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    • 19 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 7 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 50 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 17 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 13 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 36 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 33 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    In the last 12 months, how many times have you gotten blood work/lab work done?

    Home > LC Polls > In the last 12 months, how many times have you gotten blood work/lab work done?
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    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Molly Jones

      This was a confusing question to define. You have your lipid panel along with, hemoglobin, and thyroid. Does this count as one or three? Should they be related to diabetes?

      1
      3 years ago Log in to Reply
    2. Jeff Balbirnie

      Emergency surgery. Multiple hospitalizations immediately prior to said surgery. Nothing determined at those times.

      3 years ago Log in to Reply
    3. Lawrence S.

      I said 5 or 6. But, 4 times for my Endocrinology visits.

      3 years ago Log in to Reply
    4. Rob Smith

      Answered 3-4 but confusing. A1c 4 times. Full blood panel once.

      3 years ago Log in to Reply
    5. Ahh Life

      4 at $900 a pop.

      I don’t mean to mirror and skewer the grotesqueries of the expensive US health care system but . . . the legislators of at least one state (FL) mad it illegal for me to obtain these very same tests for $10, $20, and $30 when doing them one at a time individually.

      2
      3 years ago Log in to Reply
    6. Jane Cerullo

      Four times at Endo office for routine labs. Also a few more times to check thyroid. Graves’ disease is now under control on very little medication.

      1
      3 years ago Log in to Reply
    7. Jian

      normally 2 x yr. this yr hospitalized for stents overnight so that added to my usual.

      3 years ago Log in to Reply
    8. ConnieT1D62

      Full CMP labs once a year ordered by endo.
      BMP once year (usually 6 months after CMP) ordered by primary care or cardiologist. A1C finger stick four times a year during endo visits.

      3 years ago Log in to Reply
    9. TomH

      I’m an outlier at 5-6 times because of two medical procedures, usually 3x for Endo appts.

      1
      3 years ago Log in to Reply
    10. Marty

      I’ve had 4 lab visits this year for a variety of tests for general health monitoring and pre-op.

      3 years ago Log in to Reply
    11. Bruce Schnitzler

      4 times for T1 diabetes plus 9 times to monitor cancer treatment.

      1
      3 years ago Log in to Reply
    12. Janis Senungetuk

      approx. every 90 days with a variety of labs done each time for endo appointments + once a year labs for annual GP appointment

      3 years ago Log in to Reply
    13. Kristine Warmecke

      I answered 7 to 8 times, it could have been more, because my oncologist was watching my level’s very close. My endocrinologist just ordered the blood work she wanted done, to when we knew I’d be having a port draw, to prevent excessive sticks.

      3 years ago Log in to Reply
    14. Tgabecker

      Still a new Type 1 acquired from cancer immunotherapy. Also have Addison’s and Hashimoto’s from immunotherapy so I have had more than usual.

      1
      3 years ago Log in to Reply
      1. sweetcharlie

        T1d for 70 years, 91 years old….. On imunotheorpy for Mesothealeoma Asbestos related lung cancer for 6 months now… Resulted in thyroid problem and taking a pill for it now.. No problems noticed wih the T1d control …. Infusion every 3 weeks with 2 drugs, now droping one and doing double other drug every 4 weeks.

        3 years ago Log in to Reply
    15. Becky Hertz

      Trick question or answer. I also have ckd do get monthly or bi- monthly blood work for that.

      3 years ago Log in to Reply
    16. sweetcharlie

      More than 9 times because am on cancer imunotheropy every 3 weeks.. for last 6 months.. Before that only once a year for 70 years..

      3 years ago Log in to Reply
    17. Bonnie Lundblom

      Usually 4 times a year each before my next endocrinologist appointment. I had surgery in early April so I had to add on another 3 times.

      3 years ago Log in to Reply
    18. Jen Farley

      Every 6 weeks with my endocrinologist and every 8 weeks with my rheumatologist. I requested they communicate with each other so they do not run the same tests and they are in the same building. That has never happened and I often get told the same thing from both doctors.

      3 years ago Log in to Reply
    19. C B

      3-4 times per year for regular stuff. Every time I see endo or gp. I was recently hospitalized and they took blood 3-4 times every day.

      2 years ago Log in to Reply

    In the last 12 months, how many times have you gotten blood work/lab work done? Cancel reply

    You must be logged in to post a comment.




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