I said, “maybe”. However, I am certain that I do have Raynaud’s. It just has not been diagnosed by a medical professional. Several of my siblings have been diagnosed with Raynauds. Throughout my whole life, I have had cold hands and feet, continuously. I feel cold most of the time, and am unable to live in cold weather (winter). As a matter of fact, I moved from the northern part of the USA to the southern part of the country specifically for that reason.
I have had it in the past but not in recent years. I did have an MD tell me I did at that time, 2010, but no skin color change since 2015.
I’ve experienced instances of hand going numb, but attribute it to laying my head on it and cutting off normal blood flow similar to a compression low with a G6 CGM. There’s no pain, no color change that I’m aware of (hey its at night, in the dark…), no noticeable temperature change (think its a short-lived event), and it resolves quickly after changing position.
The diagnosis from my doctor was based on my own testimony. Raynauds for me has been a regular occurrence since before my diabetes diagnoses. I have had Raynauds for probably 35-40 years.
I answered too quickly. I have not been medically diagnosed with Raynaud’s however have all the symptoms.
I was diagnosed with this five years ago after experiencing progressive symptoms for more than twenty+ years.
I can cool my husband down very quickly with my hands and feet most any time of the day, except when I first wake up after lying in bed. Most of my body is warm then.
I also use mittens and hand warmers many times of the years when others are warm. I also like my drinks to be room temperature. Ice hurts and can give my lips a blue tinge.
I find it strange that I hate the heat though. I cannot cool down once it’s over a certain comfortable temperature. Maybe the same blood flow problem leads to this?
My hands do get very cold at different times. My left hand tends to get cold at breakfast and sometimes either hand will get cold while walking a dog. My hands don’t get white or blue however.
If you’re a person with T1D, have you experienced symptoms of Raynaud’s phenomenon (a condition where the hands or feet experience temporarily less blood flow, become very cold, and may turn white or blue)? Cancel reply
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I have symptoms in both little fingers but have had surgery for Duputrens on both. So not sure raynauds or from surgeries. Very annoying. And can be painful.