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    • 22 hours, 1 minute ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 22 hours, 1 minute ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 23 hours, 7 minutes ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
    • 23 hours, 9 minutes ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
    • 1 day ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
    • 1 day ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
    • 1 day ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 1 day ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 1 day ago
      Lawrence S. likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 1 day, 20 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 1 day, 20 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 1 day, 20 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 1 day, 21 hours ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 22 hours ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 23 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 1 day, 23 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 1 day, 23 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 23 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 1 hour ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 2 days, 1 hour ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 2 days, 1 hour ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 2 days, 1 hour ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 2 days, 1 hour ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 1 hour ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
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    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Home > LC Polls > If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.
    Previous

    For how many years have you (or your loved one) been living with T1D so far?

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    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. John Williamson

      I am glad to see some physicians make use of portals. My primary care refuses to post anything – even appointments while my endo only does so after covering everything during my appointment. I wonder how many are like mine?

      3 years ago Log in to Reply
    2. Henry Renn

      I try to limit messaging bc I think my providers are required to reply to every text. Do not know if there is a HIPPA regulation, a law or simply protocul of medical system.

      3 years ago Log in to Reply
    3. Jeanne McMillan-Olson

      My doctor and his team are amazing at responding to my messages. Can also access all test results like xrays not just labs.

      3 years ago Log in to Reply
    4. AnitaS

      I always use it to see my test results. I have used it 2x to do a telehealth appointment during high covid times (about a year ago I believe). I occasionally use it to message my provider, schedule appointments, or pay bills. I prefer paying right at the time of my appointment, but some offices don’t want the contact with my credit card (I am assuming) so they do not take payments at time of appointment.

      3 years ago Log in to Reply
    5. Marla Peaslee

      prescriptions refills

      1
      3 years ago Log in to Reply
    6. Kathleen Juzenas

      Just to see lab results. They also post my next appointment. The portal allows messages but I sent one and it went unanswered. When I then called, the provider told me to call (not message) if I have a question. They are good about returning calls within 24 hrs.

      3 years ago Log in to Reply
    7. Lori Lehnen

      I do all of the activities mentioned. When I switched to my new endo, the receptionist sent me a link for the portal and since then, all interactions have been virtual. I believe I’m getting better care because I routinely get follow up messages from the dr, via the portal, that are directly related to what we talked about. The portal must make it easier for her, which translates to better care for me and that makes me happy.

      1
      3 years ago Log in to Reply
    8. mojoseje

      I order my prescriptions.

      1
      3 years ago Log in to Reply
    9. Bea Anderson

      I don’t make appointments but I do check upcoming appointments.

      3 years ago Log in to Reply
    10. Amy Schneider

      While the portal offers many options, most are not implemented, like scheduling.

      3 years ago Log in to Reply
    11. PamK

      Refilling my prescriptions/medical devices.

      3 years ago Log in to Reply
    12. Cheryl Seibert

      I love the ability to send my endo a message! I also verify appointment times, check lab results, medical history (which quite often is inaccurate after 40 yrs with them, multiple electronic record upgrades, and the ER putting in inaccurate info). I have not had the need to schedule appointments on the portal, but this option is available.

      3 years ago Log in to Reply
    13. Velika Peterson

      Requesting new/refill prescriptions for insulin or supplies

      3 years ago Log in to Reply

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




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