On a scale of 1-5, how satisfied are you with your current T1D therapy regimen? (5 = the most satisfied, 1 = the least satisfied)

Activity
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 43 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 48 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
- 49 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
- 49 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
- 51 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
- 52 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 53 minutes ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
Clear All

On a scale of 1-5, how satisfied are you with your current T1D therapy regimen? (5 = the most satisfied, 1 = the least satisfied)

How old were you when you were first diagnosed with T1D?

Sarah Howard

29 Comments

Tina Roberts

1-on Medtronic 670G with entire sensor. Like the closed loop auto part. Hate calibrating the sensor 3 times a day.

1

2 years ago Log in to Reply
Kristine Warmecke

I’ll be a 5 only when a dual pump comes out. We have the pre-mixed, stable at room temp glucagon, it’s time to add it an integrated pump system. Preferably Tandem’s X2 with Dexcom’s latest & greatest CGM.

3

2 years ago Log in to Reply
P-O Heidling

After switching to low carb/LCHF 11 years ago, I’ve been in the “5” range. The only painful left is when I’m forced to go and visit my doctor(s), which don’t approve my way of eating.

2

2 years ago Log in to Reply
dave hedeen

on closed loop system, which handles sleep, exercise, most daily activities. Yet lasagna, cold cereal, & pumpkin pie require additional insulin therapies.

2 years ago Log in to Reply
Ruth Chapman

Currently using omnipod which I love and libre – just switched to libre 2. Needs greater integration between the 2 as libre 2 alarms only on meter, not phone. Pump controlled via pdm, so I have 3 devices to carry around with me. Looking forward to them all being integrated via an app on my phone.

1

2 years ago Log in to Reply
Tb-well

I would have said 4 until I got the 670 and then the 770. Most of the people I know call it the “needy spouse, you never know what it wants, but it constantly yells about needing something”
Due to the amount of alarms I am no longer in nearly as good of control simply because by the 10th alarm, I am ignoring them, or putting the stupid pump into silent mode. This thing wakes me up during the night, the sensor randomly fails, and talking to Their tech support I get told things like, “you need to quit focusing on how it should work, and focus on how it does.”
I am actively working to get the hell away from this nightmare machine that is robbing me of what little peace I got to start with.

The worst part is that this same company in 2020 put out a pamphlet called, better is better, why you should get an insulin pump.

4

2 years ago Log in to Reply
Meghan Larson

When it’s good, it’s great! And by that I mean that things are wonderful when the technology I use for my therapy works appropriately (Tandem/Dexcom).

1

2 years ago Log in to Reply
Lawrence Stearns

I give a 4 because there is always room for improvement. The therapy regimen has changed drastically over the years. Years ago, I was doing “food exchanges,” i.e., breads, meats, vegetables, milks, etc. There was no blood testing, only urine test-tapes. Now I am on the Tandem X2/Dexcom G6 closed loop system. This is light-years better. There are occasional bad sensors, or bad cannulas which cause bg reading to rise. My biggest problem is getting my blood sugar high for exercise. Gastroparesis also complicates blood sugar adjustments. Overall, I’m doing well, so I’ll go with a “4”.

1

2 years ago Log in to Reply
Natalie Daley

I’m not tethered to any machinery, yet my A1Cs are in the 6’s, and my average blood sugars are under 150. I eat two balanced meals, no snacks accept for a handful of nuts or a slice of cheese. I test four or more times a day and eat two high protein meals lots of fresh fruit and veggies, carefully chosen carbs, and good fats. My weight is stable and average for my height. Relying on technology to treat Type 1 can create its own problems while allowing the diabetic to ignore essential input. Tech doesn’t substitute for careful diet, exercise, and monitoring.

2 years ago Log in to Reply
George Lovelace

Started in 1964 with Urine Glucose Strips and NPH. Now on Dex G6 with Tandem CIQ and it is a living dream come true!

