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    • 13 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 13 hours, 24 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 13 hours, 24 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 11 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 19 hours, 11 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 11 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 22 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 20 hours, 30 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 50 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 20 hours, 53 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 21 hours, 5 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 18 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 19 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 19 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 20 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 20 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
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    In the last 12 months, how many times have you gotten blood work/lab work done?

    Home > LC Polls > In the last 12 months, how many times have you gotten blood work/lab work done?
    Previous

    If you use an insulin pump, do you prefer that your pump be rechargeable or use batteries?

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    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Molly Jones

      This was a confusing question to define. You have your lipid panel along with, hemoglobin, and thyroid. Does this count as one or three? Should they be related to diabetes?

      1
      3 years ago Log in to Reply
    2. Jeff Balbirnie

      Emergency surgery. Multiple hospitalizations immediately prior to said surgery. Nothing determined at those times.

      3 years ago Log in to Reply
    3. Lawrence S.

      I said 5 or 6. But, 4 times for my Endocrinology visits.

      3 years ago Log in to Reply
    4. Rob Smith

      Answered 3-4 but confusing. A1c 4 times. Full blood panel once.

      3 years ago Log in to Reply
    5. Ahh Life

      4 at $900 a pop.

      I don’t mean to mirror and skewer the grotesqueries of the expensive US health care system but . . . the legislators of at least one state (FL) mad it illegal for me to obtain these very same tests for $10, $20, and $30 when doing them one at a time individually.

      2
      3 years ago Log in to Reply
    6. Jane Cerullo

      Four times at Endo office for routine labs. Also a few more times to check thyroid. Graves’ disease is now under control on very little medication.

      1
      3 years ago Log in to Reply
    7. Jian

      normally 2 x yr. this yr hospitalized for stents overnight so that added to my usual.

      3 years ago Log in to Reply
    8. ConnieT1D62

      Full CMP labs once a year ordered by endo.
      BMP once year (usually 6 months after CMP) ordered by primary care or cardiologist. A1C finger stick four times a year during endo visits.

      3 years ago Log in to Reply
    9. TomH

      I’m an outlier at 5-6 times because of two medical procedures, usually 3x for Endo appts.

      1
      3 years ago Log in to Reply
    10. Marty

      I’ve had 4 lab visits this year for a variety of tests for general health monitoring and pre-op.

      3 years ago Log in to Reply
    11. Bruce Schnitzler

      4 times for T1 diabetes plus 9 times to monitor cancer treatment.

      1
      3 years ago Log in to Reply
    12. Janis Senungetuk

      approx. every 90 days with a variety of labs done each time for endo appointments + once a year labs for annual GP appointment

      3 years ago Log in to Reply
    13. Kristine Warmecke

      I answered 7 to 8 times, it could have been more, because my oncologist was watching my level’s very close. My endocrinologist just ordered the blood work she wanted done, to when we knew I’d be having a port draw, to prevent excessive sticks.

      3 years ago Log in to Reply
    14. Tgabecker

      Still a new Type 1 acquired from cancer immunotherapy. Also have Addison’s and Hashimoto’s from immunotherapy so I have had more than usual.

      1
      3 years ago Log in to Reply
      1. sweetcharlie

        T1d for 70 years, 91 years old….. On imunotheorpy for Mesothealeoma Asbestos related lung cancer for 6 months now… Resulted in thyroid problem and taking a pill for it now.. No problems noticed wih the T1d control …. Infusion every 3 weeks with 2 drugs, now droping one and doing double other drug every 4 weeks.

        3 years ago Log in to Reply
    15. Becky Hertz

      Trick question or answer. I also have ckd do get monthly or bi- monthly blood work for that.

      3 years ago Log in to Reply
    16. sweetcharlie

      More than 9 times because am on cancer imunotheropy every 3 weeks.. for last 6 months.. Before that only once a year for 70 years..

      3 years ago Log in to Reply
    17. Bonnie Lundblom

      Usually 4 times a year each before my next endocrinologist appointment. I had surgery in early April so I had to add on another 3 times.

      3 years ago Log in to Reply
    18. Jen Farley

      Every 6 weeks with my endocrinologist and every 8 weeks with my rheumatologist. I requested they communicate with each other so they do not run the same tests and they are in the same building. That has never happened and I often get told the same thing from both doctors.

      3 years ago Log in to Reply
    19. C B

      3-4 times per year for regular stuff. Every time I see endo or gp. I was recently hospitalized and they took blood 3-4 times every day.

      3 years ago Log in to Reply

    In the last 12 months, how many times have you gotten blood work/lab work done? Cancel reply

    You must be logged in to post a comment.




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