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    • 4 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 18 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 53 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 53 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 53 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 4 hours, 2 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 6 hours, 50 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 17 hours, 33 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 18 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 19 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 19 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 21 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 21 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 21 hours, 14 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 21 hours, 56 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 23 hours, 19 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 1 hour ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 18 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 18 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 22 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 2 days ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    When you (or your child) were diagnosed with T1D, how long was your hospital stay?

    Home > LC Polls > When you (or your child) were diagnosed with T1D, how long was your hospital stay?
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    Did you (or your child) have insulin resistance during growth spurts?

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    33 Comments

    1. Brian Johnson

      I was in dka when diagnosed and was let out after one week. I had to come back for diabetes training every morning for another 7 days

      2 years ago Log in to Reply
    2. Molly Jones

      I didn’t have any symptoms of T1D, but stayed in the hospital two days to make sure I was using the correct amount of insulin, when they figured out it was not type 2 after about two months of using the wrong medication. Epilepsy and Hashimoto’s were already present.

      2 years ago Log in to Reply
    3. Lawrence S.

      In the hospital? Heck, I went to work the next day. 1977. I don’t remember what my glucose level was, and may have never been told. I know it was high, but life just kept going on. No hospital stay.

      1
      2 years ago Log in to Reply
    4. J Mac

      This was 1972. I was in a coma for a few days until they figured it was T1D.

      2 years ago Log in to Reply
    5. Jane Cerullo

      Caught early. With routine labs. Never in the hospital

      1
      2 years ago Log in to Reply
    6. Annie Wall

      I only went to the hospital to have a glucose tolerance test. After they saw what my fasting blood sugar was, they said my doctor had all he needed for his diagnosis.

      The only time I’ve been to the hospital related to my diabetes since then, before CGM days, was when my husband couldn’t wake me up in the night when he knew it was extremely low blood sugar. I didn’t stay very long at the hospital but I sure didn’t get a good night’s sleep when I finally got home in the wee hours of the morning! ( Never again! )

      1
      2 years ago Log in to Reply
    7. Jneticdiabetic

      I was not in DKA at diagnosis. I was admitted to the hospital over the weekend to start insulin and be trained to take care of myself (T1D bootcamp).

      2 years ago Log in to Reply
    8. dholl62@gmail.com

      It was so many years ago 57 years I don’t remember

      2 years ago Log in to Reply
    9. mlettinga

      Back in the dark ages of type 1 care you were in the hospital for a couple weeks as it was the only
      Place to check your blood sugar as they tried to get you regulated with insulins. I was in 2 weeks and about every couple years I’d be in when I hit teenage years. Upside as you had a lot of training and your poor parents got a break.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Ditto about the stressed out parents and grandparents getting a break and an opportunity for everyone involved getting some much needed problem solving training!

        2 years ago Log in to Reply
    10. Bob Durstenfeld

      When I was dx’ed in 1956 hospital stay was 4 days. When Mt son was dx’ed in 1987 his stay was two days, when his daughter was dx’ed in 2020 she was not hospitalized.

      1
      2 years ago Log in to Reply
    11. Karen Newe

      Dx as an adult and never in the hospital. A answer choice for never-in-the-hospital would be useful. For most adult onset, plus with so much more awareness of T1 symptoms, and the availability of pre-screening options for antibodies hospitalization for new onset T1 will be less common.

      1
      2 years ago Log in to Reply
    12. cynthia jaworski

      this was in 1962. I never even got near a hospital. A few days after the blood test, my parents and I had a chat in the doctor’s office. My mother was a trained RN and knew how to give shots. All in all, she was better informed about diabetes than the family GP.

      3
      2 years ago Log in to Reply
    13. ConnieT1D62

      Three weeks from December 26, 1962 to Jan 14, 1963. Originally it was supposed to be for 10 days, however they put me in a room with another young girl who did not have diabetes, but had pneumonia. Consequently I developed a nasty respiratory infection from exposure to whatever she had and they kept me in hospital for preventive observation.

      1
      2 years ago Log in to Reply
    14. Richard Vaughn

      I was diagnosed in 1945. I was six years old and in the hospital for almost a week.

