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    • 7 minutes ago
      Derek West likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 2 hours, 42 minutes ago
      Bruce Schnitzler likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 3 hours, 14 minutes ago
      Karen Newe likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 3 hours, 32 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 3 hours, 32 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 3 hours, 33 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 5 hours ago
      Patricia Dalrymple likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Try Uni-Solve Adhesive Remover (smith&nephew)- wipe it on wait a minute to let it work and it will come off easy. at least it works great for me and I've tried several different brands, I use it for CGM & Omnipod removal
    • 12 hours ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 19 hours, 26 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 19 hours, 27 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 19 hours, 28 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 40 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 1 day, 2 hours ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 17 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
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    In which room(s) of your home do you keep your diabetes supplies? Select all that apply.

    Home > LC Polls > In which room(s) of your home do you keep your diabetes supplies? Select all that apply.
    Previous

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

    Next

    When your pump or CGM sites feel irritated or uncomfortable on your skin, do you change your site or wait for the session to be over?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Carol Meares

      I wait for CGM to expire because insurance won’t allow me to get additional CGMs. For infusion sites I use a Tru Steel for TSlim. The trusteel I can take out and prepare another location to insert the same one. I only go 2-3 days with it, so it works just fine. The worst part with either CGM or infusion site is whether it is a bleeder or I get it too close to a rib or other bone, or something like hitting a nerve. A bleeder, dexcom will replace. Most bleeders I have found to work after a couple days but have to calibrate a lot during that time from pump requests. I take baby aspirin daily. I get annoyed with the new Dexcom insertion that wakes me up with wild numbers that make no sense either high or low, and invalidated with finger pricks. But overall, Dexcom is the very best and I look forward to the G7 and easier access and smaller. I have had very few replacements in the overall scheme of things, I think. Perhaps 2-3/year. I don’t know. Is that high? A little less than 10%. Hmmm

      5 years ago Log in to Reply
    2. Carol Meares

      The comment above was supposed to go to a different question. Don’t know how that happened, sorry

      5 years ago Log in to Reply
    3. Pat Reynolds

      Don’t worry, Carol. Something at t1d exchange has broken – emails no longer link to the correct questions!

      5 years ago Log in to Reply
    4. Ahh Life

      Other. Closet next to secondary bathroom. Why or why are closets not listed? Also in there are towels, pillow cases, other medicines, old Christmas wrapping paper, USB rechargers, spare eye glasses, pill boxes, appliance instructions, cough drops and other absolutely delightful curiosity items. Some closet, that one. (>‿◠)✌

      5 years ago Log in to Reply
    5. Anthony Harder

      Other – I keep insulin I’m not currently using in the basement fridge.

      5 years ago Log in to Reply
    6. Britni Steingard

      Kitchen: insulin, sharps container, snacks Bedroom: mores snacks plus syringes, strips, lancets, spare meters, spare inject-eases, extra glucagon kits, glucose tablets, simpatches… all the spare stuff, basically Living room: test kit (logbook, calculator, and inject-ease plus syringes, lancets, and strips for the day) and CGM sensor (at least while I’m home and not I’m not out and about)

      5 years ago Log in to Reply
    7. Shannon Barnaby

      Other than insulin, I keep other supplies in a hall closet.

      5 years ago Log in to Reply
    8. Mick Martin

      I keep insulin and glucagon kits in the refrigerator in the kitchen. The rest of my supplies, such as sharps container, blood glucose test strips, Beta-ketone test strips, lancets, glucose tablets, insulin set changes, CGM supplies, log books, batteries, USB chargers, etc. are kept in my bedroom.

      5 years ago Log in to Reply
    9. connie ker

      I keep a stash of supplies in an upstairs bathroom, and bring them downstairs by packages as needed. I keep all cgm supplies in a downstairs closet, and all insulin is kept in the refrigerator, even the vials in use. This is kind of a personal question, you just do what works for you with your floorplan and living arrangements. If you want something to pray about today, think of the type 1 diabetics living in Texas this week without power, heat, water, food and security. The pictures are horrifying and I can’t help but think of the insulin dependent diabetics.

      5 years ago Log in to Reply
    10. MARIE PEELER

      First floor hall closet, near kitchen.

