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    • 19 hours, 41 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 19 hours, 44 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I had ketones thrn I am sick. If mid to large I wd call my endo or if also vomiting or dehydrated from diarrhea. I wd go to the ER
    • 20 hours, 58 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 20 hours, 58 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 21 hours, 6 minutes ago
      KSannie likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 21 hours, 8 minutes ago
      Patricia Dalrymple likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 21 hours, 21 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I increase my basal and insulin ratios if I eat until I show no longer test positive. I do only test if I have been high for a longer than usual time.
    • 21 hours, 22 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 21 hours, 43 minutes ago
      Judith Halterman likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 21 hours, 46 minutes ago
      Derek West likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 1 day, 12 hours ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 1 day, 19 hours ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 22 hours ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 2 days, 15 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 3 days, 18 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 3 days, 20 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 3 days, 21 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 3 days, 21 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 3 days, 21 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 3 days, 21 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 4 days, 12 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 5 days, 7 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 20 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 20 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
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    On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most)

    Home > LC Polls > On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most)
    Previous

    Before you were diagnosed with type 1 diabetes, did a healthcare provider tell you that you had prediabetes, or inform you that you had elevated blood glucose levels?

    Next

    Have you ever had a diabetes alert dog? If not, would you ever consider it?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    25 Comments

    1. Ahh Life

      Uh-oh. I checked 1 thinking that was the most instead of 5. Then I got around to doing “due consideration.” Medicare is primary. It has a 237 page book to explain details. So do some quantum mechanics text books. Therefore, I am quite sure I do not understand 237 pages of details in either of those books. Therefore, perhaps 1 really is the best answer. ¯\_( ͡❛ ͜ʖ ͡❛)_/¯

      3
      5 years ago Log in to Reply
    2. TEH

      I just changed from emloyer provided health insurance to Medicare. I looked at advantage plans and found only one plan that covered insulin in my area. I went with a “G” gap plan allowing me to choose which pharmacy had the best insulin coverage. That took a lot of research.

      5 years ago Log in to Reply
      1. RobbyLee

        I did the same thing. In addition, the G plan keeps you from being required to use physicians within a specific network. More options for sure.

        FYI, I also learned that Medicare part B will pay for your insulin if you’re using an insulin pump.

        5 years ago Log in to Reply
    3. Mick Martin

      Although I selected “I do not have health insurance”, what I actually mean is that I don’t have a separate, paid for insurance. I live in the United Kingdom of Great Britain and Northern Ireland, where are ‘insurance’ is our NHS (National Health Service), which is financed via direct taxation of all working people. You CAN, of course, opt to pay for an ‘external’ insurance, which has advanatages in that you get a higher priority treatment when needed.

      Apart from the above, my medical needs, prescriptions, doctor’s consultations, etc. are all covered by our NHS system.

      5 years ago Log in to Reply
      1. Gustavo Avitabile

        Same answer for me, in Italy.

        5 years ago Log in to Reply
    4. George Hamilton

      I think I have a good understanding of the basic structure and a clear understanding of the parts I need on a regular basis. I defy anyone to claim the have full knowledge of the DETAILS of every part of the whole plan

      3
      5 years ago Log in to Reply
    5. Steve Rumble

      I have had the same coverage from Kaiser Mid-Atlantic for the past 32 years. I recently switched to Kaiser’s Medicare Advantage plan, but the coverage did not change much.

      5 years ago Log in to Reply
    6. Kevin McCue

      Between co-insurance, co-pays, and deductibles, it’s all ways to shift liability to the customer and give the company you pay to cover your needs less responsibility but more revenue. It would be nice to have an advocate on the individuals side.

      2
      5 years ago Log in to Reply
    7. Lawrence Stearns

      I am on Medicare. And quite frankly, it makes no sense to me at all. I find it to be a giant step down from my previous employment health insurance plan.

      1
      5 years ago Log in to Reply
    8. Stephen Woodward

      Medicare, like fishing in muddy water with a blindfold.

      5 years ago Log in to Reply
    9. Cheryl Seibert

      It’s too bad the mail-order pharmacies don’t understand the plan as well. I’ve found one pharmacy that doesn’t even follow it’s own formulary applying it’s own interpretation to pre-authorization and quantity limits contrary to the the formulary.

