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    • 13 hours, 30 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 31 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 22 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 14 hours, 49 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 2 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 15 hours, 55 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 1 minute ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 23 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 26 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 32 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 17 hours, 57 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 16 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.

    Home > LC Polls > When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
    Previous

    Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?

    Next

    On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    30 Comments

    1. Lawrence S.

      In 45 years with T1D, I have been able to manage my blood glucose changes on my own. The worst has been when taking steroids. I run alternate profiles on my pump in which I increased my insulin levels as much as four times my routine insulin levels.
      However, usually, when I have a flu or another infection, I may increase my insulin levels as needed to bring my blood glucose levels down to normal levels.

      2
      2 months ago Log in to Reply
    2. Kelly Wilhelm

      I have several T1 friends but also the FB community The Juicebox has lots of well versed people willing to share what they do in similar situations (knowing the caveat that it’s not medical advice)

      2 months ago Log in to Reply
    3. Robert Wilson

      Trial and error. Best teaching program.

      1
      2 months ago Log in to Reply
    4. Kathy Morison

      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years

      5
      2 months ago Log in to Reply
    5. Riva Soucie

      Juicebox Podcast Facebook Group

      2 months ago Log in to Reply
    6. Eva

      Thankfully, I haven’t got ill in a very, very long while. But, the last time I needed help from my endo., he was there for me at 2am to adjust my temp. basal rate.

      2
      2 months ago Log in to Reply
    7. Ernie Richmann

      Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.

      3
      2 months ago Log in to Reply
    8. CindyGoddard

      I follow clarity constantly to keep my sugars as low as possible when I’m sick

      2 months ago Log in to Reply
    9. Grey Gray

      Been type 1 since the early 80’s learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000’s of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn’t up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don’t know much about everyday life with the disease. And NO I do not want to join a discussion group!

      4
      2 months ago Log in to Reply
    10. Marty

      I remember getting a “sick day” pamphlet when I was first diagnosed decades ago. As others have said, I rely on experience and trial-and-error to manage BGs that are out of the ordinary. I was amused when my sports medicine doctor told me to ask my primary care doctor what to do when I told her that cortisone injections would raise my BG. (At first, she insisted that steroids wouldn’t affect my BG unless I was “unusually sensitive.”)

      2
      2 months ago Log in to Reply
      1. Mick Martin

        Ha ha! Sports medicine doctor. lol.

        I experienced a very similar situation when I had an ingrown tooth and my dentist refused to treat me because I was taking steroids … NOT anything like prednisone, but a long-standing steroid, called Fludrocortisone, which stimulates the adrenal glands to push up my blood pressure, and also when I WAS taking prednisone and was admitted to hospital, and my doses were being titrated to a lower level, and some clown doctor requested the ward staff to increase my insulin doses. I tried to explain to the doctor that he’d got it wrong, and that because my prednisone was being titrated downwards I would require less insulin, NOT more. Of course, the clown wouldn’t listen to me, stating that he was the one ‘with the bit of paper’, until a doctor had to be summoned from the Accident and Emergency department during the night as I was convulsing with a severely low blood glucose level.

        1
        2 months ago Log in to Reply
    11. George Hamilton

      Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.

      3
      2 months ago Log in to Reply
    12. David & Kaleo of Team Nani

      My illnesses are rarely bad enough to eliminate ALL movement, but missing workouts does impact my #’s. I try to walk more.
      I do know that antibiotics (Zpack comes to mind) shoots sugar up a ton. Anything like prednisone/other steroids do the same.
      What to do? Avoid any illness, seek Heath&Wellness coach who helps me stay committed and accountable for implementing my wellness vision and related behaviors. It works! My A1C has been below 6.2 for years.

      2 months ago Log in to Reply
    13. gary rind

      only time that I have been sick was when I got COVID during Jan ’22. my sugars were going crazy high and I couldn’t understand why but when I tested positive for COVID, in retrospect it made sense.

      3
      2 months ago Log in to Reply
    14. Bruce Schnitzler

      A combination of DexCom G6 and an insulin pump provide adequate management.

      1
      2 months ago Log in to Reply
    15. cynthia jaworski

      Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.

