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    • 1 hour, 51 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 29 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 29 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 12 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 3 hours, 34 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 3 hours, 58 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 3 hours, 58 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 59 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 14 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 5 hours, 14 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 5 hours, 15 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 15 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 20 hours, 16 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 20 hours, 16 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 2 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 3 hours ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 3 hours ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 23 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 23 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 23 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
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    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Home > LC Polls > In 2023, how many appointments did you have with your main T1D healthcare provider?
    Previous

    Have you (or your loved one with T1D) been diagnosed with neuropathy?

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    Do you have any appointments currently scheduled with your main T1D healthcare provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    19 Comments

    1. William Rone

      4 appointments.

      2 years ago Log in to Reply
    2. Ahh Life

      3. But I have to sell my soul and lie to medicare that the number is really 4. Before the age of 65 I never had to lie about anything. What’s wrong with this picture ¯\_(ツ)_/¯?

      4
      2 years ago Log in to Reply
      1. TEH

        We’re with the government and we’re here to help?

        2 years ago Log in to Reply
      2. Marty

        I’d probably lie, too, if I could get away with it since 3 of my 4 annual visits are a waste of time. Unfortunately, my supplies providers require my doctor to send them chart notes from the visits and I don’t think my doctor would go along with the deception. This is such a common complaint that I don’t know why the powers that be in setting Medicare requirements continue to ignore it. Could there be a history of massive fraud in funding of unnecessary diabetes supplies?

        2 years ago Log in to Reply
    3. GLORIA MILLER

      I do twice a year which is one more than I need to go, in my opinion. The staff said I had to go four times a year for Medicare to cover it but they have learned that is not accurate since my prescriptions are filled with once every six months visit.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Just had 2

      2 years ago Log in to Reply
    5. Brenda Lipscomb

      I was unemployed for seven months, so was able to only see my PCP once. 🙁

      1
      2 years ago Log in to Reply
    6. Meerkat

      Two with my endo and two with his PA.

      2 years ago Log in to Reply
    7. Carol Meares

      3 in person 1 tele

      2 years ago Log in to Reply
    8. Donald Cragun

      This is a strange question. I would have expected, the possible answers to be 0, 1, 2, 3, 4, or more than 4; but instead of “more than 4”, we get “more than 5”.

      2 years ago Log in to Reply
    9. Gustavo Avitabile

      I answered other because my healthcare team is very supportive and I have frequent contacts. We have group visits, where 6-10 patients exchange their experience with a doctor supervision. We have walks where healthcare members walk with a group of patients, helping with management, especially prevention and care of hypoglycemia. We have meetings dedicated to AID systems and experiences. I am grateful for such an extended care.

      5
      2 years ago Log in to Reply
      1. Jneticdiabetic

        Hi Gustavo – I love this! Sounds like a great way to build a community around T1D care. ❤️

        2
        2 years ago Log in to Reply
    10. Bruce Johnson

      2023 was a year that health professionals moved to different places across Canada due to very poor federal input and management by the federal government. the Liberals wouldn’t know how to give you a bandaid
      Healthcare is not something they care about. I had to change my diabetes healthcare provider tree times because of
      poor management. The majority of good diabetes Healthcare professionals left Albert and Canada in disgust
      The best diabetes knowledge professional are the Practical Nurses who had to replace the doctors who no longer saw Canada as an asset for diabetics except in Ontario (Treadeau land)

      2 years ago Log in to Reply
    11. Becky Hertz

      I said 3 but it could’ve been 2.

      2 years ago Log in to Reply
    12. John McHenery

      Video training to go on closed loop system so probably 7 in all

      2 years ago Log in to Reply
    13. George Lovelace

      3, 2 by TeleVisit, 1 in Person to get A1c, 60 yrs T1 and A1c in Low 6’s and a First time 5.4 with 0 Hypos for 4+ years until my Wife died in Oct. Now I’m starting a New Life.

      2 years ago Log in to Reply
    14. Jen Farley

      I was seeing him every 6 weeks, but I think, my endocrinologist and I, have moved on to every 8 weeks. Maybe I will have less medical debt.

      2 years ago Log in to Reply
      1. KarenM6

        Hi Jen Farley!
        Less medical debt is something I also wish for!

        Just wanted to let you know I gave a long reply to the pros and cons of the Eversense. I don’t keep up with this site every day and I wanted to make sure you knew that I had responded… but I couldn’t respond to your reply.

        Anyway! I’m happy to answer any questions if you have them… just respond to my original post!
        Thank you. KarenM6

        2 years ago Log in to Reply
    15. ConnieT1D62

      Had 6 visits with her n 2023 because I was having insulin absorption issues … she took me off the pump for 3 -4 months to allow infusion site scar tissue to heal. She saw me every month during the off pump problem solving phase June, July, August, September. A1C went from 8.1 in June (a rare elevation – it hadn’t been that high in over 20 years) to 6.7 in December.

      2 years ago Log in to Reply

    In 2023, how many appointments did you have with your main T1D healthcare provider? Cancel reply

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