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    • 1 hour, 59 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 3 hours, 52 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 3 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 5 hours, 33 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 34 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 35 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 5 hours, 36 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 36 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 45 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 46 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 47 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 5 hours, 48 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 48 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 54 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 5 hours, 58 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 13 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 37 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 7 hours, 30 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 17 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 19 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 8 hours, 44 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 9 hours, 26 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 9 hours, 57 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 58 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 10 hours, 19 minutes ago
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      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    If your blood sugar is dropping slowly, how low does your blood sugar typically need to go before you feel symptoms?

    Home > LC Polls > If your blood sugar is dropping slowly, how low does your blood sugar typically need to go before you feel symptoms?
    Previous

    On a scale of 1-5, how satisfied are you with your current T1D therapy regimen? (5 = the most satisfied, 1 = the least satisfied)

    Next

    Have you ever needed to pull over while driving because of a low or a high? Share how you handle your blood sugar while driving in the comments!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    18 Comments

    1. connie ker

      Often the people around you notice a low blood sugar drop before the diabetic does. Personality gets irritable for sure and sometimes combative when the diabetic is living with the diabetic police.

      3
      2 years ago Log in to Reply
    2. William Bennett

      One thing about this is that it’s VERY dependent on your overall control and average BG. People who are accustomed to running high tend to experience hypo symptoms at a commensurately higher point. People who’ve just been dx’d or are struggling to get A1C’s down into the 6’s after running 7’s or above for years can feel hypo at levels well above “normal.” 100s, 130s, even higher for some. Before CGM, when my A1Cs ranged in the upper 6s, my threshold for feeling hypo was about 80; I’d get the funny walk and the hunger monster coming on as I got into the 70s. Now I don’t sense anything until I’m in the 50s-60s, which can actually be kind of a problem. But yes, the speed of change is definitely a factor. A fast crash always feels different, almost irrespective of your BG reading at any given moment in the decline if it’s really sudden. That was much more common for me back in the R/NPH days. The Eat Now Or Die regimen–thank goodness most of us are not stuck with that stuff anymore.

      3
      2 years ago Log in to Reply
    3. Patricia Dalrymple

      It all depends for me. If I have been eating out a lot (live in FLA and have a lot of visitors), then I could feel low in 70s. If I’ve been good, then usually 62 or so. And, it depends on how fast I react to the feeling. Because I’ve never felt a negative affect from my lows, I tend to ignore them longer than I should.

      2 years ago Log in to Reply
    4. Mark Schweim

      Depends greatly on how rapidly I’m dropping… Last night I started feeling it every time despite having only gotten as low as 45, but if my BG isn’t dropping rapidly, I usually don’t start feeling any symptoms until my actual BG gets down into the 30s or lower.
      I have even continued working fully functionally at times when my BG dropped into the SINGLE-DIGIT range back when LifeScan and many other companies used to still make BG meters that were “CERTIFIED ACCURATE giving BG readings ranging all the way from 0 mg/dl up to 600 mg/dl.” But since around 2003 or so, it’s become literally IMPOSSIBLE to find a Blood Glucose Monitor that is certified as able to give accurate readings any lower than around 40 mg/dl up to a high of between 400 and 600 mg/dl.

      1
      2 years ago Log in to Reply
    5. Kimberly Starkey

      One caveat–I don’t feel lows coming on while I’m sleeping. The cgm with alarms is literally a life saver.

      1
      2 years ago Log in to Reply
    6. Sally Numrich

      Other. I lost the ability to feel lows many, many years ago. Thank goodness for my CGM!

      2
      2 years ago Log in to Reply
    7. ConnieT1D62

      I may, or may not, start to “feel” it when I am trending downwards at <62 and I am in a kind of null zone. My husband has deemed it "the twilight zone" he says because I suddenly get irritable with a dazed look on my face as I struggle to make sense of what I am doing or trying to say.

      2 years ago Log in to Reply
    8. Janis Senungetuk

      As others have stated, it all depends on how fast it drops and my activities at the time. If my attention is on an activity I can easily drop to the 40’s or 30’s before realizing I need to treat a low. I’m not aware if I’m exhibiting any low symptoms. My spouse is often the first to notice. Fortunately, the Dexcom CGM I wear all the time lets me know I need to check.

      1
      2 years ago Log in to Reply
    9. Lenora Ventura

      It is never consistently the same. Sometimes I feel it in the 60’s, other times, I have no idea when approaching the 40’s. I have had hypoglycemia unawareness for the 36 years of being T1D. Having Dexcom by my side since 2008 has changed my life

      2
      2 years ago Log in to Reply
    10. Becky Hertz

      I used to feel them in the 40’s. Now, thanks to my DAD and CGM, I rarely, if ever, get to that point. Slow drops suck.

      2
      2 years ago Log in to Reply
      1. Kristine Warmecke

        I just received my service dog on 4-21-2021, once she is fully grown she will be used mainly as my mobility dog, she is also my my D.A.D. I’m totally amazed at how she alerts me a good 5 min. before my G6 even.

        2 years ago Log in to Reply
    11. Carol Meares

      I put “other” because it depends mostly on the speed in which it is dropping, perhaps my activity level and my mindfulness. I have low unawareness but not always. Sometimes I will feel a low at 60 and sometimes not til 55 or 50. I rarely go lower than that but it can happen. The alarms on my pump become background noise sometimes, or I’ll be walking on the beach or along a road where there is surf or car noise to overcome. I am so thankful for my Dex. When I am mindful, I habitually check but there are times when I forget to look.

      2 years ago Log in to Reply
    12. Stephen Woodward

      70-65

      2 years ago Log in to Reply
    13. Ahh Life

      Wow! In spite of significant nerve problems in the legs and the digestive tract (PDN in the limbs, gastroparesis to the gut), I am among the 2% that feels it at 80 and higher. And with ACCUTE intensity. There must be a special one-of-a-kind nerve that goes straight to the brain signaling “Eat the table.” ( ͡❛ ⏏ ͡❛) . ( ͡❛ ⏏ ͡❛)

      2 years ago Log in to Reply
    14. Britni Steingard

      I said other because it varies a lot. I’ll sometimes start to feel the hunger and fatigue in the 80’s, but sometimes I don’t notice it until I’m in the 50’s.

      2 years ago Log in to Reply
    15. Kristine Warmecke

      It has it be below 40 for me feel it anytime, no matter slow or fast it is falling.

      2 years ago Log in to Reply
    16. Marcia Pulleyblank

      I often do not get clear signals. I am using Canadian counts, so it is generally about 2.7 mmol/l before I get definite symptoms. I also find that they symptoms do not go away until 30 minutes or so after I am back in range.

      2 years ago Log in to Reply
    17. Cheryl Seibert

      I answered “Other” but I should have chose “Below 40”. The key to this question is “dropping SLOWLY”. A slow drop does not cause symptoms for me until I’m in the low 40s, only the fast drops.

      1
      2 years ago Log in to Reply

    If your blood sugar is dropping slowly, how low does your blood sugar typically need to go before you feel symptoms? Cancel reply

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