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    • 6 hours, 44 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 7 hours, 15 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 7 hours, 15 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 12 hours, 37 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 12 hours, 37 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 12 hours, 37 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 21 hours, 2 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 22 hours, 50 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 22 hours, 51 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 22 hours, 51 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day, 4 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 day, 4 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 8 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 8 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 8 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 8 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 9 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 9 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 9 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 11 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 11 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 11 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 11 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 11 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 11 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
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    When you get lab work done, does your T1D health care provider discuss the results with you?

    Home > LC Polls > When you get lab work done, does your T1D health care provider discuss the results with you?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Molly Jones

      My HbA1c is discussed quickly as it is almost always in a desired range, but we spend more time looking at the Tandem and Dexcom reports and trying to understand causes or new basal rates.

      3
      4 years ago Log in to Reply
    2. Larry Martin

      I also see them before the doctor does with MyChart. I actually get them all within hours.

      4 years ago Log in to Reply
    3. Gwendolyn Walker

      My provider doesn’t discuss them with me but if something is off he will send me a one sentence note in Mychart to alert me.

      4 years ago Log in to Reply
    4. Natalie Daley

      My endocrinologist will send an email analysis that clarifies the results, and if necessary offer suggestions about what may work better.

      4 years ago Log in to Reply
    5. Anthony Harder

      I get my lab work done 1-2 weeks prior to my appt. That way Dr. Has recent results to discuss w me rather than results that are 4-5 months old (what good is “old” news?).

      4 years ago Log in to Reply
    6. Christina Trudo

      I said “usually” because it depends on who ordered the lab work (I see other docs for other issues, some more closely related to my diabetes than others) and when the results came in.

      4 years ago Log in to Reply
    7. kristina blake

      Lab results are only discussed if thee is a change.

      4 years ago Log in to Reply
    8. Kim Murphy

      She will discuss if I have specific questions but only if I bring it up.

      4 years ago Log in to Reply
    9. Drina Nicole Jewell

      I have the lab app and the clinic portal so I check my own and if I have questions I contact my doctor’s. If it’s something that needs immediate attention they contact me.

      1
      4 years ago Log in to Reply
    10. Steve Rumble

      Always via email, but frequently also via in-person or video appointment.

      4 years ago Log in to Reply
    11. PamK

      I answered “Always,” because my doctor at least lets me know what my A1C is. He may not go over all of my test results, but he does at least go over those that are a concern. Understanding, that he is likely under pressure from the insurance company to see “X” number of patients per hour, I appreciate that he takes the time to bring what is necessary to my attention.

      4 years ago Log in to Reply
    12. Derek West

      My lab results are posted in my account on the clinic’s site, so I can review them all and the endo usually comments if they are favorable or not. We discuss anything worthy of comment on our, for the last 4 visits, virtual meeting.

      4 years ago Log in to Reply
      1. KSannie

        Ditto

        4 years ago Log in to Reply
    13. Ahh Life

      Always. But the exciting thing about data / IT (if data/IT can be exciting?!) from the local hospital is that you can click on single items in the blood work revealing history, explanations, and purposes of the item. I have A1c’s going back 20 years, along with HDL, LDL, triglycerides, and cholesterol. Trends and directions over the years are good, solid graphs and data points. All with one click. 🌻

      1
      4 years ago Log in to Reply
    14. LizB

      If there is nothing out of the ordinary I’ll usually just get a “Everything looks good” comment. If they show that a medication might need to be changed then it will be more in depth. My A1c is always in the same range and I really wouldn’t care if it wasn’t done. I can see my TIR from my CGM which is much more informative.

      1
      4 years ago Log in to Reply
    15. Becky Hertz

      If, looks good, is a discussion…

      4 years ago Log in to Reply
    16. Kathleen Juzenas

      Always. Within a week, lab results are posted on the portal with doctor’s comments and/or suggestions. Next visit 3 months later he’ll review results: usually “stable, keep doing what you’re doing.”

      4 years ago Log in to Reply
    17. Sherolyn Newell

      My endo that retired always ordered my labs ahead of time. So I could go in the week before my appointment for labs, and she would have the results for my appointment. Then she would go over everything. The one I have now does the labs after an appointment, and I get results online. She will sometimes add comments. It’s not nearly as good that way.

      4 years ago Log in to Reply
    18. M C

      I receive the results before my appointments, so I go through them, and if I have questions, my doctor and I discuss them. Generally everything is okay, so it’s rare when there is anything to actually discuss in relation to the lab work. (Thank goodness!)

      4 years ago Log in to Reply
    19. AnitaS

      My A1C is always in a good range so it is just mentioned but not discussed. I frequently get a letter from my PA in endocrinology with a smile on it saying the my results are wonderful. Keep up the good work. 🙂 What sometimes is discussed is my CGM graphs depending if I seem to have a time of day that may need some adjustment.

      4 years ago Log in to Reply
    20. Steven Gill

      The lost hear I her a case in the mail “All labwork within normal ranges, maintain same care…”

      4 years ago Log in to Reply
      1. Steven Gill

        Bad typing and proofreading “This past year I get a piece”

        4 years ago Log in to Reply
    21. dave hedeen

      lab result are usually post visit. I do receive results on-line against acceptable test value. I’m lucky, never had a bad lab result

      4 years ago Log in to Reply

    When you get lab work done, does your T1D health care provider discuss the results with you? Cancel reply

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