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    • 2 hours, 47 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 4 hours, 35 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 4 hours, 35 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 4 hours, 35 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 10 hours, 29 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 10 hours, 29 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 14 hours, 27 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 14 hours, 27 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 14 hours, 27 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 14 hours, 27 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 14 hours, 42 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 15 hours, 3 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 15 hours, 9 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 15 hours, 9 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 16 hours, 7 minutes ago
      Derek West likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 16 hours, 56 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 16 hours, 56 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 16 hours, 56 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 16 hours, 57 minutes ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 17 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 17 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      For me, this is a hypothetical question. On the surface, I am not concerned, because it does not effect me . However, if I were seriously going to view this as a genuine therapy for me, I would be very seriously concerned about side effects and long-term effects or immune system response.
    • 17 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 17 hours, 2 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 17 hours, 2 minutes ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 17 hours, 3 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    We’d like to know our Online Community better, please share what your primary connection to T1D is:

    Home > LC Polls > We’d like to know our Online Community better, please share what your primary connection to T1D is:
    Previous

    If you use a CGM, at what glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your local time zone.

    Next

    What do you define as a very low blood glucose reading?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Phyllis Biederman

      I have T1D and am also a medical professional workin the diabetes space.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Me too.

        2 years ago Log in to Reply
    2. jamesmpii

      LADA is Type 1. The question reinforces a constant misconception that LADA is not Type 1. If you want to differentiate, ask if our Type 1 onset was as a juvenile or as an adult. Whether it comes on suddenly at age 10 or comes on slowly at any age, it’s all Type 1.

      5
      2 years ago Log in to Reply
      1. Carol Evans

        Or comes on fast as an adult. If you don’t produce any insulin at all, you are Type 1. If your immune system decided to go to town on your beta cells and destroy them, at whatever age, you have the autoimmune disease called Type 1 diabetes. I don’t understand the LADA distinction, other than for research purposes.

        4
        2 years ago Log in to Reply
      2. William Bennett

        Yeah, the LADA thing confuses me too. I think the typical profile has to do with the slow speed of onset, hence “latent,” in combo with “Adult.” But it doesn’t fit me.

        I was dx’d when I’d just turned 28, and it went from first noticing I felt kinda crappy all the time to incipient DKA in about 6 weeks. That was in 1983 when Type 1/Type 2 wasn’t a thing, let alone LADA, so my record actually says “Juvenile type” anyway.

        1
        2 years ago Log in to Reply
    3. Patricia Dalrymple

      Thank you to the respondents who clarified LADA v. T1D. I marked LADA but probably should have marked T1D. I’m still trying to come to terms with the fact that my own body attacked my pancreatic cells at age 40.

      1
      2 years ago Log in to Reply
      1. Carol Meares

        That is roughly the age I was diagnosed. 39

        2 years ago Log in to Reply
    4. Ruth Schwartz

      Looking for Frontline anwers for the Trigger of the AutoImmune Response of TD1, and what is the Strategies for the Stopping/ Restoration of the Pancreas Functions and Islet Cells. Questions seem to be mpre of the Focus on Big Pharma Marketing vs. Cellular Restoration and Functions?

      2 years ago Log in to Reply
    5. Katherine Kettig

      I was diagnosed at 65 but was told I have type 1. Not sure what LADA is.

      2 years ago Log in to Reply
    6. james zellerhoff

      Watch your TID site daily
      For any “news” on TID
      MY diabetic DR Erl Hirsch — well known—Seattle WA
      I am neither type 1 or type 2
      So do studies with “Rariant”
      On Humalog insulin
      Go to the Diabetes care center @ the uw facility
      In Seattle WA
      JIM ZELLERHOFF.

      1
      2 years ago Log in to Reply
      1. Sue Martin

        I’m with another doctor in the same clinic.

        2 years ago Log in to Reply
    7. Kristi Warmecke

      I’ve been apart of the T1 community since 1972 when my brother was diagnosed at 7 months old. I was diagnosed 10 years later.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      I would have checked several boxes, I have T1D, my eldest son has T1D, and my eldest granddaughter has T1D. Sort of runs in the family.

      1
      2 years ago Log in to Reply
    9. Carol Meares

      I have been told that LADA is not an official diagnosis although that may have changed. I put LADA because I figured by the question you wanted to differentiate the Type ones to know your audience better. My diagnosis is now Type 1 although for many years the diagnosis was Type 2 even though I was on insulin and was not characteristic of Type 2, i.e. insulin resistance. I was diagnosed at age 39. The term LADA may not have even been coined at the time (1993). I am now almost 70.

      1
      2 years ago Log in to Reply
    10. Ken Raiche

      I would figure by the title of this site it would be an extremely high percentage of T1D.

      2 years ago Log in to Reply
    11. Sue Herflicker

      I live with LADA and I also raised 2 T1ds before my diagnosis. Also my brother is a T1d.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      Multiple responses apply to me, but could only select one:
      – I live with type 1 diabetes
      – I am a family member of someone living with T1D
      – I work in diabetes/diabetes research

      1
      2 years ago Log in to Reply
    13. Bill Kast

      I identify as a T1D but actually I am not auto-immune compromised. My entire pancreas was removed in an attempt to avoid Early and Certain Death from Pancreas Adinocarcinoma. The procedure was about 9 years ago, and my recovery was slow but has been excellent. I am in good health (for a 75 year old man…) Anyone interested in my journey is welcome to browse my WordPress Blog that documents my adventure. https://billspancreas.wordpress.com

      2 years ago Log in to Reply
    14. ConnieT1D62

      Would have been nice to be able to select more than one answer as several of us have more then one primary connection to T1D.

      2 years ago Log in to Reply
    15. Michele Dougherty

      I’ve had type 1 diabetes for 43 years

      2 years ago Log in to Reply
    16. jamesmpii

      I am T1D.

      2 years ago Log in to Reply

    We’d like to know our Online Community better, please share what your primary connection to T1D is: Cancel reply

    You must be logged in to post a comment.




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