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    • 13 hours, 23 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 13 hours, 29 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 13 hours, 36 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 10 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 16 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 11 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 14 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    What do you define as a very low blood glucose reading?

    Home > LC Polls > What do you define as a very low blood glucose reading?
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    19 Comments

    1. Molly Jones

      It depends on the context.
      For long term consequences, I would define very low BG as below 65.
      For immediate interruptions of my life or capabilities, it would be below 55.

      2 years ago Log in to Reply
      1. Molly Jones

        I mean long term consequences towards my health as I would not want an extended period of a BG of 65.

        2 years ago Log in to Reply
    2. LizB

      Maybe because I have been hypo unaware for years, but to me “very low” would be below 50.

      2
      2 years ago Log in to Reply
    3. Trina Blake

      Usually below 55. But…I check every time I am going to drive. Then I make sure I am at 70+. Been among first responders too many times to risk impaired driving. And in my opinion, anyone on an insulin regimen has the potential to be an impaired driver.

      3
      2 years ago Log in to Reply
    4. GLORIA MILLER

      I agree the question would apply what context. If I am driving I don’t want it at 70 or below. If I am at home very low for me would be 30 or below. I’ve been T1 for 67 years (no complications) and I am aware any time I fall below 70. A 55 reading is no big deal to me. We are all different.

      4
      2 years ago Log in to Reply
    5. Mark Schweim

      I say <55, but my wife says anything below 100. She sometimes starts panicking if I get to 105, but I've had T1D for over 32 years and I seldom notice any symptoms until I get lower than the mid 30s.

      2 years ago Log in to Reply
    6. Lawrence S.

      I think of very low as in the 40’s. But, I don’t wait for my blood glucose to go that low. I try to keep my BG around 100.

      1
      2 years ago Log in to Reply
    7. Stephanie Cruickshank

      Below 2.5 (45)

      2 years ago Log in to Reply
    8. James Hoare

      < 40

      3
      2 years ago Log in to Reply
    9. Mick Martin

      Even lower than the “Below 55 mg/dL (3.0 mmol/L or lower)” that you offer.

      I fairly regularly have blood glucose levels in the 2.x mmol/l [30+ mg/dL] range. This was one of the reasons my endocrinologist was able to get CGM (Continuous Glucose Monitoring) prescribed to me on the NHS (National Health Service) in the UK, yet my blood glucose level has a tendency to fall rapidly, so my CGM, although it’s ‘continually monitoring’ my blood glucose levels has ‘difficulty’ with ‘keeping up’. [Glucose readings from interstitial fluids is never quite as good as glucose readings directly from blood.]

      2
      2 years ago Log in to Reply
    10. Daniel Bestvater

      Less than 2.5mmol/L(40)

      2 years ago Log in to Reply
    11. Kristi Warmecke

      For the 42 years I’ve been a T1 a very low bs was defined as losing consciousness. Once at home bs testing was available it was 40 or lower OR my Dexcom saying low.

      2 years ago Log in to Reply
    12. Nevin Bowman

      It would depend on how it’s trending. 50 trending up and 50 trending down are not equal.

      4
      2 years ago Log in to Reply
    13. mlettinga

      55 isn’t really low but once gets below into 40’s it’s really low.

      2
      2 years ago Log in to Reply
    14. Amanda Barras

      Def below 55! If it’s over 70 I won’t even treat unless I’m also trending down. Under 70 is low, under 55 is very low. But, I have control of my self down to 35 now on the pump, as long as it’s not a rapid decline or a prolonged low.

      2 years ago Log in to Reply
    15. Steven Gill

      Read an article from NIH that average person can experience glucose levels below “70” asymptomatically 7% of the time. Suggested levels below 54 seem medical treatment. With that said I see higher 60 frequently, but knowing the error range of standard glucose meters (15-20%) and MARD ratings of CGM (12-17%) I use “how I feel” as well.

      Sometimes I “feel” low and the CGM/meter says 75…I could be as low as 61 (20% lower?). And if I feel great bet the meter reads 68 I could be sitting as high 81. In enter case would use a small minute something to raise my levels: no need to shoot for a 200?

      At a 50 I boy necessarily panic but quickly treat.

      2 years ago Log in to Reply
    16. ChrisW

      I define very low as the level when my symptoms are evident to others e.g. talking funny, can’t hold my hand steady, difficulty maintaining balance. Or when my body releases glucagon in reaction to low blood sugar. Either the BG level is not the only criteria for these symptoms or my CGM is not consistent enough as any reported value below 70 has an equal chance at being correct, 15 mg/dL higher or 15 mg/dL lower.

      2 years ago Log in to Reply
    17. Kim Murphy

      I feel like for me a very low Blood Sugar is less than 40.

      2 years ago Log in to Reply
    18. Tb-well

      Lo

      2 years ago Log in to Reply

    What do you define as a very low blood glucose reading? Cancel reply

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