      1
      5 years ago Log in to Reply
    10. TomH

      I have Medicare as primary with Tricare for Life (military retiree) as secondary. It’s supposed to be a very good set up with most needs covered by one or the other. Tricare’s formulary seems grotesquely out of date for diabetes meds, but good for CGM and pump coverage. Medicare seems crazy as to what is/isn’t covered by which part. All of it seems written by lawyers for lawyers as a full employment scheme for them, convoluted and indecipherable by most people that actually need it.

      2
      5 years ago Log in to Reply
    11. Kim Murphy

      I understand it way too well and it sucks that they don’t pay for my pump supplies (omnipod dash or the sensors and transmitters for my CGM) even though I met my deductible in January.

      5 years ago Log in to Reply
    12. dave hedeen

      I am one of the lucky. I had 30 years experience in health care finance and my wife was career social worker who also assisted patients with their queries. Still not all Medicare policies or regulations make sense.

      2
      5 years ago Log in to Reply
    13. Sahran Holiday

      I understand. CIGNA recently changed pharmacy and DME providers to very stupid vendors. When I call CIGNA often get representatives who don’t understand and outright lie. CGM transmitter expiring July 17th. Ordered replacement June 18th. Solara never shipped it, repeated phone calls to Solara and CIGNA. Promised me, nothing came, No CGM for 7 weeks thanks to gross incompetence. CIGNA is employer provided, my part of the premium is 19% of my net income.
      Switching insurance end of the year.

      5 years ago Log in to Reply
    14. kristina blake

      I know that I have to deal with referrals all the time, I know that when you have to switch plans (due to cost of premiums or employer changes) I have to “prove” that yes, I still have T1D, and that yes, there are adults with T1D, I know that shareholders are ore important to the health plan than those paying premiums (i.e. their customer policy holders). I have also learned that if I assist my HCP with the language getting something approved (one good one is comparing the costs to the health plan if they don’t cover pumps, CGMs etc) And I know that they change network providers, pharmacies etc at the drop of a hat, so call first!

      5 years ago Log in to Reply
    15. Mig Vascos

      I’m sure I don’t know every provision in my health care plan, but after several years of hitting bumps, I now understand everything I need to do to keep all my device supplies and all my meds delivered on time. Medicare is my primary, so that was quite a challenge. Two years ago I upgraded my secondary to an “enhanced plan” and my premium is a tad higher but I don’t have to worry about deductibles or copayments on my medical plan. I still have them on my prescription plan though. But all the maneuvers with the insurance plans I’ve faced thru out the years have kept my brain functioning. Trying to be positive. LOL.

      5 years ago Log in to Reply
    16. Janis Senungetuk

      I’ve tried, but the answers received before signing up last year have little relation to the EOB we’re receiving now.

      2
      5 years ago Log in to Reply
    17. connie ker

      I am on Medicare, Anthem Blue Cross supplement, and a senior RX plan with Cigna. Yes, I understand the plans and review them annually. Cigna is the best plan for insulin coverage by far, witha tier six for diabetics.

      5 years ago Log in to Reply
    18. AnitaS

      Not sure if I understand everything, but I believe I understand everything that I need to keep up with my health care. After seeing comments about medicare, I dread the day when that is something I will have to look into.

      1
      5 years ago Log in to Reply
    19. Derek West

      I am on a Medicare advantage plan with Aetna. I understand it well enough to get what I need, and if something new comes up I look at the manual or call the help line. Not difficult.

      1
      5 years ago Log in to Reply
    20. Molly Jones

      3 was my choice. Once married, I have my husband’s insurance plan along with choosing to keep just Medicare part b.
      I do not understand how they play together, but I understand what/ who is covered and how to access needed information.

      5 years ago Log in to Reply
    21. Bonnie Lundblom

      I’m on Medicare with a United Healthcare Supplement plan. Most of their language in the book is understandable but often not comprehensive enough and calling their number to inquire you getting some pretty interesting responses that I’m not convinced are accurate. Time and the medicare statements will answer those worries.

      5 years ago Log in to Reply
    22. PamK

      I have worked in health benefits administration.

      5 years ago Log in to Reply
    23. Sadie Robinson

      I am a retired nurse and I worked for a health plan . I recently changed health plans and the EOB is much clearer and the services are great even though it is a Medicare advantage plan. Humana has several good perks.

      5 years ago Log in to Reply

    On a scale of 1-5, how well do you understand the details of your health insurance plan? (1 = the least, 5 = the most) Cancel reply

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