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    • 11 hours, 59 minutes ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 12 hours, 56 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 13 hours, 4 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 14 hours, 3 minutes ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 14 hours, 7 minutes ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 15 hours, 9 minutes ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 15 hours, 10 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I’m curious about the reasoning behind using a dedicated reader. Could someone please enlighten me?
    • 15 hours, 10 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 15 hours, 11 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      For Minimed, the dedicated reader is the pump.
    • 15 hours, 11 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I chose "dedicated reader". That reader is my pump, a Minimed 780G.
    • 15 hours, 12 minutes ago
      Marthaeg likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 day, 9 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 9 hours ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      Extremely. I have a certificate in Medical Billing & Coding.
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 1 day, 14 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Roughly half my lows are caused by my auto correct system now. I expect AI hallucinations to make it worse. I have enough hallucinations when I'm low and need non-hallucinatory help. We all need more info on this subject to make better decisions. As my favorite 80's AI robot (Johnny 5) said, "Need input."
    • 1 day, 14 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I'm not comfortable for many reasons: 1) AI hasn't proven respects boundaries, quite the opposite, too many reports of AI tend to view its responsibilities and decisions as NOT mine; 2) the companies behind AI systems do likewise in not respecting my data as mine and jumble it in with their own; 3) AI systems haven't proven themselves as reliable parties regarding data and actions. There are many more; AI systems have a long way to go before I entrust one with dosing strategies while I'm awake, let alone while I'm asleep!
    • 1 day, 14 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’ve done a large 2 week focus group through Syracuse University on AI. I’ve also been watching shows on European news about AI and medical issues. AI still has too many glitches when it comes to medical issues.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Having recently dealt with ongoing tech issues involving our heat and electrical-use notifications for more than six months — and it’s still not fully resolved — I’m not always a fan of too much technology. That said, I am interested in advances like the Twist Insulin Pump potentially detecting scar tissue or helping with infusion-site issues. But then reality kicks in: taking devices off for MRIs, replacing failed equipment, and navigating Medicare when it’s primary insurance can become a nightmare of paperwork and delays. And honestly, AI in some call centers has been pretty frustrating. Sometimes it feels like no one can answer a real-world question anymore. I think we should tread lightly and make sure technology actually makes life easier for people living with T1D — especially older adults who already manage enough complexity every day. Some days I think about a less stress free life and going back to a syringe and insulin. over 45 years of doing that, and now 25+ of devices, I'm tired of the challenges in getting replacements, and scar tissue, and mail order supplies and on and on.
    • 2 days, 10 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all technical advancements there are good things and bad things. The bad things (unforseen consequences) could be deadly like Hallucinations for the user, getting over doses of insulin. So, carefully thought out guard rails need to be developed and thoroughly tested. A good thing must be the accumulation of scenarios that KSannie mentioned. However it can not be completely autonomous. The current accuracy of Dex G7 and other sensors introduce error in to the calculations. This is similar to "self driving cars." The Robo taxi experiments have shown the unusual events that could become dangerous. Either audible situation commands or textual inputs like "goin to bed" or "driving" or "exercising" may be required at the beginning for a new user. As an example, after wearing my smart watch for a year now, it recognizes exercising without me having to tell it I'm exercising. This drives a more advanced and improved user interface. The other perceivable advantage might be accumulating changes over time, such as sicknesses, weight gain or loss, or changes in activity. Changes in food intake might be difficult to overcome. Something like "Under my Fork" app. Personally, I would like to see a reminder to bolis before eating! With all that said, we do we need all that? Probably not. Evolution of modified closed loop control may eliminate the need for AI control. The reality may be somewhere in-between the two.
    • 2 days, 10 hours ago
      kristina blake likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
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    Have you (or your loved one with T1D) been diagnosed with neuropathy?

    Home > LC Polls > Have you (or your loved one with T1D) been diagnosed with neuropathy?
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    After you exercise for 30 minutes or more, do you notice any of the following with your blood glucose levels after? (Select all that apply)

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    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. Molly Jones

      My neurologist and endocrinologist work together with relevant information after visits. My neuro has not seen any signs of neuropathy. Hopefully it stays that way!

      4
      2 years ago Log in to Reply
    2. sdimond

      Neuropathy from taking statins, not from diabetes!