2

2 years ago Log in to Reply
Henry Renn

69 yr old. T1 for 65 years. I use Tandem t:slim x2 coupled with dexcom G6 Q-IQ. I use no other programs. t:slim is 4th pump in 17 years & not mastered as easily. May be feeling of inadequacy bc A1c has held steady at 6.5 & is best # I’ve had. With previous pumps I had A1c numbers in low 7s.

2

2 years ago Log in to Reply
Maureen Helinski

I don’t like the BG going up so fast after I eat even though I have bolused enough. I used to take Symlin and that worked better. Now I am on Tandem CIQ and Dexcom.

2 years ago Log in to Reply
Amanda Barras

I love TSlim and Dexcom but am disappointed I can use Fiasp as my insulin in it. It helped keep my bloodsugar spikes under 200 much more frequently than Novolog does. I need a faster insulin for meals that is safe for pump to get more ideal control.

2 years ago Log in to Reply
Ken Raiche

Admittedly with the advancements in the tech for managing diabetes with pumps, CGMs and the algorithms to control insulin deliveries etc. Things for me have definitely gotten alot better over the last 6 years having jump on-board with pumps and CGM. My A1C’s have always been great for the last 15 or so years but with the tech mentioned my seizures have been diminished to 0 over the last year or so. The addition of the Keto diet has helped even more so with extremely leveled out sugar levels. These levels tend to stay within the 4 to 7 mmol/L which means my A1C’s have gotten even better and boo more huge variations aka rollercoaster rides. These numbers are being achieved through basal rates only and the ever so slight bolusing from time to time. I haven’t jumped onto the Control IQ as of yet due to the fact that you can’t resort back to Basal IQ if I don’t like the way Control IQ works in conjunction with my new diet. So all and all the Keto diet in combination with the Tandem X2 and Dexcom G6 life with T1D has gotten alot better to the point of barely needing to manage my insulin delivery. I’m almost a normal human being without diabetes 😉🙂 I only wish but life is good.

2 years ago Log in to Reply
Janis Senungetuk

Using Tandem t:slim X2 with CIQ and Dexcom CGM 6 has made a world of positive difference from 66 years ago relying on beef/pork U40 Regular, the Exchange System rigid diet and urine testing. I still long for a complete closed loop pump system that includes glucagon.

2

2 years ago Log in to Reply
lis be

I was fairly happy with Medtronic and freestyle libre 1. I recently switched to Libre 2 because it has low/ high sugar alarms.. It doesnt connect to a technology that combines pump and blood sugar readings on one app (like tidepool does).. It is poorly calibrated, often reads 30 too high or 30 too low, sometime it says my sugar reading is 50 and going straight down, but when I finger stick it is 120! Libre “2” is a fairly bad product currently.

2 years ago Log in to Reply
Amy Nance

I’ll be at a 4 when my omnipod is talked to by my dexcom for instant adjustments, even during sleep…even better when they have an integrated pod with glucagon. Love the new tech and want it to keep progressing !

2 years ago Log in to Reply
Sally Numrich

5! Using Tandem Control IQ! And for the first time ever, I sleep through the night with no alarms! I wake up every morning with a great number. And you know how your day starts can make or break your day. If I miss on a meal, the pump can make some progress with, although sometimes not as aggressive as I would like but I am so happy! I don’t test anymore, thanks to the Dexcom G6! And while some might feel the need to double check it, (I was one of those people who had to double check before) but now so darn freeing to just let the system do it’s thing! I have ever been happier and I have never thought so little about my diabetes! After 50 years, my diabetes is on the back burner to front and center! Thanks to technology!

2

2 years ago Log in to Reply
1. ConnieT1D62
  
  Amen and well said, Sally! I am a happy 5 like you and for many of the same reasons you have stated in your comment. Use of Tandem Tslim CIQ has been of one the most profound diabetes life changers!
  
