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    • 14 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 15 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 17 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 18 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 19 minutes ago
      Mike S likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 42 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Sure, if you can call it a plan to flush with liquids and take electrolytes and insulin as needed.
    • 42 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Inject. Inject. Inject. All other considerations are secondary, tertiary, or way down the list. Why would anyone ever rearrange the deck chairs on the Titanic? Might as well strike up the band to play Nearer My God to Thee!. ☹
    • 43 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 44 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      It would depend on the symptoms and vary.
    • 45 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 45 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 45 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      2 It already is. But needs to be checked occasionally. I don't want a person inside me every five minutes.
    • 49 minutes ago
      KCR likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 54 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 2 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 1 hour, 12 minutes ago
      KSannie likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 1 hour, 13 minutes ago
      Gerald Oefelein likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 13 minutes ago
      Gerald Oefelein likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 1 hour, 22 minutes ago
      Judith Halterman likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 23 minutes ago
      Judith Halterman likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’m uncomfortable not knowing when and when it isn’t being used, but I’m not sure why really. A “singer” named Benny Rivers popped up in one of my feeds. I really liked the music, until I found out it was a total AI fabrication. Then I was uncomfortable. Why? I felt “taken”, like someone pulled a fast one on me, pulled the wool over my eyes. I liked the music less then. I didn’t like that I couldn’t find a tour date, things like that. But I was most uncomfortable not truly understanding why it made me uncomfortable. The music was still enjoyable.
    • 23 hours, 4 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I had ketones thrn I am sick. If mid to large I wd call my endo or if also vomiting or dehydrated from diarrhea. I wd go to the ER
    • 1 day ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 1 day ago
      KSannie likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 1 day ago
      Patricia Dalrymple likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 1 day ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I increase my basal and insulin ratios if I eat until I show no longer test positive. I do only test if I have been high for a longer than usual time.
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    Have you (or your loved one with T1D) been diagnosed with neuropathy?

    Home > LC Polls > Have you (or your loved one with T1D) been diagnosed with neuropathy?
    Previous

    After you exercise for 30 minutes or more, do you notice any of the following with your blood glucose levels after? (Select all that apply)

    Next

    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    16 Comments

    1. Molly Jones

      My neurologist and endocrinologist work together with relevant information after visits. My neuro has not seen any signs of neuropathy. Hopefully it stays that way!

      4
      2 years ago Log in to Reply
    2. sdimond

      Neuropathy from taking statins, not from diabetes!

      2 years ago Log in to Reply
    3. TEH

      I have lost the sense of touch on the tips of the index and middle finger on both hands to neuropathy. It feels like I have super glue on them.

      1
      2 years ago Log in to Reply
    4. Don P

      common side effect after 70 yrs of T1

      1
      2 years ago Log in to Reply
    5. Ahh Life

      Diagnosis is the easy part. It’s what you do afterwards to manage that’s extremely challenging.

      There are several types, almost all caused by frequent and long term glycosylation.

      1
      2 years ago Log in to Reply
    6. T1D4LongTime

      I had what felt like neuropathy as a pre-teen (11-12 yrs old) after 5-6 years with T1D. Never diagnosed with it. Excruciating burning/pins and needles on bottoms of my feet. I was a very active child. By age 14, if I recall, the pain had disappeared and never came back.

      1
      2 years ago Log in to Reply
    7. Marty

      I thought I had diabetes-related neuropathy when i was in my 40’s (pins and needles sensation in my feet) but it turned out to be a vitamin B deficiency that was easily remedied with a supplement. Now, I just have a mild loss of sensitivity to vibration in my feet, like most people who have lived with diabetes as long as i have.

      1
      2 years ago Log in to Reply
      1. lis be

        I also was told I have a vitamin B (12) deficiency. Have been doing some research and it seems like several type 1’s mention this. I have a second autoimmune that is atrophic gastritis (sounds worse then it is!) It means my stomach doesn’t make acid anymore and B12 is no longer absorbed there through food or supplements. (aB12 shot or sublingual B12 fix it though). I wonder if many type 1s get atrophic gastritis and that explains the B12 deficiencies.. ( I’m probably just putting random things together).
        That said, they still have me down as having “mild” neuropathy

        1
        2 years ago Log in to Reply
    8. Melinda Lipe

      Not sure if I have a diagnosis, but have some lower extremity numbness that comes and goes.

      2 years ago Log in to Reply
    9. George Lovelace

      T1 60 years and Neuopathy has changed in severity and effect over time. Current loss of somr feeling and balance but 25+ years ago went through the “pins and needles” in legs and feet and hands.

      2 years ago Log in to Reply
    10. Pauline M Reynolds

      I have what I call mild neuropathy. Instead of pain I get the “itch from hell” for about ten minutes at a time in my feet. I can’t drive then and have to pull over because I want to jam my foot into the pedal! Mild scratching fights it until it is gone. Every time, I think “at least it’s not pain, at least it’s not pain”.

      1
      2 years ago Log in to Reply
    11. Kristi Warmecke

      I unfortunately have been. I take ALA to help with it but when I was diagnosed with Stage 3 breast cancer, one of the drugs in my chemo regimen also had neuropathy as a side effect. After it was stopped I did regain the sensation back from my shoulders to wrist and hips to ankles.

      2 years ago Log in to Reply
    12. Mick Martin

      Diagnosed with peripheral neuropathy about 30-35 years ago, and with autonomic neuropathy about 20 years ago.

      2 years ago Log in to Reply
    13. Steven Gill

      A younger brother diagnosed TYPE1 just months before me has numbness in his feet (and numbers from his kidneys are “off”), a cousin experiences neuropathy in feet, gastroparesis, and taking eye drops (former substance abuser 15 years T2d), my non-diabetic mother had neuropathy in feet and hands as well as cataracts (weight and heavy smoking?)

      Nerve damage can be caused by other things as well as diabetes, combine these?

      2 years ago Log in to Reply
    14. ConnieT1D62

      Yes. Peripheral neuropathy in my fingers and hands, toes and feet; and cardiac autonomic neuropathy. The peripheral neuropathy gradually manifested after 40 years of life with T1D. Cardiac autonomic neuropathy manifested in 2018 and required a pace maker. Have lived a full life with T1D in my body since November/December 1962. Will celebrate 70 year birthday in March … still alive, thriving, and kicking ass with T1D and it’s neuropathic consequences!

      1
      2 years ago Log in to Reply
    15. Anita Stokar

      I haven’t but I also had a type1 cousin who definitely had neuropathy in her feet.

      2 years ago Log in to Reply

    Have you (or your loved one with T1D) been diagnosed with neuropathy? Cancel reply

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