      5 years ago Log in to Reply
    11. Amanda Barras

      Bathroom and hall linen closet.

      5 years ago Log in to Reply
    12. mwmeganwolff@gmail.com

      I use a shelf in my closet for things I use often (meter, insulin pens in use currently, pen needles) and a drawer below with extra supplies and other items and extra pens in the kitchen fridge.

      5 years ago Log in to Reply
    13. Ceolmhor

      In addition to storing the bulk of my supplies and equipment in the master bathroom, I keep a two-month supply in a downstairs storage room in an emergency evacuation tub prepared for my car. I rotate the supplies through there so nothing goes out of date.

      5 years ago Log in to Reply
    14. Sherolyn Newell

      Insulin in refrigerator in kitchen. Omnipods, G6 sensors in bedroom closet. Alcohol wipes in a candy box on table by sofa, because I usually sit there to change stuff. Lancets and test strips in a decorative box in dining room, only reason is because that’s where the box is.

      5 years ago Log in to Reply
    15. Gene Maggard

      Although I only take one fingerstick test a day on average, I have glucose meters in the kitchen, bedroom, and “one for the road” (travel). My other supplies (pump and CGM) I keep in the bedroom closet. Keeping a set of everything in the basement in case of emergency (like a tornado, we live in the south) is a great idea and one that I’ll implement immediately.

      5 years ago Log in to Reply
    16. Megen Blackburn

      Between my insulin pump, CGM, and related belts, cases, adhesive tapes, and insulin coolers for travel, I keep my supplies in cloth storage cubes in my closet. There are way too many pieces of my diabetic supplies to keep them in my limited bathroom or kitchen cabinets.

      5 years ago Log in to Reply
    17. Carol Meares

      I answered other. It should have been bedroom and bathroom.

      5 years ago Log in to Reply
    18. Molly Jones

      I keep all insulin in the fridge besides the next full cartridge to use which is in a closed bag on the kitchen counter. All other diabetic supplies are in their specific shelf I have in a hall closet with other shelves for other supplies: medications, colostomy supplies, and bath room supplies.

      5 years ago Log in to Reply
    19. Ann Taylor

      My youngest sons’ bedroom (he’s 34 now) has become my “medical room”. I have a cute desk I keep wipes, test strips and other odds and ends. Plus lots of pictures of my grandkids. I remember when I first started using the Dexcom G5 I would watch videos of my grandson. Made it a lot easier. Then I keep my supplies of pods and sensors and used sharps, etc in the closet. That’s a good idea about keeping supplies in the basement. We have tornados here in the Midwest too. I keep my bag on the kitchen table that has my testing supplies in it

      5 years ago Log in to Reply
    20. ConnieT1D62

      Most diabetes supply stuff is kept in a hallway linen closet between the dining room and living room. Spare injectable hormone replacements not currently in use (Novolog, Victoza, Fiasp, Basaglar) are stored in the fridge. Glucagon supplies are kept in the linen closet, as well as an up-to-date grab & go diabetes stuff supply kit. The few oral meds I take everyday are kept on a countertop in the kitchen.

      5 years ago Log in to Reply
    21. Debbie Knowles

      I had an extra Tupperware divided vegetable/dip serving tray. It has 7 compartments. I keep it on my kitchen counter. Separate sections for needles, lancets, alcohol swabs, enzyme pills, blood tester, meter, test strips, etc. Extra insulin in fridge. Extra supplies in my living room, in a drawer and cabinet at one end of my entertainment center.

      5 years ago Log in to Reply
    22. Chris Deutsch

      Both of our cars

      5 years ago Log in to Reply
    23. Leona Hanson

      I live in an rv I keep my supplies in the cabinet over the couch in the living room insulin in the fridge and what is use in the day in my purse

      5 years ago Log in to Reply
    24. Sally Numrich

      I also use the linen cabinets outside my bedroom. Everything is I. There except for the whole shelve I. The refrigerator for all my supplies that need to be refrigerated. My emergency kit is always in this cabinet right outside my door. Easy to grab if I have to run out of the house.

      5 years ago Log in to Reply

    In which room(s) of your home do you keep your diabetes supplies? Select all that apply. Cancel reply

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