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    • 12 hours, 19 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 12 hours, 19 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 13 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 13 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 13 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 13 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 13 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 13 hours, 38 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 13 hours, 38 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 13 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 15 hours, 40 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 16 hours, 18 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 16 hours, 18 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 17 hours, 1 minute ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 17 hours, 24 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 17 hours, 47 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 17 hours, 47 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 17 hours, 48 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 18 hours, 3 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 19 hours, 4 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 19 hours, 4 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 15 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most)

    Home > LC Polls > On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most)
    Previous

    Before you were diagnosed with type 1 diabetes, did a healthcare provider tell you that you had prediabetes, or inform you that you had elevated blood glucose levels?

    Next

    Have you ever had a diabetes alert dog? If not, would you ever consider it?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Ahh Life

      Uh-oh. I checked 1 thinking that was the most instead of 5. Then I got around to doing “due consideration.” Medicare is primary. It has a 237 page book to explain details. So do some quantum mechanics text books. Therefore, I am quite sure I do not understand 237 pages of details in either of those books. Therefore, perhaps 1 really is the best answer. ¯\_( ͡❛ ͜ʖ ͡❛)_/¯

      3
      5 years ago Log in to Reply
    2. TEH

      I just changed from emloyer provided health insurance to Medicare. I looked at advantage plans and found only one plan that covered insulin in my area. I went with a “G” gap plan allowing me to choose which pharmacy had the best insulin coverage. That took a lot of research.

      5 years ago Log in to Reply
      1. RobbyLee

        I did the same thing. In addition, the G plan keeps you from being required to use physicians within a specific network. More options for sure.

        FYI, I also learned that Medicare part B will pay for your insulin if you’re using an insulin pump.

        5 years ago Log in to Reply
    3. Mick Martin

      Although I selected “I do not have health insurance”, what I actually mean is that I don’t have a separate, paid for insurance. I live in the United Kingdom of Great Britain and Northern Ireland, where are ‘insurance’ is our NHS (National Health Service), which is financed via direct taxation of all working people. You CAN, of course, opt to pay for an ‘external’ insurance, which has advanatages in that you get a higher priority treatment when needed.

      Apart from the above, my medical needs, prescriptions, doctor’s consultations, etc. are all covered by our NHS system.

      5 years ago Log in to Reply
      1. Gustavo Avitabile

        Same answer for me, in Italy.

        5 years ago Log in to Reply
    4. George Hamilton

      I think I have a good understanding of the basic structure and a clear understanding of the parts I need on a regular basis. I defy anyone to claim the have full knowledge of the DETAILS of every part of the whole plan

      3
      5 years ago Log in to Reply
    5. Steve Rumble

      I have had the same coverage from Kaiser Mid-Atlantic for the past 32 years. I recently switched to Kaiser’s Medicare Advantage plan, but the coverage did not change much.

      5 years ago Log in to Reply
    6. Kevin McCue

      Between co-insurance, co-pays, and deductibles, it’s all ways to shift liability to the customer and give the company you pay to cover your needs less responsibility but more revenue. It would be nice to have an advocate on the individuals side.

      2
      5 years ago Log in to Reply
    7. Lawrence Stearns

      I am on Medicare. And quite frankly, it makes no sense to me at all. I find it to be a giant step down from my previous employment health insurance plan.

      1
      5 years ago Log in to Reply
    8. Stephen Woodward

      Medicare, like fishing in muddy water with a blindfold.

      5 years ago Log in to Reply
    9. Cheryl Seibert

      It’s too bad the mail-order pharmacies don’t understand the plan as well. I’ve found one pharmacy that doesn’t even follow it’s own formulary applying it’s own interpretation to pre-authorization and quantity limits contrary to the the formulary.

      1
      5 years ago Log in to Reply
    10. TomH

      I have Medicare as primary with Tricare for Life (military retiree) as secondary. It’s supposed to be a very good set up with most needs covered by one or the other. Tricare’s formulary seems grotesquely out of date for diabetes meds, but good for CGM and pump coverage. Medicare seems crazy as to what is/isn’t covered by which part. All of it seems written by lawyers for lawyers as a full employment scheme for them, convoluted and indecipherable by most people that actually need it.

