Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
This was a confusing question to define. You have your lipid panel along with, hemoglobin, and thyroid. Does this count as one or three? Should they be related to diabetes?
I don’t mean to mirror and skewer the grotesqueries of the expensive US health care system but . . . the legislators of at least one state (FL) mad it illegal for me to obtain these very same tests for $10, $20, and $30 when doing them one at a time individually.
Full CMP labs once a year ordered by endo.
BMP once year (usually 6 months after CMP) ordered by primary care or cardiologist. A1C finger stick four times a year during endo visits.
I answered 7 to 8 times, it could have been more, because my oncologist was watching my level’s very close. My endocrinologist just ordered the blood work she wanted done, to when we knew I’d be having a port draw, to prevent excessive sticks.
T1d for 70 years, 91 years old….. On imunotheorpy for Mesothealeoma Asbestos related lung cancer for 6 months now… Resulted in thyroid problem and taking a pill for it now.. No problems noticed wih the T1d control …. Infusion every 3 weeks with 2 drugs, now droping one and doing double other drug every 4 weeks.
Every 6 weeks with my endocrinologist and every 8 weeks with my rheumatologist. I requested they communicate with each other so they do not run the same tests and they are in the same building. That has never happened and I often get told the same thing from both doctors.
This was a confusing question to define. You have your lipid panel along with, hemoglobin, and thyroid. Does this count as one or three? Should they be related to diabetes?
Emergency surgery. Multiple hospitalizations immediately prior to said surgery. Nothing determined at those times.
I said 5 or 6. But, 4 times for my Endocrinology visits.
Answered 3-4 but confusing. A1c 4 times. Full blood panel once.
4 at $900 a pop.
I don’t mean to mirror and skewer the grotesqueries of the expensive US health care system but . . . the legislators of at least one state (FL) mad it illegal for me to obtain these very same tests for $10, $20, and $30 when doing them one at a time individually.
Four times at Endo office for routine labs. Also a few more times to check thyroid. Graves’ disease is now under control on very little medication.
normally 2 x yr. this yr hospitalized for stents overnight so that added to my usual.
Full CMP labs once a year ordered by endo.
BMP once year (usually 6 months after CMP) ordered by primary care or cardiologist. A1C finger stick four times a year during endo visits.
I’m an outlier at 5-6 times because of two medical procedures, usually 3x for Endo appts.
I’ve had 4 lab visits this year for a variety of tests for general health monitoring and pre-op.
4 times for T1 diabetes plus 9 times to monitor cancer treatment.
approx. every 90 days with a variety of labs done each time for endo appointments + once a year labs for annual GP appointment
I answered 7 to 8 times, it could have been more, because my oncologist was watching my level’s very close. My endocrinologist just ordered the blood work she wanted done, to when we knew I’d be having a port draw, to prevent excessive sticks.
Still a new Type 1 acquired from cancer immunotherapy. Also have Addison’s and Hashimoto’s from immunotherapy so I have had more than usual.
T1d for 70 years, 91 years old….. On imunotheorpy for Mesothealeoma Asbestos related lung cancer for 6 months now… Resulted in thyroid problem and taking a pill for it now.. No problems noticed wih the T1d control …. Infusion every 3 weeks with 2 drugs, now droping one and doing double other drug every 4 weeks.
Trick question or answer. I also have ckd do get monthly or bi- monthly blood work for that.
More than 9 times because am on cancer imunotheropy every 3 weeks.. for last 6 months.. Before that only once a year for 70 years..
Usually 4 times a year each before my next endocrinologist appointment. I had surgery in early April so I had to add on another 3 times.
Every 6 weeks with my endocrinologist and every 8 weeks with my rheumatologist. I requested they communicate with each other so they do not run the same tests and they are in the same building. That has never happened and I often get told the same thing from both doctors.
3-4 times per year for regular stuff. Every time I see endo or gp. I was recently hospitalized and they took blood 3-4 times every day.