Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 7 hours, 54 minutes ago
      ChrisW likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      Still twice a year. It carries much less weight than time in range and the GMI.
    • 19 hours, 2 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 19 hours, 43 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 18 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 18 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 19 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 14 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 19 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 20 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 20 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 15 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 18 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 19 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 20 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 20 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 4 days, 7 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 4 days, 7 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 15 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 19 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Home > LC Polls > In 2023, how many appointments did you have with your main T1D healthcare provider?
    Previous

    Have you (or your loved one with T1D) been diagnosed with neuropathy?

    Next

    Do you have any appointments currently scheduled with your main T1D healthcare provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    News

    Out of Insulin? Expert Tips from Diana Isaacs, PharmD 

    Jewels Doskicz, 5 days ago 9 min read  
    News

    Drew Mendelow: Teen Creator of T1D1, a Free Insulin Calculator App for T1D Management 

    Michael Howerton, 2 weeks ago 6 min read  
    Lifestyle

    Protein, Glucose, and T1D: Expert Insights from Jennifer Okemah, MS, RDN 

    Jewels Doskicz, 2 weeks ago 8 min read  
    Lifestyle

    The Story of Dr. Guy Hornsby: From Teen Athlete to T1D Trailblazer 

    Michael Howerton, 3 weeks ago 8 min read  
    Research

    Type 2 Diabetes in Youth: A Rising Concern 

    Jewels Doskicz, 4 weeks ago 5 min read  
    Research

    Top T1D Exchange Research Highlights of 2025 

    Sarah Howard, 2 months ago 6 min read  

    19 Comments

    1. William Rone

      4 appointments.

      2 years ago Log in to Reply
    2. Ahh Life

      3. But I have to sell my soul and lie to medicare that the number is really 4. Before the age of 65 I never had to lie about anything. What’s wrong with this picture ¯\_(ツ)_/¯?

      4
      2 years ago Log in to Reply
      1. TEH

        We’re with the government and we’re here to help?

        2 years ago Log in to Reply
      2. Marty

        I’d probably lie, too, if I could get away with it since 3 of my 4 annual visits are a waste of time. Unfortunately, my supplies providers require my doctor to send them chart notes from the visits and I don’t think my doctor would go along with the deception. This is such a common complaint that I don’t know why the powers that be in setting Medicare requirements continue to ignore it. Could there be a history of massive fraud in funding of unnecessary diabetes supplies?

        2 years ago Log in to Reply
    3. GLORIA MILLER

      I do twice a year which is one more than I need to go, in my opinion. The staff said I had to go four times a year for Medicare to cover it but they have learned that is not accurate since my prescriptions are filled with once every six months visit.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Just had 2

      2 years ago Log in to Reply
    5. Brenda Lipscomb

      I was unemployed for seven months, so was able to only see my PCP once. 🙁

      1
      2 years ago Log in to Reply
    6. Meerkat

      Two with my endo and two with his PA.

      2 years ago Log in to Reply
    7. Carol Meares

      3 in person 1 tele

      2 years ago Log in to Reply
    8. Donald Cragun

      This is a strange question. I would have expected, the possible answers to be 0, 1, 2, 3, 4, or more than 4; but instead of “more than 4”, we get “more than 5”.

      2 years ago Log in to Reply
    9. Gustavo Avitabile

      I answered other because my healthcare team is very supportive and I have frequent contacts. We have group visits, where 6-10 patients exchange their experience with a doctor supervision. We have walks where healthcare members walk with a group of patients, helping with management, especially prevention and care of hypoglycemia. We have meetings dedicated to AID systems and experiences. I am grateful for such an extended care.

      5
      2 years ago Log in to Reply
      1. Jneticdiabetic

        Hi Gustavo – I love this! Sounds like a great way to build a community around T1D care. ❤️

        2
        2 years ago Log in to Reply
    10. Bruce Johnson

      2023 was a year that health professionals moved to different places across Canada due to very poor federal input and management by the federal government. the Liberals wouldn’t know how to give you a bandaid
      Healthcare is not something they care about. I had to change my diabetes healthcare provider tree times because of
      poor management. The majority of good diabetes Healthcare professionals left Albert and Canada in disgust
      The best diabetes knowledge professional are the Practical Nurses who had to replace the doctors who no longer saw Canada as an asset for diabetics except in Ontario (Treadeau land)

      2 years ago Log in to Reply
    11. Becky Hertz

      I said 3 but it could’ve been 2.

      2 years ago Log in to Reply
    12. John McHenery

      Video training to go on closed loop system so probably 7 in all

      2 years ago Log in to Reply
    13. George Lovelace

      3, 2 by TeleVisit, 1 in Person to get A1c, 60 yrs T1 and A1c in Low 6’s and a First time 5.4 with 0 Hypos for 4+ years until my Wife died in Oct. Now I’m starting a New Life.

      2 years ago Log in to Reply
    14. Jen Farley

      I was seeing him every 6 weeks, but I think, my endocrinologist and I, have moved on to every 8 weeks. Maybe I will have less medical debt.

      2 years ago Log in to Reply
      1. KarenM6

        Hi Jen Farley!
        Less medical debt is something I also wish for!

        Just wanted to let you know I gave a long reply to the pros and cons of the Eversense. I don’t keep up with this site every day and I wanted to make sure you knew that I had responded… but I couldn’t respond to your reply.

        Anyway! I’m happy to answer any questions if you have them… just respond to my original post!
        Thank you. KarenM6

        2 years ago Log in to Reply
    15. ConnieT1D62

      Had 6 visits with her n 2023 because I was having insulin absorption issues … she took me off the pump for 3 -4 months to allow infusion site scar tissue to heal. She saw me every month during the off pump problem solving phase June, July, August, September. A1C went from 8.1 in June (a rare elevation – it hadn’t been that high in over 20 years) to 6.7 in December.

      2 years ago Log in to Reply

    In 2023, how many appointments did you have with your main T1D healthcare provider? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]