      2
      5 years ago Log in to Reply
    11. Kim Murphy

      I understand it way too well and it sucks that they don’t pay for my pump supplies (omnipod dash or the sensors and transmitters for my CGM) even though I met my deductible in January.

      5 years ago Log in to Reply
    12. dave hedeen

      I am one of the lucky. I had 30 years experience in health care finance and my wife was career social worker who also assisted patients with their queries. Still not all Medicare policies or regulations make sense.

      2
      5 years ago Log in to Reply
    13. Sahran Holiday

      I understand. CIGNA recently changed pharmacy and DME providers to very stupid vendors. When I call CIGNA often get representatives who don’t understand and outright lie. CGM transmitter expiring July 17th. Ordered replacement June 18th. Solara never shipped it, repeated phone calls to Solara and CIGNA. Promised me, nothing came, No CGM for 7 weeks thanks to gross incompetence. CIGNA is employer provided, my part of the premium is 19% of my net income.
      Switching insurance end of the year.

      5 years ago Log in to Reply
    14. kristina blake

      I know that I have to deal with referrals all the time, I know that when you have to switch plans (due to cost of premiums or employer changes) I have to “prove” that yes, I still have T1D, and that yes, there are adults with T1D, I know that shareholders are ore important to the health plan than those paying premiums (i.e. their customer policy holders). I have also learned that if I assist my HCP with the language getting something approved (one good one is comparing the costs to the health plan if they don’t cover pumps, CGMs etc) And I know that they change network providers, pharmacies etc at the drop of a hat, so call first!

      5 years ago Log in to Reply
    15. Mig Vascos

      I’m sure I don’t know every provision in my health care plan, but after several years of hitting bumps, I now understand everything I need to do to keep all my device supplies and all my meds delivered on time. Medicare is my primary, so that was quite a challenge. Two years ago I upgraded my secondary to an “enhanced plan” and my premium is a tad higher but I don’t have to worry about deductibles or copayments on my medical plan. I still have them on my prescription plan though. But all the maneuvers with the insurance plans I’ve faced thru out the years have kept my brain functioning. Trying to be positive. LOL.

      5 years ago Log in to Reply
    16. Janis Senungetuk

      I’ve tried, but the answers received before signing up last year have little relation to the EOB we’re receiving now.

      2
      5 years ago Log in to Reply
    17. connie ker

      I am on Medicare, Anthem Blue Cross supplement, and a senior RX plan with Cigna. Yes, I understand the plans and review them annually. Cigna is the best plan for insulin coverage by far, witha tier six for diabetics.

      5 years ago Log in to Reply
    18. AnitaS

      Not sure if I understand everything, but I believe I understand everything that I need to keep up with my health care. After seeing comments about medicare, I dread the day when that is something I will have to look into.

      1
      5 years ago Log in to Reply
    19. Derek West

      I am on a Medicare advantage plan with Aetna. I understand it well enough to get what I need, and if something new comes up I look at the manual or call the help line. Not difficult.

      1
      5 years ago Log in to Reply
    20. Molly Jones

      3 was my choice. Once married, I have my husband’s insurance plan along with choosing to keep just Medicare part b.
      I do not understand how they play together, but I understand what/ who is covered and how to access needed information.

      5 years ago Log in to Reply
    21. Bonnie Lundblom

      I’m on Medicare with a United Healthcare Supplement plan. Most of their language in the book is understandable but often not comprehensive enough and calling their number to inquire you getting some pretty interesting responses that I’m not convinced are accurate. Time and the medicare statements will answer those worries.

      5 years ago Log in to Reply
    22. PamK

      I have worked in health benefits administration.

      5 years ago Log in to Reply
    23. Sadie Robinson

      I am a retired nurse and I worked for a health plan . I recently changed health plans and the EOB is much clearer and the services are great even though it is a Medicare advantage plan. Humana has several good perks.

      5 years ago Log in to Reply

    On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most) Cancel reply

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