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    • 19 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 19 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 20 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 21 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 21 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 22 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 23 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 23 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 3 hours, 2 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 3 hours, 3 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 3 hours, 46 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 4 hours, 8 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 4 hours, 31 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 32 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 32 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 47 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 5 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 5 hours, 49 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 49 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 20 hours, 49 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 20 hours, 50 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 2 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 3 hours ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
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    Do you have any appointments currently scheduled with your main T1D healthcare provider?

    Home > LC Polls > Do you have any appointments currently scheduled with your main T1D healthcare provider?
    Previous

    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Next

    Over the past 12 months, how many telehealth appointments have you had with your main diabetes care provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Rob Smith

      Yes I have an appointment but no I will not be going. My endo was convicted of a felony so is no longer certified. The search begins…

      2 years ago Log in to Reply
      1. Lyn McQuaid

        Yikes!

        1
        2 years ago Log in to Reply
      2. Kristi Warmecke

        Oh my!

        2 years ago Log in to Reply
      3. Chrisanda

        And it’s not like the supply of endo’s is overwhelming! Good luck!!

        2 years ago Log in to Reply
    2. Jane Cerullo

      Go every three months. Make appointment at finish of my appointment.

      3
      2 years ago Log in to Reply
    3. Lawrence S.

      Yes. Every 3 months, as required by Medicare.

      2 years ago Log in to Reply
    4. William Bennett

      Every 3 months to the day or medicare won’t cover my supplies. So yeah.

      1
      2 years ago Log in to Reply
    5. Marthaeg

      My endo books up 6 months in advance. I go every 3 months so I always have 2 booked in advance.

      1
      2 years ago Log in to Reply
    6. Kristi Warmecke

      Yes I’m scheduled for the until the end of 2024, I believe. I get the day and time I want this way AND make sure I can see her, as her schedule fills very fast.

      1
      2 years ago Log in to Reply
    7. Mick Martin

      Yes, my first appointment is this coming Thursday (11th January 2024) … All being well, I will be attending, assuming, of course, that my health allows it. (My wife believes that I suffered a stroke (CVA (Cerebrovascular Accident) or a TIA (Transient Ischaemic [Ischemic] Attack) on Friday morning as she heard me fall to the floor, but she states that I had a ‘vacant expression’ on my face and I’d pee’d myself. Unfortunately, by the time I’d recovered sufficiently it was a bit too late to summon an ambulance, but she did give me soluble Aspirin, which is the ‘normal’ first action taken when taken to hospital …. over here, in the UK, at least.

      2 years ago Log in to Reply
    8. Thomas Cline

      Yes because either my insurance or DEXCOM requires a visit every six months, which seems ridiculous to me. It is not as if my insulin dependence is going to suddenly disappear and I’ll no longer require a CGM! So many of these regulations seem designed to keep money flowing to the medical and pharmaceutical establishment with only marginal real health considerations being involved. At least I am fortunate enough to have insurance coverage.

      2 years ago Log in to Reply
    9. Janis Senungetuk

      Yes, I have two appointments plus labs scheduled at the urging of my HMO. Endo appointments are very difficult to schedule as needed, so I heeded their warnings. The Medicare requirement for a 90 day appointment definitely needs to be revisited.

      2 years ago Log in to Reply
    10. David Hedeen

      I alway hav next 90 visit scheduled before leaving current visit. If 90 day window is missed, Medicare refuses to pay for Required medical supplies : > (

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I have one scheduled with a staff in their office.

      2 years ago Log in to Reply
    12. KIMBERELY SMITH

      Next month

      2 years ago Log in to Reply
    13. George Lovelace

      My Endo Follows my Dex so can make change suggestions as needed. A1c in low 6’s. first of 2013 I hit 5.4 but I’ve had a lot of stress, wife died in Oct. I plan to have 2 Televisits and 1 for A1c

      2 years ago Log in to Reply
    14. Becky Hertz

      So difficult to get in, I’m scheduled 2 ahead.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      My sole point of contact w/ that doctor left the practice!!! I saw nobody there but her. Zero warning, zero notification of any kind from the practice, am still waiting for it in fact! Until they do so, I have zero interest or desire. They are never, ever to be trusted…

      2 years ago Log in to Reply
    16. T1D4LongTime

      I always have a scheduled appointment with my endo. I go regularly every 4 months. If I’m losing good control of my BGs or have other complications, I go more frequently.

      2 years ago Log in to Reply
    17. ConnieT1D62

      I am scheduled for 4 visits a year at a time – q 3 months. In 2023 I had two extra visits to problem solve insulin absorption issues.

      2 years ago Log in to Reply
    18. PamK

      At the end of each appointment they schedule me for my next appointment. I think this is the norm.

      2 years ago Log in to Reply

    Do you have any appointments currently scheduled with your main T1D healthcare provider? Cancel reply

    You must be logged in to post a comment.




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