcom, pump, meters, my daily recording has continued because it’s RIGHT there instantly and I can go back a few days, weeks, months or even a year ago to see what was happening. Tidepool and the other systems make it all into a system view for a period of time but I have really used my own records….yes, a little obsessive??? LOL!!!

      2
      3 years ago Log in to Reply
    4. TomH

      I use Loop (DIY) and Sugarmate most of the time.

      1
      3 years ago Log in to Reply
      1. TomH

        Also use Nightscout for TDD over time.

        3 years ago Log in to Reply
      2. Peter Richardson

        Loop is dope. I use my phone and watch for monitoring BG and bolusing.

        3 years ago Log in to Reply
    5. Carol Meares

      My doc office had a difficult time getting Glooko access code. I can’t get it by myself. Would love to use it.

      3 years ago Log in to Reply
    6. Marty

      I use Tandem’s t:connect app and the Dexcom app on my phone many times every day. They’re both an invaluable part of my hour-to-hour management. I also use Dexcom’s Clarity app when I want to check for long range trends and for overall stats before I meet with my endo team.

      2
      3 years ago Log in to Reply
      1. Nicholas Argento

        same but I am my DM management team, so I look weekly. Like getting a mini A1c weekly, w time in range as well.

        1
        3 years ago Log in to Reply
    7. Mike S

      I only selected the “smartphone app for my device” answer (Omni 5/Dexcom…which requires you to sign up for Glooko), but realized after that Glooko was a separate option.

      3 years ago Log in to Reply
    8. Scott Rudolph

      xDrip+ with Dexcom G6 switching to G7 in about 14 days.

      3 years ago Log in to Reply
    9. cynthia jaworski

      Naturally, I check my bg frequently through the day and am glad to have the trend indicators. However the scanner for my libre 2 gives me all the other stats and I look at them all at least daily. I find it is set up intuitively.

      3 years ago Log in to Reply
    10. AnitaS

      I use my phone or pump to look up the current blood sugars and the past few hours several times a day. However, I use the T-connect portal to view long-range readings to view how my sugars have been over months, to look at my average readings at different times of the day and to look at my time in range and average blood sugars over different periods of time.

      3 years ago Log in to Reply
    11. Sue Martin

      Also, email from Clarity.

      3 years ago Log in to Reply
    12. PamK

      I know it’s old school, but I still use a log book when I’m having difficult blood sugar readings. This way, I can note any adjustments I make to my pump settings and track the results. Note: I also use Dexcom Clarity, along with my G6 app and my T:connect app as well.

      3 years ago Log in to Reply
    13. Janis Senungetuk

      Most of the time I use my phone with the t:connect app. If my phone isn’t available I check my pump.

      1
      3 years ago Log in to Reply
    14. Carrolyn Barloco

      I check my Apple Watch for my glucose level frequently throughout the day.

      3 years ago Log in to Reply
    15. Nicholas Argento

      T-connect and G6 mobile for minute to minute, Dexcom Clarity or website T-connect for longer term reviews. Clarity is set up to send me push notifications every weekend on Time in range and averages, and daily to did I meet my TIR goal the day before.

      3 years ago Log in to Reply
    16. dave hedeen

      I selected pump, yet iPhone close 2nd

      3 years ago Log in to Reply
    17. T1D4LongTime

      I use Dexcom G6/Clarity and Tandem’s TConnect app the most, but often use the TSlim pump itself for data that the other 2 do not include/display. I wish TConnect app would allow touchscreen info on the graph like Clarity does (touch the graph, slide your finger and you get data on individual data points).

      3 years ago Log in to Reply
    18. Molly Jones

      I use both websites of tandem and dexcom along with my diet. I should use Tidepool.

      3 years ago Log in to Reply
    19. Lawrence S.

      My insulin pump is always my first “go-to.” I do look at my cell phone, T:connect app, several times each day.

      3 years ago Log in to Reply
    20. Trina Blake

      I use T-Connect on my PC. It displays pump and Dexcom data in great graphs. I upload every month and let the Endo team know it’s waiting should they want to pull it up. Great way to see if certain times of the day present any new issues. I don’t use my smart phone at all (except for GPS and calls when traveling!) My happiest moments are when I am out and about the phone is at home charging. No one can reach me to make demands on my time and energy! (Too many years on call)

      2
      3 years ago Log in to Reply
    21. mbulzomi@optonline.net

      I use the Tandem in range meter on both my IPhone and Tandem Pump. A1C in no longer the place to go once you are using a Sensor and a Smart Insulin pump. (Control IQ, Tandem pump)
      A1C’s can be fooled one you get a few lows. It’s only and average reading. And we all were schooled about averages. Good for T2D’s

      3 years ago Log in to Reply
    22. Wanacure

      I still keep written daily records of foods eaten, exercise, insulin doses, and finger stick readings. Also check CGM receiver frequently as well as CGM printouts every 3 to 4 weeks to compare written records. I did make sure the iphone I bought was capable of the Dexcom CGM app, but after a year I still use the Dexcom receiver. I got fed up with printers long ago so I rely on my tech team for CGM printouts.

      3 years ago Log in to Reply

    Which of the following do you use most frequently for reviewing your T1D management (e.g., blood glucose levels, insulin usage, etc.)? Select all that apply. Cancel reply

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