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    • 14 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 58 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 21 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 18 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 41 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 43 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 44 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 45 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 53 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 45 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 46 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 48 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    Over the past month, on average how often did you test for ketones?

    Home > LC Polls > Over the past month, on average how often did you test for ketones?
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    Living with T1D can be frustrating and finding silver linings can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and spread the positivity in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Bob Durstenfeld

      I have both a Ketone blood meter and urine strips. I generally test if I am high or if I have unexplained nausea, in case of normal blood sugar range ketosis because I take an SLGT-2.

      5 years ago Log in to Reply
    2. René Wagner

      I never test

      5 years ago Log in to Reply
    3. Sean Gallagher

      I have never tested for ketones in my nearly 32 years with T1D.

      5 years ago Log in to Reply
    4. Sue Herflicker

      Never!!!

      5 years ago Log in to Reply
    5. Meghann Reese

      I rarely test for ketones and instead go by symptoms – if my sugars are high and not responding to insulin, I probably have ketones and need to go to the ER. If I’m vomiting and can’t keep anything down, I probably need to go to the ER. In these cases ketones or no ketones doesn’t change that, but no ketones might cause me to second guess myself in going.

      5 years ago Log in to Reply
    6. GLORIA MILLER

      I have never tested for ketones in my almost 64 years with T1 and I have never been hospitalized for diabetes.

      5 years ago Log in to Reply
    7. Jennifer Linnane

      I’ve never tested for ketones in almost 26 years of having T1D. It has never been recommended to me to do so, so it’s not a compliance issue.

      5 years ago Log in to Reply
    8. Miriam Eisenberg

      For my teenager, ketones may be a sign of a pump delivery issue, so he checks ketones if he has a high bs and unsure of reason (didn’t forget a food bolus, etc) or if any GI symptoms of nausea or vomiting. This has happened less since going on control iq.

      5 years ago Log in to Reply
    9. Janet Wilson

      Once. BLOOD ketones. And the only reason was because my son’s blood sugar was over 200 for a considerable length of time (which it usually ISN’T). We never use urine strips because we were told that the results are old information and that blood ketone testing is infinitely more accurate and timely. Plus, it’s an actual NUMBER rather than a guessing game of ranges.

      5 years ago Log in to Reply
    10. connie ker

      I have ketone strips that test urine but they are way past the sell by date simply because I don’t use them often. So are they still good? My Dr. told me test strips for meters don’t go bad, so are these viable for use?

      5 years ago Log in to Reply
    11. Jana Foley

      I have not tested in the last month at all. I am in better control of my diabetes thanks to my CGM so it isn’t ever a problem.

      5 years ago Log in to Reply
    12. Ahh Life

      Have the strips. Do not test, hardly ever. Despite my 7 decades of bungie-chord swings between highs and lows (sometimes 400-500), I invariably and with certainty treat any high BG. At times, it will take several hours. But I eventually get it right which is defined as “somewhere near 100.” Good luck to all who try, no matter what the method.

      5 years ago Log in to Reply
    13. Yaffa Steubinger

      Have the strips but don’t test. Haven’t felt the need to.

      5 years ago Log in to Reply
    14. George Lovelace

      Haven’t had any Symptoms to speak of in over 30 years – T1 for almost 57 yrs.

      5 years ago Log in to Reply
    15. Kristine Warmecke

      I’ve not had to test my blood for ketones in several months, knock on wood. My Control IQ is such a blessing, once I gave up my need to control all things T1D. Not an easy thing to do, I began on it in late Jan. of this year and was finally able to do so in Sept. I only check for ketones when I have unexplained highs and even an injection won’t bring it down.

      5 years ago Log in to Reply
    16. Patricia Dalrymple

      I’ve never tested for ketones. I’ve always been able to bring any spikes down within two tries. I rarely get sick. Very fortunate.

      5 years ago Log in to Reply
    17. Molly Jones

      I have tested for ketones less than ten times in twenty years and all were negative. My blood sugar sometimes stays in the 300s with no apparent cause. I will change my pump and insulin along with increasing insulin, so there must be something stressful going on inside. Who knows, maybe my brain isn’t happy during those periods with seizures.

      5 years ago Log in to Reply
    18. Amanda Barras

      I haven’t checked my ketones since my pregnancy over 12 years ago! And before that I was a kid last time I checked.

      5 years ago Log in to Reply
    19. Dr Dennis Timothy Crowe

      I have been a T1D for 51 years and have only tested for ketones when trying to move into a ketogenic diet. Seems counterintuitive but the less carbohydrates I ingest the more steady my blood sugar levels and CGM waveforms are and in a range of 90-140. Anyone else with these results?

      5 years ago Log in to Reply
    20. ANN GALLUZZO

      In 50 years I have never tested for ketones.

      5 years ago Log in to Reply
    21. Leona Hanson

      Never tested for ketones I though the doctor did that when they did the pee test

      5 years ago Log in to Reply

    Over the past month, on average how often did you test for ketones? Cancel reply

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