      2
      2 years ago Log in to Reply
    15. Kristi Warmecke

      In 1982 I was in the hospital a week. My brother diagnosed in 1972 was in for awhile (1 was only 2 at the time) but in DKA coma, then obtained a hernia and needed surgery, then last but not least developed chickenpox before being discharged home and giving them to me. My oldest niece was in for 2 or 3 days; just long enough to get her sugar under control and her Mom to learn everything, that was in 2004.

      2 years ago Log in to Reply
    16. KCR

      I chose 3-4 days but it might have been 5-6. I was DKA and so that time is a bit fuzzy. 🙁

      2 years ago Log in to Reply
    17. Marty

      I worked in a medical center at the time and was diagnosed by a diabetic colleague using his own blood glucose meter after I complained to him about rapidly worsening eyesight and unrelenting hunger and thirst. He walked me directly down to the endo clinic when my BG was too high to measure. Thanks to my colleague catching it before I progressed to DKA, I never had to be hospitalized. I was encouraged to stop by the clinic every day on my way in to work where they checked my BG. They confirmed I had Type 1 and started me on insulin injections a few days after metformin had no effect.

      2
      2 years ago Log in to Reply
    18. Brian Vodehnal

      Diagnosed by doctor. No hospital at all.

      2
      2 years ago Log in to Reply
    19. Jian

      when I was diagnosed it was not a hospital admission but I am a nurse.
      I did get DKA 5 yrs later and stayed couple days in 1982

      1
      2 years ago Log in to Reply
    20. Yaffa Steubinger

      Because I had a family member with T1, when I started having symptoms, I knew I, too, had T1 (my 4th autoimmune disease) and never went to a hospital. I went straight to an endocrinologist who got me in quickly with my 350-400 blood sugar levels.

      1
      2 years ago Log in to Reply
    21. Gary Taylor

      I said “Other” because I was not admitted to a hospital. 0 days should have been a choice.

      1
      2 years ago Log in to Reply
    22. Eva

      Doctors were quite sure ” diabetes” would go away. Hahaha. Idiots!

      2 years ago Log in to Reply
    23. KarenM6

      I was in the hospital for a month – between Thanksgiving and released Christmas Eve.
      The hospital was more than an hour away from home and I have 2 siblings. I was on my own for most of the day. My Mom came as often as possible, but my Dad’s job would not allow him to visit. All grandparents who were alive at the time were too far away to visit.

      2 years ago Log in to Reply
    24. Jeff Balbirnie

      Unable to answer, I was 3. Those who would have known are all now dead

      2 years ago Log in to Reply
    25. Yerachmiel

      11 days because mom couldn’t get herself to give me insulin injections (I was two) and doctor kept me under hospital arrest until she learned

      2 years ago Log in to Reply
    26. ricksorensonii

      I was diagnosed with T1D 60 years ago I don’t remember.

      2 years ago Log in to Reply
    27. PamK

      I honestly don’t remember how long I was in the hospital. To my 2 year old self, it felt like a lifetime, but I’m not sure how long it actually was.

      2 years ago Log in to Reply
    28. Sue Herflicker

      I personally did not stay in the hospital over night. My oldest son was in CHOP for one week and my youngest son only 2 days.

      2 years ago Log in to Reply
    29. Phyllis Biederman

      I was a youngster in 1966. Hospitalized at Yale-New Haven Hospital (pediatric ward).

      2 years ago Log in to Reply
    30. Steve Rumble

      I stayed in a private hospital for a few days (don’t actually remember the exact number) and then, since I was in the USAF at the time, was transferred to a military hospital, where I remained for about a month. I am not sure why I was retained for that long. I’ve always thought it was due to paperwork issues, I was in the USAF and in a Naval hospital. Also the hospital was in California and I was assigned to a base in North Carolina.

      2 years ago Log in to Reply
    31. kristina blake

      Mis-Dx’d with T2D (back when the names were juvenile/adult onset and I guess they only used the age criteria) with a few weeks I was found by a neighbor in a coma from DKA. Hence the correct Dx. I was in a coma for at least 8 days. Once I had the correct Dx, I was an inpatient for 5 days or so.

      1 year ago Log in to Reply
    32. Kathleen Juzenas

      I was diagnosed 49 yrs ago at a university clinic. I don’t remember any hospital stay.

      1 year ago Log in to Reply

    When you (or your child) were diagnosed with T1D, how long was your hospital stay? Cancel reply

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