      3
      2 months ago Log in to Reply
    16. Mick Martin

      I selected “My health care provider – calling, emailing, or going to their office to ask questions”, but I also use my own knowledge, from what I’ve learned about diabetes over the last 40-odd years. 😉

      2 months ago Log in to Reply
    17. Bonnie Lundblom

      Only “illness” that makes it really difficult to control my blood sugar is getting steroid injections into my cervical spine or fingers. I leave my basal rate on my pump at 250% and need much higher bolus doses and many “extra” doses if my blood sugar remains really high. I tell the MD’s that it turns my insulin into tap water and try to avoid it, experience with having gotten these injections over the past few years has helped, but having blood sugars of 400-500 despite much higher basal and bolus dosing is so frustrating!

      3
      2 months ago Log in to Reply
    18. kim bullock

      My experience having had diabetes for 29 years.

      2 months ago Log in to Reply
    19. Pauline M Reynolds

      1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG’s.

      2 months ago Log in to Reply
    20. Janis Senungetuk

      Fortunately that hasn’t been an issue for quite some time. If I need help beyond what I’ve learned from 67 years of previous experience, I’d contact my endo or CDE.

      2 months ago Log in to Reply
    21. AnitaS

      When I had surgery last year and couldn’t exercise for a few months, my time-in-range was very good. I was shocked but I shouldn’t have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn’t have the ups-n-downs in blood sugar that I usually have when I exercise.

      2 months ago Log in to Reply
    22. Jane Cerullo

      I had a stomach upset a few
      Days ago. Couldn’t eat and wasn’t drinking much. BS went way up. Just covered with insulated. Resolved the next day

      2 months ago Log in to Reply
    23. ConnieT1D62

      I am fortunate that I am a Master’s degree trained RN with a clinical specialty in diabetes care and education. That said, my fellow colleagues in the diabetes care profession who are also living with T1D, and my own common sense after living with T1D for over 60 years are resources that serve me well when I experience illness or a health crisis challenge.

      2 months ago Log in to Reply
    24. JuJuB

      I wish there had been a response for “I don’t get sick” — that’s me. More than 50 years with T1D and I can sincerely said that the number of times I have been “sick” is fewer than ten. Less than that if you count official diagnoses (strep, flu, shingles (do not recommend!)).

      I like to say “My immune system pretty much killed off my islet cells and is still kicking butt all these years later.” Really, and truly… I do not get sick. (And yes, I do count my blessings daily and do NOT take that for granted.)

      2 months ago Log in to Reply
    25. T1D4LongTime

      I’ve not had so bad an illness that I’ve had trouble managing blood sugars (thank God!). At 56 years T1D starting at age 6, I have a plan for illness. I did call my endo this month when I was COVID positive, but only had a bad cough…. no bad BGs.

      1 month ago Log in to Reply
    26. PamK

      I really don’t refer to any “resources” when I’m sick at this point. With over 50 years having T1D, I know what to do! When I was younger my parents consulted with my endocrine. When I was first on my own, I did the same, or called my mom. But now, I know how to handle it.

      1 month ago Log in to Reply
    27. Mitch Chernoff

      As many others answered, I have learned over the years to manage illness-related too-high blood sugars on my own. This question rang a bell, as I’d tested positive for COVID just last month with the predictable blood-sugar climb – and resistance to responding in a normal fashion to extra insulin.

      I’ve consulted with my endo when this occurred in the distant past but after 50-plus years as a Type 1 know to cautiously increase my insulin dosage until a return to normal.

      1 month ago Log in to Reply
    28. Amy Schneider

      I was put on a new medication to lower my blood pressure and it lowered my blood sugar radically for 2 days. I stopped taking it and researched the problem on the web while I waited for a response from my endo and from my PCP.

      3 weeks ago Log in to Reply
    29. Lisa McBride

      I have lived with T1D since age 15 and I’m now age 60. I have gotten viral infections, including COVID, and have learned to manage my BG without bothering my physician about my T1D management. I even know that when I have persistent elevated BG (over 180 mg/dl) and it is not a pump problem, then I may have a asymptomatic UTI. So, I contact my physician for a same day appointment and get my urine tested for bacteria. Usually, I’m able to catch an infection in the early stages – hence asymptomatic. Fortunately, I’ve not had that in years. Fingers crossed moving forward!

      7 days ago Log in to Reply

    When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you. Cancel reply

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