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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Over the past month, on average how often did you test for ketones?

    Home > LC Polls > Over the past month, on average how often did you test for ketones?
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    Living with T1D can be frustrating and finding silver linings can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and spread the positivity in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Bob Durstenfeld

      I have both a Ketone blood meter and urine strips. I generally test if I am high or if I have unexplained nausea, in case of normal blood sugar range ketosis because I take an SLGT-2.

      5 years ago Log in to Reply
    2. René Wagner

      I never test

      5 years ago Log in to Reply
    3. Sean Gallagher

      I have never tested for ketones in my nearly 32 years with T1D.

      5 years ago Log in to Reply
    4. Sue Herflicker

      Never!!!

      5 years ago Log in to Reply
    5. Meghann Reese

      I rarely test for ketones and instead go by symptoms – if my sugars are high and not responding to insulin, I probably have ketones and need to go to the ER. If I’m vomiting and can’t keep anything down, I probably need to go to the ER. In these cases ketones or no ketones doesn’t change that, but no ketones might cause me to second guess myself in going.

      5 years ago Log in to Reply
    6. GLORIA MILLER

      I have never tested for ketones in my almost 64 years with T1 and I have never been hospitalized for diabetes.

      5 years ago Log in to Reply
    7. Jennifer Linnane

      I’ve never tested for ketones in almost 26 years of having T1D. It has never been recommended to me to do so, so it’s not a compliance issue.

      5 years ago Log in to Reply
    8. Miriam Eisenberg

      For my teenager, ketones may be a sign of a pump delivery issue, so he checks ketones if he has a high bs and unsure of reason (didn’t forget a food bolus, etc) or if any GI symptoms of nausea or vomiting. This has happened less since going on control iq.

      5 years ago Log in to Reply
    9. Janet Wilson

      Once. BLOOD ketones. And the only reason was because my son’s blood sugar was over 200 for a considerable length of time (which it usually ISN’T). We never use urine strips because we were told that the results are old information and that blood ketone testing is infinitely more accurate and timely. Plus, it’s an actual NUMBER rather than a guessing game of ranges.

      5 years ago Log in to Reply
    10. connie ker

      I have ketone strips that test urine but they are way past the sell by date simply because I don’t use them often. So are they still good? My Dr. told me test strips for meters don’t go bad, so are these viable for use?

      5 years ago Log in to Reply
    11. Jana Foley

      I have not tested in the last month at all. I am in better control of my diabetes thanks to my CGM so it isn’t ever a problem.

      5 years ago Log in to Reply
    12. Ahh Life

      Have the strips. Do not test, hardly ever. Despite my 7 decades of bungie-chord swings between highs and lows (sometimes 400-500), I invariably and with certainty treat any high BG. At times, it will take several hours. But I eventually get it right which is defined as “somewhere near 100.” Good luck to all who try, no matter what the method.

      5 years ago Log in to Reply
    13. Yaffa Steubinger

      Have the strips but don’t test. Haven’t felt the need to.

      5 years ago Log in to Reply
    14. George Lovelace

      Haven’t had any Symptoms to speak of in over 30 years – T1 for almost 57 yrs.

      5 years ago Log in to Reply
    15. Kristine Warmecke

      I’ve not had to test my blood for ketones in several months, knock on wood. My Control IQ is such a blessing, once I gave up my need to control all things T1D. Not an easy thing to do, I began on it in late Jan. of this year and was finally able to do so in Sept. I only check for ketones when I have unexplained highs and even an injection won’t bring it down.

      5 years ago Log in to Reply
    16. Patricia Dalrymple

      I’ve never tested for ketones. I’ve always been able to bring any spikes down within two tries. I rarely get sick. Very fortunate.

      5 years ago Log in to Reply
    17. Molly Jones

      I have tested for ketones less than ten times in twenty years and all were negative. My blood sugar sometimes stays in the 300s with no apparent cause. I will change my pump and insulin along with increasing insulin, so there must be something stressful going on inside. Who knows, maybe my brain isn’t happy during those periods with seizures.

      5 years ago Log in to Reply
    18. Amanda Barras

      I haven’t checked my ketones since my pregnancy over 12 years ago! And before that I was a kid last time I checked.

      5 years ago Log in to Reply
    19. Dr Dennis Timothy Crowe

      I have been a T1D for 51 years and have only tested for ketones when trying to move into a ketogenic diet. Seems counterintuitive but the less carbohydrates I ingest the more steady my blood sugar levels and CGM waveforms are and in a range of 90-140. Anyone else with these results?

      5 years ago Log in to Reply
    20. ANN GALLUZZO

      In 50 years I have never tested for ketones.

      5 years ago Log in to Reply
    21. Leona Hanson

      Never tested for ketones I though the doctor did that when they did the pee test

      5 years ago Log in to Reply

    Over the past month, on average how often did you test for ketones? Cancel reply

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