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    • 11 hours, 34 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 11 hours, 40 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 11 hours, 40 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 11 hours, 49 minutes ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 13 hours, 10 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 14 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 14 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 14 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 14 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 15 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 15 hours, 56 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 15 hours, 56 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 15 hours, 57 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 16 hours, 3 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 16 hours, 10 minutes ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 16 hours, 13 minutes ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 18 hours, 46 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      So far since Jan 1, ‘26, I’ve spent nearly 30 hours on the phone battling and trying to get Medicare covered diabetes supplies. Called 5 different suppliers t get what I need to use my pump.
    • 18 hours, 47 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      You are too modest. That hurdle is on fire and you have to juggle chainsaws as you jump over it. Congratulations and good luck making it over the next one in 90 days.
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 10 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 10 hours ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 10 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
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    Over the past month, on average how often did you test for ketones?

    Home > LC Polls > Over the past month, on average how often did you test for ketones?
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    Living with T1D can be frustrating and finding silver linings can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and spread the positivity in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Bob Durstenfeld

      I have both a Ketone blood meter and urine strips. I generally test if I am high or if I have unexplained nausea, in case of normal blood sugar range ketosis because I take an SLGT-2.

      5 years ago Log in to Reply
    2. René Wagner

      I never test

      5 years ago Log in to Reply
    3. Sean Gallagher

      I have never tested for ketones in my nearly 32 years with T1D.

      5 years ago Log in to Reply
    4. Sue Herflicker

      Never!!!

      5 years ago Log in to Reply
    5. Meghann Reese

      I rarely test for ketones and instead go by symptoms – if my sugars are high and not responding to insulin, I probably have ketones and need to go to the ER. If I’m vomiting and can’t keep anything down, I probably need to go to the ER. In these cases ketones or no ketones doesn’t change that, but no ketones might cause me to second guess myself in going.

      5 years ago Log in to Reply
    6. GLORIA MILLER

      I have never tested for ketones in my almost 64 years with T1 and I have never been hospitalized for diabetes.

      5 years ago Log in to Reply
    7. Jennifer Linnane

      I’ve never tested for ketones in almost 26 years of having T1D. It has never been recommended to me to do so, so it’s not a compliance issue.

      5 years ago Log in to Reply
    8. Miriam Eisenberg

      For my teenager, ketones may be a sign of a pump delivery issue, so he checks ketones if he has a high bs and unsure of reason (didn’t forget a food bolus, etc) or if any GI symptoms of nausea or vomiting. This has happened less since going on control iq.

      5 years ago Log in to Reply
    9. Janet Wilson

      Once. BLOOD ketones. And the only reason was because my son’s blood sugar was over 200 for a considerable length of time (which it usually ISN’T). We never use urine strips because we were told that the results are old information and that blood ketone testing is infinitely more accurate and timely. Plus, it’s an actual NUMBER rather than a guessing game of ranges.

      5 years ago Log in to Reply
    10. connie ker

      I have ketone strips that test urine but they are way past the sell by date simply because I don’t use them often. So are they still good? My Dr. told me test strips for meters don’t go bad, so are these viable for use?

      5 years ago Log in to Reply
    11. Jana Foley

      I have not tested in the last month at all. I am in better control of my diabetes thanks to my CGM so it isn’t ever a problem.

      5 years ago Log in to Reply
    12. Ahh Life

      Have the strips. Do not test, hardly ever. Despite my 7 decades of bungie-chord swings between highs and lows (sometimes 400-500), I invariably and with certainty treat any high BG. At times, it will take several hours. But I eventually get it right which is defined as “somewhere near 100.” Good luck to all who try, no matter what the method.

      5 years ago Log in to Reply
    13. Yaffa Steubinger

      Have the strips but don’t test. Haven’t felt the need to.

      5 years ago Log in to Reply
    14. George Lovelace

      Haven’t had any Symptoms to speak of in over 30 years – T1 for almost 57 yrs.

      5 years ago Log in to Reply
    15. Kristine Warmecke

      I’ve not had to test my blood for ketones in several months, knock on wood. My Control IQ is such a blessing, once I gave up my need to control all things T1D. Not an easy thing to do, I began on it in late Jan. of this year and was finally able to do so in Sept. I only check for ketones when I have unexplained highs and even an injection won’t bring it down.

      5 years ago Log in to Reply
    16. Patricia Dalrymple

      I’ve never tested for ketones. I’ve always been able to bring any spikes down within two tries. I rarely get sick. Very fortunate.

      5 years ago Log in to Reply
    17. Molly Jones

      I have tested for ketones less than ten times in twenty years and all were negative. My blood sugar sometimes stays in the 300s with no apparent cause. I will change my pump and insulin along with increasing insulin, so there must be something stressful going on inside. Who knows, maybe my brain isn’t happy during those periods with seizures.

      5 years ago Log in to Reply
    18. Amanda Barras

      I haven’t checked my ketones since my pregnancy over 12 years ago! And before that I was a kid last time I checked.

      5 years ago Log in to Reply
    19. Dr Dennis Timothy Crowe

      I have been a T1D for 51 years and have only tested for ketones when trying to move into a ketogenic diet. Seems counterintuitive but the less carbohydrates I ingest the more steady my blood sugar levels and CGM waveforms are and in a range of 90-140. Anyone else with these results?

      5 years ago Log in to Reply
    20. ANN GALLUZZO

      In 50 years I have never tested for ketones.

      5 years ago Log in to Reply
    21. Leona Hanson

      Never tested for ketones I though the doctor did that when they did the pee test

      5 years ago Log in to Reply

    Over the past month, on average how often did you test for ketones? Cancel reply

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