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    • 13 hours, 22 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 13 hours, 28 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 13 hours, 28 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 13 hours, 37 minutes ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 14 hours, 58 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 16 hours, 9 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 16 hours, 9 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 16 hours, 9 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 16 hours, 9 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 17 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 17 hours, 44 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 17 hours, 44 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 17 hours, 45 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 17 hours, 51 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 17 hours, 58 minutes ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 18 hours, 1 minute ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 20 hours, 34 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      So far since Jan 1, ‘26, I’ve spent nearly 30 hours on the phone battling and trying to get Medicare covered diabetes supplies. Called 5 different suppliers t get what I need to use my pump.
    • 20 hours, 35 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      You are too modest. That hurdle is on fire and you have to juggle chainsaws as you jump over it. Congratulations and good luck making it over the next one in 90 days.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 12 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 12 hours ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 12 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
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    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!

    Home > LC Polls > If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!
    Previous

    After your diabetes diagnosis, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Next

    Do you ever purchase candy labeled “sugar-free”?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Gerald Oefelein

      I share my data with my diabetologist but he does not check it outside of office visits.

      4 years ago Log in to Reply
    2. Kevin McCue

      Although I share with my doc I do not believe they review the data until appointments

      1
      4 years ago Log in to Reply
    3. Lawrence S.

      I do not share “real-time” CGM date with anyone. My Endo gets the info for my appointments after I have downloaded the data onto TConnect.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    4. Jim Cobbe

      Plus my niece (only relative who lives close by) and a friend who is a trusted neighbor, both since my wife died.

      4 years ago Log in to Reply
    5. Laurel M

      I share it to the Sugarmate app. I find it gives me better trend alerts than Dexcom.

      4 years ago Log in to Reply
    6. Ernie Richmann

      Nobody I know wants my cgm data.

      4 years ago Log in to Reply
    7. Ahh Life

      Endocrinologist only. Or mostly.

      Except I may occasionally print out fancy colorful graphs & pie charts to educate other physicians such as the GP.

      4 years ago Log in to Reply
    8. Drina Nicole Jewell

      I follow my children and my dad but no one follows me. I do not follow my 16 yr old consistently though, only at school.

      4 years ago Log in to Reply
    9. persevereT1D52

      At 68 long term T1 52yrs I live alone. Even though my daughter is across the country from me it gives her and I peace of mind. If I don’t respond she can call for help.

      1
      4 years ago Log in to Reply
    10. LizB

      Some years ago my istser asked me if she would be able to see my CGM data but at the time it wasn’t possible (Medtronic). Now I would be able to share with her but I don’t because I know she wouldn’t share her Dexcom data with me if I asked. It’s probably for the best as she likes to run high (afraid of lows) and I like to run lower. We’d probably just make each other anxious looking at the other’s numbers.

      4 years ago Log in to Reply
    11. Pauline M Reynolds

      Getting a CGM soon. But find out my phone isn’t compatible, which means no sharing. Dang! So, I have to decide to purchase a new phone at some point.

      1
      4 years ago Log in to Reply
      1. Kathy Morison

        I came across the same problem but didnt consider buying a new phone… too expensive a venture. With the Freestyle Libre 2 system, you just get the reader that goes along with the the sensors you’re buying.

        4 years ago Log in to Reply
      2. AnitaS

        You can get the receiver from dexcom also if you don’t have a phone to receive the data.

        4 years ago Log in to Reply
    12. Russell Buckbee

      I haven’t found anyone who wants my data. They may care but don’t want to wade thru all of it. Not even my Dr. wants all of that. They want just their down load at the office.

      2
      4 years ago Log in to Reply
    13. Kathy Morison

      I share my CGM results verbally with my husband and my daughters, but I don’t share real time data/monitering with anybody else

      4 years ago Log in to Reply
    14. Sue Martin

      My doctor does have access to the data and we discuss it during appointments. I don’t think they follow me in real time.

      4 years ago Log in to Reply
    15. Missy Kirchem

      I share it with my Fitbit watch so I can see it easier.

      4 years ago Log in to Reply
    16. Gustavo Avitabile

      I upload my data to Nightscout, and anybody can visit my site and see it in real time. My wife, children, and occasionally other people, do.

      4 years ago Log in to Reply
    17. George Lovelace

      My Endo because no one else would really understand it the way she does. She’s very pleased with the Numbers and so am I, they’re the Best since 1963

      4 years ago Log in to Reply
    18. Molly Jones

      Currently my husband and my Endocrinologist. Previously with my neurologist for some completed research, but they still have access.

      4 years ago Log in to Reply
    19. PamK

      I share with my husband, and with my doctor’s office.

      4 years ago Log in to Reply
    20. AnitaS

      I answered that I don’t share my real time data. The only time anyone other than me sees my data is when I am at my endocrinology appointments.

      4 years ago Log in to Reply

    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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