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    • 6 hours, 57 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 6 hours, 57 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 6 hours, 58 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 12 hours, 24 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 12 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 12 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 14 hours, 34 minutes ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 15 hours, 17 minutes ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 16 hours, 29 minutes ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 1 day, 15 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 12 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 15 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 2 days, 15 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 16 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 2 days, 16 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 4 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 4 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 3 days, 12 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 3 days, 15 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 3 days, 17 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
    • 3 days, 17 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      1 and 2 days before its about to expire. It goes out of range several times those days. They should prescribe a 10 day CGM for every 8 days because on average, that is the use it seems we get.. and if you call to report it, you lose an hour on the phone!
    • 3 days, 17 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It's a G7...one feature they added to the new version was random signal loss.
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    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Home > LC Polls > If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.
    Previous

    For how many years have you (or your loved one) been living with T1D so far?

    Next

    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. John Williamson

      I am glad to see some physicians make use of portals. My primary care refuses to post anything – even appointments while my endo only does so after covering everything during my appointment. I wonder how many are like mine?

      3 years ago Log in to Reply
    2. Henry Renn

      I try to limit messaging bc I think my providers are required to reply to every text. Do not know if there is a HIPPA regulation, a law or simply protocul of medical system.

      3 years ago Log in to Reply
    3. Jeanne McMillan-Olson

      My doctor and his team are amazing at responding to my messages. Can also access all test results like xrays not just labs.

      3 years ago Log in to Reply
    4. AnitaS

      I always use it to see my test results. I have used it 2x to do a telehealth appointment during high covid times (about a year ago I believe). I occasionally use it to message my provider, schedule appointments, or pay bills. I prefer paying right at the time of my appointment, but some offices don’t want the contact with my credit card (I am assuming) so they do not take payments at time of appointment.

      3 years ago Log in to Reply
    5. Marla Peaslee

      prescriptions refills

      1
      3 years ago Log in to Reply
    6. Kathleen Juzenas

      Just to see lab results. They also post my next appointment. The portal allows messages but I sent one and it went unanswered. When I then called, the provider told me to call (not message) if I have a question. They are good about returning calls within 24 hrs.

      3 years ago Log in to Reply
    7. Lori Lehnen

      I do all of the activities mentioned. When I switched to my new endo, the receptionist sent me a link for the portal and since then, all interactions have been virtual. I believe I’m getting better care because I routinely get follow up messages from the dr, via the portal, that are directly related to what we talked about. The portal must make it easier for her, which translates to better care for me and that makes me happy.

      1
      3 years ago Log in to Reply
    8. mojoseje

      I order my prescriptions.

      1
      3 years ago Log in to Reply
    9. Bea Anderson

      I don’t make appointments but I do check upcoming appointments.

      3 years ago Log in to Reply
    10. Amy Schneider

      While the portal offers many options, most are not implemented, like scheduling.

      3 years ago Log in to Reply
    11. PamK

      Refilling my prescriptions/medical devices.

      3 years ago Log in to Reply
    12. Cheryl Seibert

      I love the ability to send my endo a message! I also verify appointment times, check lab results, medical history (which quite often is inaccurate after 40 yrs with them, multiple electronic record upgrades, and the ER putting in inaccurate info). I have not had the need to schedule appointments on the portal, but this option is available.

      3 years ago Log in to Reply
    13. Velika Peterson

      Requesting new/refill prescriptions for insulin or supplies

      3 years ago Log in to Reply

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




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