Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 57 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 hour, 57 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 3 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 3 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 3 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 3 hours, 14 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 3 hours, 15 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 16 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 3 hours, 16 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 3 hours, 16 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 5 hours, 18 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 56 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 56 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 39 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 2 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 25 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 7 hours, 25 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 7 hours, 26 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 7 hours, 41 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 42 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 8 hours, 42 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 42 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 23 hours, 43 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 23 hours, 43 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 5 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    What was your most recent A1c?

    Home > LC Polls > What was your most recent A1c?
    Previous

    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.

    Next

    Do you find that over-the-counter cold medicines have any impact on your blood sugar? Tell us about your experience in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 week ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    14 Comments

    1. Nevin Bowman

      A lot of you are in for a nasty surprise down the road with the results I’m seeing here – tryst me, I’ve been there and know. :'(

      5 years ago Log in to Reply
    2. Kathleen Begbie

      Not sure. My endodid one and it was 7 plus. Another Doc do it and it was over 8. I see my endo again in early February

      5 years ago Log in to Reply
    3. Sherolyn Newell

      I think it was 6.4. The one before was 5.8. I’ve seen several people in the past say they were in the 5’s. My doctor seems to think that’s too low. She thinks it must mean I’m having a lot of lows. I didn’t, but she seems happier when it’s in the 6’s. Anyone else have a doctor like that?

      5 years ago Log in to Reply
    4. Julie Akawie

      @SherolynNewell — yes, my endo felt the same way, but when I showed her my Dexcom trend graphs, she could see that I spend >80% of my time “in range” (between 70 and 150), and have very few lows. Research shows that “TIR” is a better predictor of A1c than average blood sugar.

      5 years ago Log in to Reply
    5. William Bennett

      @ Sherolyn Newell — that’s such an old-school, pre-CGM mindset, but yeah, it still persists. Back in the day I used to get yelled at if I was below 6.5, because A1C is an *average*, and that means you had to have a lot of lows–or a few severe ones–to get there. Which was actually true. Back on the old R/NPH, “exchange diet” regimen, severe lows were much harder to avoid. NPH was especially bad because the peak time was so far out, and could sometimes intersect with the R still being active, and wham! You really had to organize your life around your insulin and not the other way around. I used to call it the END regimen, for “Eat Now or Die.” But there’s really no excuse for docs/endos maintaining those outdated attitudes, at least for patients using CGMs, where it’s easy to check how many lows you’ve had. That’s why the community is much more centered on Time In Range, than the A1C “average.”

      5 years ago Log in to Reply
    6. Janet Wilson

      My 15 year old’s A1C was 5.8 in December.

      5 years ago Log in to Reply
    7. Ken Raiche

      I’ve always been in the high 5’s and low 6’s my last two A1C were 6.4. For some reason both my endocrinologist as well educator want this number to rise closer to 7. They feel that if I’m getting A1C’s high 5’s to low 6’s I’m having to many reactions. Admittedly this is somewhat true but not in a severe sense.

      5 years ago Log in to Reply
    8. Sherolyn Newell

      Thanks for all the replies. I have Dexcom, so I know if I’m going low. I think the doctor worries too much. Sometimes I just do great. The times that I don’t, it’s usually a period of too high. That will happen, I don’t know why. For a week or two, seems like I can’t get it right and go too high all the time. After a time, I go back to normal. The opposite never seems to happen. The lows are usually a result of bad carb estimating.

      5 years ago Log in to Reply
    9. Austin Tremblay

      I want to know how the 2% of respondents with A1Cs lower than 5 are living.

      5 years ago Log in to Reply
    10. Nick Trubov

      Austin, I’d like to know how I’m living, too! Almost always my A1c has been in the mid to low fives. I must not be diabetic any longer, eh?

      5 years ago Log in to Reply
    11. Molly Jones

      I am grateful for sensors to see how to adjust my basal, bolus and insulin sensitivity. My A1c of 5.7 shows my average with lots of hypoglycemia in it, even if they are short. I don’t want the long term consequences on my brain from the lack of fuel it needs.

      5 years ago Log in to Reply
    12. Mick Martin

      I live in the UK where we have, for a number of years now used the IFCC (International Federation of Clinical Chemistry and Laboratory Medicine) measurements of mmol/mol (millimols per mole) rather than the older DCCT (Diabetes Control and Complications Trial) measurements of a % value. My last HbA1c level was 63 mmol/mol, which is equivalent to 7.9%.

      5 years ago Log in to Reply
    13. Amanda Barras

      In an emergency I will order pump supplies or go buy older style insulin and syringes OTC to get me by in an emergency. Just ordered pump supplies with cash this week because there was an incorrect shipment and I was complete out.

      5 years ago Log in to Reply
    14. Donna Condi

      Just got my results today and it was 6.5 even though Dexcom report said 6.3.

      5 years ago Log in to Reply

    What was your most recent A1c? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]