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    • 1 hour, 45 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 2 hours, 16 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 2 hours, 16 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 7 hours, 37 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 7 hours, 38 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 7 hours, 38 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 16 hours, 3 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 17 hours, 51 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 17 hours, 51 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 17 hours, 51 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 23 hours, 44 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 23 hours, 45 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 3 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 3 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 4 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 4 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 4 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 6 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 6 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 6 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 6 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 6 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 6 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
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    If you use a CGM, how often do you feel your blood glucose levels dropping before your CGM alerts you of a low?

    Home > LC Polls > If you use a CGM, how often do you feel your blood glucose levels dropping before your CGM alerts you of a low?
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    If you use an insulin pump that requires charging the battery, do you have a particular time or activity during which you charge your pump?

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    If you drink alcohol, do any of the following types of alcohol cause a noticeable drop in your blood glucose, even if you do not bolus? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Lawrence S.

      I said “sometimes”, but could have said “often.” Sometimes I get the CGM warning first, sometimes I start feeling lightheaded, usually when I’m doing something or working around the house or yard. Years ago, when I was employed, I rarely was aware of my low BG’s. Since retirement, I seem to feel light headed early when I’m going low.

      3 years ago Log in to Reply
    2. Jneticdiabetic

      Rarely. Only when it’s dropping very fast.

      3 years ago Log in to Reply
    3. Jason Lynch

      I could feel hypos pretty distinctly in the beginning but I’ve become very hypo unaware since getting my numbers under control. I definitely notice them more if I’ve been running high in the past few hours but if I’ve been sitting right around 100 for a while and I drop I won’t feel a thing at 40.

      1
      3 years ago Log in to Reply
    4. mojoseje

      Sometimes, I don’t feel it at all and the sensor alarms and I am surprised and thankful! Before CGM, I was having bad lows (sweating, shaking) several times a week because I had sunk too low. Now, that rarely happens.

      2
      3 years ago Log in to Reply
    5. gary rind

      I’ve changed my low alarm to ring at 80. Unless it’s dropping quickly, it will usually alarm first.

      3 years ago Log in to Reply
    6. Mary Dexter

      At night, pain in my hips wakes me before the CGM. I then notice that my CGM says I am going low or high, and I get up to fix it.

      3 years ago Log in to Reply
    7. Andrew Stewart

      I don’t rely on the the alerts, I look at the CGM BG value and trend (direction) indicator on my phone or pump regularly to see where my BG is and where it’s going. I find being proactive works better for me than being reactive to alerts and alarms.
      #BeWell

      1
      3 years ago Log in to Reply
    8. Ernie Richmann

      Sometimes I don’t hear the alarm due to background noise. I have felt a low on occasion before the alarm if it is a rapid drop.

      1
      3 years ago Log in to Reply
    9. Janis Senungetuk

      Depends on how fast they’re dropping. I’m very unaware of highs or lows most of the time, unless my levels are dropping very fast. If that’s the case I may be aware just before a low alarm alert.

      2
      3 years ago Log in to Reply
    10. Mick Martin

      I’ve had hypoglycaemia unawareness for close on 30 years now, and it’s extremely rare for me to ‘feel’ or ‘sense’ a hypo coming on.

      3
      3 years ago Log in to Reply
    11. Robert Kovalik

      I have my CGM set at 90 so I wouldn’t feel a low. This works out very well.

      3 years ago Log in to Reply
    12. Hieromonk Alexis

      I said “never,” since due to total hypoglycemic unawareness I never feel it dropping, which is the main reason I got the CGM.

      2
      3 years ago Log in to Reply
    13. Pauline M Reynolds

      Never, because I have my low point set at 80 instead of 70. My experience is that when I go low, I rush low, so I need the extra time.

      3 years ago Log in to Reply
    14. Ahh Life

      Often. I sense lows coming a mile away and they always seem to hit like a ton of bricks. A dog might sense them a minute or two quicker, but a sensor? Never. 📎

      3 years ago Log in to Reply
    15. LizB

      I don’t feel my lows which is why having a CGM is so important. I only know I’m low because of the alarms.

      1
      3 years ago Log in to Reply
    16. Nicholas Argento

      I said sometimes. Before using CGM, I had hypoglycemia unawareness and often got low without realizing. Since I spend little time low w CGM and control IQ, my hypoglycemia sensitivity has improved immensely. So if I happen to be off sensor, or the sensor is off, I am still protected, because being infrequently low by using CGM w CIQ preserves my ability to detect hypo’s. A virtuos circle 🙂

      3 years ago Log in to Reply
    17. PamK

      I have Hypoglycemia Unawareness. When my blood sugar is well controlled, I feel my blood sugar dropping before the CGM “sees” it. When I am not well controlled, I don’t recognize that I am dropping. That’s when I am grateful for the invention of CGMs!

      3 years ago Log in to Reply
    18. T1D4LongTime

      I do have hypoglycemic unawareness, but occasionally I can tell I’m low and/or dropping fast before the pump hits alerts me. I have the 2mg/dL drop alert and < 70 alert on. I have the most severe symptoms when my BG is dropping fast, not so much when it's fell slowly and I'm below 70.

      3 years ago Log in to Reply
    19. Emily Meister

      My low alert is set at 80. I become symptomatic in low 60s

      3 years ago Log in to Reply

    If you use a CGM, how often do you feel your blood glucose levels dropping before your CGM alerts you of a low? Cancel reply

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