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    • 2 hours, 54 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 3 hours, 16 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 4 hours, 5 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 4 hours, 5 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 4 hours, 5 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 4 hours, 5 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 4 hours, 33 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 4 hours, 37 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 4 hours, 38 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 5 hours, 25 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 22 hours, 31 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 3 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 4 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 15 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 15 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 22 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 3 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 3 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 4 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 4 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 4 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
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    In the month of August, how much did you pay out-of-pocket for all your T1D-related medications and supplies?

    Home > LC Polls > In the month of August, how much did you pay out-of-pocket for all your T1D-related medications and supplies?
    Previous

    Recent advancements in insulin pens have led to the availability of “smart” insulin pens, pen caps, and other attachments with higher tech features compared to standard insulin pens. Do you currently use any of the following smart insulin pens/caps, or smart attachments?

    Next

    In the past 7 days, have you stayed up later than you planned to make sure your blood glucose levels were stable before going to sleep?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. LizB

      I get my pump supplies & Dexcom quarterly and my last shipments for those were in July. I have zero co-pay for insulin, so I didn’t spend anything in August.

      1
      3 years ago Log in to Reply
    2. Mick Martin

      I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes-related supplies are paid for via our NHS (National Health Service), which is financed via direct taxation of all working people.

      5
      3 years ago Log in to Reply
      1. Lawrence S.

        Cheers for the UK helping the health care of it’s citizens. !

        3
        3 years ago Log in to Reply
      2. Mick Martin

        @Lawrence S. Bless you, sir. I have mentioned on here in the past about ‘losing’ diabetic ‘friends’ in the United States who’ve ‘lost their lives’ due to not being able to afford insulin. This has been over the space of several years and it still brings tears to my eyes that a so-called civilised [civilized] society CHOOSES not to help those in need.

        1
        3 years ago Log in to Reply
    3. Denise Carter

      I already met my out of pocket maximum m for both medical and pharmacy.

      3 years ago Log in to Reply
    4. KIMBERELY SMITH

      My insurance paid for it

      1
      3 years ago Log in to Reply
    5. Jane Cerullo

      $70 for insulin
      $20 InPen ($240) year
      $9 pen needles
      $6 glucose tabs.

      3 years ago Log in to Reply
    6. Gary Rind

      have reached my out of pocket max due to a non-diabetes related surgery

      3 years ago Log in to Reply
    7. Lawrence S.

      I only paid for my Endocrinology visit this month. So, zero for medications and supplies for T1D.

      3 years ago Log in to Reply
    8. Mary Halverson

      This was the month, though, to order pen needles, meal-time insulin and to try Afrezza. Last month my cost was 0.

      3 years ago Log in to Reply
    9. Lindsey Whitnell

      We generally meet the max out of pocket $8,000 by August

      3 years ago Log in to Reply
    10. Bill Williams

      I pay $245 per month for a Medicare supplement and a Part D plan. As a result, my co-pays on everything I need are $0 whether they’re T1D-related or not.

      3 years ago Log in to Reply
    11. Edward Geary

      Ask me how much I paid in co-insurance and co-pays and the number climbs to over one thousand dollars, for kidney, eye and vascular complications including scans, retinal photography and ultrasounds. Those costs are growing exponentially.

      1
      3 years ago Log in to Reply
    12. Eve Rabbiner

      new lancing device and glucose tabs. Under $25.

      1
      3 years ago Log in to Reply
    13. James Cheairs

      My prescriptions are quarterly which is why I have no OOPs for August.

      1
      3 years ago Log in to Reply
    14. Becky Hertz

      I get 3 month supplies if all my D needs.

      3 years ago Log in to Reply

    In the month of August, how much did you pay out-of-pocket for all your T1D-related medications and supplies? Cancel reply

    You must be logged in to post a comment.




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