      2 years ago Log in to Reply
    3. TEH

      I have lost the sense of touch on the tips of the index and middle finger on both hands to neuropathy. It feels like I have super glue on them.

      1
      2 years ago Log in to Reply
    4. Don P

      common side effect after 70 yrs of T1

      1
      2 years ago Log in to Reply
    5. Ahh Life

      Diagnosis is the easy part. It’s what you do afterwards to manage that’s extremely challenging.

      There are several types, almost all caused by frequent and long term glycosylation.

      1
      2 years ago Log in to Reply
    6. T1D4LongTime

      I had what felt like neuropathy as a pre-teen (11-12 yrs old) after 5-6 years with T1D. Never diagnosed with it. Excruciating burning/pins and needles on bottoms of my feet. I was a very active child. By age 14, if I recall, the pain had disappeared and never came back.

      1
      2 years ago Log in to Reply
    7. Marty

      I thought I had diabetes-related neuropathy when i was in my 40’s (pins and needles sensation in my feet) but it turned out to be a vitamin B deficiency that was easily remedied with a supplement. Now, I just have a mild loss of sensitivity to vibration in my feet, like most people who have lived with diabetes as long as i have.

      1
      2 years ago Log in to Reply
      1. lis be

        I also was told I have a vitamin B (12) deficiency. Have been doing some research and it seems like several type 1’s mention this. I have a second autoimmune that is atrophic gastritis (sounds worse then it is!) It means my stomach doesn’t make acid anymore and B12 is no longer absorbed there through food or supplements. (aB12 shot or sublingual B12 fix it though). I wonder if many type 1s get atrophic gastritis and that explains the B12 deficiencies.. ( I’m probably just putting random things together).
        That said, they still have me down as having “mild” neuropathy

        1
        2 years ago Log in to Reply
    8. Melinda Lipe

      Not sure if I have a diagnosis, but have some lower extremity numbness that comes and goes.

      2 years ago Log in to Reply
    9. George Lovelace

      T1 60 years and Neuopathy has changed in severity and effect over time. Current loss of somr feeling and balance but 25+ years ago went through the “pins and needles” in legs and feet and hands.

      2 years ago Log in to Reply
    10. Pauline M Reynolds

      I have what I call mild neuropathy. Instead of pain I get the “itch from hell” for about ten minutes at a time in my feet. I can’t drive then and have to pull over because I want to jam my foot into the pedal! Mild scratching fights it until it is gone. Every time, I think “at least it’s not pain, at least it’s not pain”.

      1
      2 years ago Log in to Reply
    11. Kristi Warmecke

      I unfortunately have been. I take ALA to help with it but when I was diagnosed with Stage 3 breast cancer, one of the drugs in my chemo regimen also had neuropathy as a side effect. After it was stopped I did regain the sensation back from my shoulders to wrist and hips to ankles.

      2 years ago Log in to Reply
    12. Mick Martin

      Diagnosed with peripheral neuropathy about 30-35 years ago, and with autonomic neuropathy about 20 years ago.

      2 years ago Log in to Reply
    13. Steven Gill

      A younger brother diagnosed TYPE1 just months before me has numbness in his feet (and numbers from his kidneys are “off”), a cousin experiences neuropathy in feet, gastroparesis, and taking eye drops (former substance abuser 15 years T2d), my non-diabetic mother had neuropathy in feet and hands as well as cataracts (weight and heavy smoking?)

      Nerve damage can be caused by other things as well as diabetes, combine these?

      2 years ago Log in to Reply
    14. ConnieT1D62

      Yes. Peripheral neuropathy in my fingers and hands, toes and feet; and cardiac autonomic neuropathy. The peripheral neuropathy gradually manifested after 40 years of life with T1D. Cardiac autonomic neuropathy manifested in 2018 and required a pace maker. Have lived a full life with T1D in my body since November/December 1962. Will celebrate 70 year birthday in March … still alive, thriving, and kicking ass with T1D and it’s neuropathic consequences!

      1
      2 years ago Log in to Reply
    15. Anita Stokar

      I haven’t but I also had a type1 cousin who definitely had neuropathy in her feet.

      2 years ago Log in to Reply

    Have you (or your loved one with T1D) been diagnosed with neuropathy? Cancel reply

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