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    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 22 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 45 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 43 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 8 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 9 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 9 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 18 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?

    Home > LC Polls > If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be?
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    If you have experienced complications related to T1D, which of these words most accurately describe the effect of complications on your quality of life?

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    Over the past 12 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, etc.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Molly Jones

      Other
      It depends on the urgency of what I needed to be seen for was. In my current state of health it would be 3-4 months as my Endo desires to see me quarterly.
      I can call or text the hospital clinic to speak with my doctor’s team or nurse on call and receive answers twenty four hours a day. They would determine if I needed to come in right away or resolve a problem over the phone. Just calling to make an appointment without the desire of my Endo or another doctor is difficult as they are incredibly busy.

      1
      4 years ago Log in to Reply
    2. Clare Fishman

      It would obviously depend on the urgency of the situation. I make my appointments 6 months ahead of time but if it was emergent my endo would make room for me ASAP.

      3
      4 years ago Log in to Reply
    3. Kristine Warmecke

      I have my appointment’s scheduled until either July or September of 2022. If I had something come up before my next one, the office and my endo would work to fit me in somewhere. I’ve also seen her in her research lab office, when nothing else was available. One of the many reason’s I’ve stayed with her/gone back to her, for the past 30 years.

      4 years ago Log in to Reply
    4. Gary Taylor

      I answered “other” because I really don’t know how quickly I could get in.

      1
      4 years ago Log in to Reply
    5. LizB

      3 months is usually the earliest the next appointments are available whenever I’ve called. That’s been true with both my past endo and my current one.

      4 years ago Log in to Reply
    6. Greg Felton

      I’m guessing 1-2 months, because I have never tried it and I believe the clinic is very busy. I normally schedule checkups 3-4 months in advance, and it’s never an issue to find a slot. If I had a pressing need I would either contact the clinic with a question via their online portal, or see my primary care physician.

      2
      4 years ago Log in to Reply
    7. Patricia Kilwein

      Because it is so hard to get in I make my 3 month app 6 months out. So I have an appt every 3 months. If there’s an urgent matter they make time to see me.

      1
      4 years ago Log in to Reply
    8. Mary Dexter

      That’s if they don’t laugh at me.

      1
      4 years ago Log in to Reply
    9. Beckett Nelson

      I put “other” as I’m not sure. When I have an appointment, we always book the next one out 3-4months later. Years ago I ran into problems and they got me in same or next day after hours. Like others have said, I’m sure it depends on urgency?

      1
      4 years ago Log in to Reply
    10. Sherolyn Newell

      I am guessing based on making my regular appointments. I haven’t had any urgent needs, I would certainly hope they would make an effort to fit me in if necessary.

      1
      4 years ago Log in to Reply
    11. Henry Renn

      Scheduled every 3 months per Medicare. On needs basis much sooner.

      4 years ago Log in to Reply
    12. John Sanford

      Depends why I wanted to talk to my doctor. I can actually make an appointment it would probably be a few weeks or so or I can do a video visit but if I just had a question I have an app I can talk to any doctor and they’ll get back to me when they can.

      1
      4 years ago Log in to Reply
    13. Patricia Dalrymple

      Said other because I have never needed an emergency appt. I know that it is best if I schedule my next 4 month appt before I leave the current one. Have never had a problem.

      2
      4 years ago Log in to Reply
    14. HMW

      I said “within a month” which would be for a regular followup. However, my endo has seen me or spoken to me on the phone within a few days for an acute issue (illness with severe hypo or hyper-glycemia) or when I needed to see her more often, such as when I was pregnant.

      4 years ago Log in to Reply
    15. Sahran Holiday

      Have only had one telehealth visit and one in person visit with current endocrinologist. She wants me to see the diabetes educator first who wants me to upload my Omnipod records. It’ll be a while.

      4 years ago Log in to Reply
      1. Wanacure

        Always read your comments, girl-friend. Yeah, upload those records. You may be surprised how good your control is!

        4 years ago Log in to Reply
    16. ConnieT1D62

      NA as in Unknown. Depends on what the circumstance is. However, since she is booked out several months ahead I doubt if I could see her anytime sooner than later, but I may be able to see one of the newer provider colleagues that have joined the practice. I book my q 3 month appointments with her a year in advance.

      4 years ago Log in to Reply
    17. Donald Cragun

      I have never needed to ask for an unscheduled appointment with my current T1D healthcare provider. I would expect to be able to walk in and be seen (after waiting a while), but I have no way of knowing until I need to try it.

      4 years ago Log in to Reply
      1. Wanacure

        Donald, if it’s an emergency call your free 24-hr 365-day nurse. And/or pay $20 to taxi cab for ride to Urgent Care. Be prepared for exorbitant charge if you go to KP Urgent Care. Emergency Rooms in US are waste of your time. Take a book to read. Just speaking from my experience.

        4 years ago Log in to Reply
    18. Joan Fray

      Depends on the severity of my problem.

      4 years ago Log in to Reply
    19. PamK

      I am guessing 2 – 3 months from now only because I know when I have to reschedule an appointment it is usually @ 6 weeks out. When I’ve had a question or a problem they call me, but they don’t schedule an appointment. I’m not sure under what circumstances they would.

      4 years ago Log in to Reply
    20. Bonnie Lundblom

      I just started this week with a new endocrinologist and it took me 2 months to get in to be seen. From this point on if I stay with him I’ll be seen every 3 months with my next appointment made at the end of each visit. If my previous endocrinologist joins another local practice I’d want to go back to her.

      4 years ago Log in to Reply
    21. AnitaS

      I put 2-3 months but I am taking a guess because whenever I see my endo, she just schedules me to see her in 4 months because my control is good. If I was having not-so-good results, she would see me more often.

      4 years ago Log in to Reply
    22. Gemma Matoesian

      Within a few weeks to see my NP, 4-6 months to see MD.

      4 years ago Log in to Reply
    23. Bea Anderson

      I’ve never had a need to be seen on a next available basis. Insurance required every 6 months initially, Medicare requires 3 months, which is ridiculous for otherwise healthy, capable person. Oh well…

      4 years ago Log in to Reply
    24. T1D5/1971

      I have a very good Endo and she is very popular because she is good. Most of my Endo appointments have to be scheduled 6 months in advance in order to keep Medicare happy with the 90 day rule. Unfortunately, that has the effect of having to frequently reschedule the 4x/year required appointments because noone can predict what’s going to happen 6 months from now. Silly rules make our lives harder than necessary and create unnecessary burdens on healthcare systems.

      4 years ago Log in to Reply
    25. Cheryl Seibert

      Depends on how serious my request is. If I need next available, the ideal time would be that day or the next day. I would not request next available if not a serious situation.

      4 years ago Log in to Reply

    If you were to request the next available appointment with your T1D healthcare provider, which of these options best describes when that next available appointment would be? Cancel reply

    You must be logged in to post a comment.




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