  2 years ago Log in to Reply
Carol Meares

When I can set my target on my pump at 100, I will give my current regimen a 5. My TiR is reasonably good, mostly in the 90s not counting the last 3 days :-/ and A1c good but I have to fight too much for it with CiQ to overcome the algorithm set at the higher number. I have good days and bad days but isn’t that just life? Since dx I have given it my best shot all around;) I am grateful for all the very bright young people creating this amazing technology that makes living with T1D, for me, much easier.

2

2 years ago Log in to Reply
Ernie Richmann

I am very satisfied (5). I use a Tandem pump with control IQ and the Dexcom G6 cgm. I also have an excellent endocrinologist. I have good results but there are times I am out of range. Besides the wonderful technology, my behaviors have much to do with my control. I exercise most days but my diet could be better.

2 years ago Log in to Reply
Christina Trudo

I am on the Control IQ tech like others. I am still working my way toward better numbers but nevertheless it is the most satisfied I’ve been with a regimen. Not to say it won’t get better still.

2 years ago Log in to Reply
LizB

I chose 4 although I considered choosing 3. I’m using a Minimed 670g but I am not in Auto Mode. Auto Mode caused my BG to climb very high and I don’t like the lowest target you can set is 120. The sensors do work well for me. WHile I have had a few duds in the past 2 1/2 years of using the 670 most of my sensors have been quite accurate. I hate the rigid calibration schedule most. Thinking of switching to Tandem in 18 months when my warranty is up.

2 years ago Log in to Reply
Nicholas Argento

I love Control IQ…

2 years ago Log in to Reply
Ahh Life

Five-five-five. I have been in this game 70 years, Started out with NPH, regular, and a set of test tubes to test urine. The equipment now is so much superior to that. Imagine flying a Wright brothers plane vs. an F-35. In the number-crunching and test-driving of ideas, modern technologies have left that old world far behind, especially in this strange sequencing of protein bends, this strange genetic drift that came my way . . . (👍 ͡❛ ⏏ ͡❛)👍 . . . With instant-replay, better bats, balls, gloves, drivers, putters, nets –you name it – the game is much better to play.

1

2 years ago Log in to Reply
Sasha Wooldridge

I’m on the Medtronic 670G and have started accepting the fact that it’s awful. My endo just suggested we check my insurance eligibility to get me on the tslim/dexcom bandwagon and based on the comments here, I’m pretty excited about it. The 670G is too needy and teaches me to ignore things because of the constant alarms, sometimes for no reason at all, sometime the same thing multiple times in a row, sometimes in the middle of the night for no reason, which means I’m increasingly sleep deprived. My answer was 3 because I’m barely managing it anymore, I’m just bolusing and hoping for the best. Not my idea of satisfaction.

2 years ago Log in to Reply
Cheryl Seibert

I selected “4”. Overall, I’m delighted with the capabilities and performance of the Dexcom G6 and my Tandem TSlim X2 pump. The TSlim with ControliQ does a reasonably good job at keeping me in range (if I don’t micromanage the pump too much! LOL!). The filling of the insulin cartridge is archaic though and takes way too much time to bleed out the air, etc. Medtronic and Tandem both have some issues designing algorithms to handle extremely rapid (4 points per minute) changes in BG. However, I do normally stay 85-90% in range with the majority of the excursion being high (due to the fact pumps are designed to bring highs down slow).

2 years ago Log in to Reply
Bonatay

At my last visit with my Endo in Jan she recommended changes to my pump settings. I didn’t want to so for the first couple of weeks I kept my settings. Then I changed to her recommendations. I guess those doctors really know something because the changes are working out much better. Less lows and less high rebounds. I’ll give my Endo 5 stars too. 🌟🌟🌟🌟🌟

1

2 years ago Log in to Reply
Leona Hanson

I’m a 5 I love my meditronic pump but haven’t used a cgm insurance won’t cover it but when I go from a high altitude to a low altitude or vise versa I don’t get air bubbles in my tubing that what I love

2 years ago Log in to Reply