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    • 14 hours, 49 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 51 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 52 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 52 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 1 minute ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 53 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 54 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 16 hours, 56 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 20 hours, 56 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 22 hours, 58 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 44 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!

    Home > LC Polls > If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply!
    Previous

    After your diabetes diagnosis, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Next

    Do you ever purchase candy labeled “sugar-free”?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Gerald Oefelein

      I share my data with my diabetologist but he does not check it outside of office visits.

      4 years ago Log in to Reply
    2. Kevin McCue

      Although I share with my doc I do not believe they review the data until appointments

      1
      4 years ago Log in to Reply
    3. Lawrence S.

      I do not share “real-time” CGM date with anyone. My Endo gets the info for my appointments after I have downloaded the data onto TConnect.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    4. Jim Cobbe

      Plus my niece (only relative who lives close by) and a friend who is a trusted neighbor, both since my wife died.

      4 years ago Log in to Reply
    5. Laurel M

      I share it to the Sugarmate app. I find it gives me better trend alerts than Dexcom.

      4 years ago Log in to Reply
    6. Ernie Richmann

      Nobody I know wants my cgm data.

      4 years ago Log in to Reply
    7. Ahh Life

      Endocrinologist only. Or mostly.

      Except I may occasionally print out fancy colorful graphs & pie charts to educate other physicians such as the GP.

      4 years ago Log in to Reply
    8. Drina Nicole Jewell

      I follow my children and my dad but no one follows me. I do not follow my 16 yr old consistently though, only at school.

      4 years ago Log in to Reply
    9. persevereT1D52

      At 68 long term T1 52yrs I live alone. Even though my daughter is across the country from me it gives her and I peace of mind. If I don’t respond she can call for help.

      1
      4 years ago Log in to Reply
    10. LizB

      Some years ago my istser asked me if she would be able to see my CGM data but at the time it wasn’t possible (Medtronic). Now I would be able to share with her but I don’t because I know she wouldn’t share her Dexcom data with me if I asked. It’s probably for the best as she likes to run high (afraid of lows) and I like to run lower. We’d probably just make each other anxious looking at the other’s numbers.

      4 years ago Log in to Reply
    11. Pauline M Reynolds

      Getting a CGM soon. But find out my phone isn’t compatible, which means no sharing. Dang! So, I have to decide to purchase a new phone at some point.

      1
      4 years ago Log in to Reply
      1. Kathy Morison

        I came across the same problem but didnt consider buying a new phone… too expensive a venture. With the Freestyle Libre 2 system, you just get the reader that goes along with the the sensors you’re buying.

        4 years ago Log in to Reply
      2. AnitaS

        You can get the receiver from dexcom also if you don’t have a phone to receive the data.

        4 years ago Log in to Reply
    12. Russell Buckbee

      I haven’t found anyone who wants my data. They may care but don’t want to wade thru all of it. Not even my Dr. wants all of that. They want just their down load at the office.

      2
      4 years ago Log in to Reply
    13. Kathy Morison

      I share my CGM results verbally with my husband and my daughters, but I don’t share real time data/monitering with anybody else

      4 years ago Log in to Reply
    14. Sue Martin

      My doctor does have access to the data and we discuss it during appointments. I don’t think they follow me in real time.

      4 years ago Log in to Reply
    15. Missy Kirchem

      I share it with my Fitbit watch so I can see it easier.

      4 years ago Log in to Reply
    16. Gustavo Avitabile

      I upload my data to Nightscout, and anybody can visit my site and see it in real time. My wife, children, and occasionally other people, do.

      4 years ago Log in to Reply
    17. George Lovelace

      My Endo because no one else would really understand it the way she does. She’s very pleased with the Numbers and so am I, they’re the Best since 1963

      4 years ago Log in to Reply
    18. Molly Jones

      Currently my husband and my Endocrinologist. Previously with my neurologist for some completed research, but they still have access.

      4 years ago Log in to Reply
    19. PamK

      I share with my husband, and with my doctor’s office.

      4 years ago Log in to Reply
    20. AnitaS

      I answered that I don’t share my real time data. The only time anyone other than me sees my data is when I am at my endocrinology appointments.

      4 years ago Log in to Reply

    If you use a CGM and share your real-time CGM data with other people, with whom have you shared your live CGM data? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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