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    • 1 hour, 20 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you (or your child) had T1D while in school, did you give presentations to classmates to teach them about T1D?

    Home > LC Polls > If you (or your child) had T1D while in school, did you give presentations to classmates to teach them about T1D?
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    If you wear both an insulin pump and a CGM, how often do you put both devices on the same area of your body? (ex: pump site and CGM in the same section of your abdomen, both on the same arm, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Gary Taylor

      I assumed you meant elementary, junior high, or high school. I developed T1D my freshman year of college.

      1
      5 years ago Log in to Reply
    2. Nevin Bowman

      I gave a speech on T1 for my university speech class.

      3
      5 years ago Log in to Reply
    3. Bob Durstenfeld

      Several Science Fair projects

      2
      5 years ago Log in to Reply
    4. Britni

      Disabilities month in 4th grade. My mom and I presented about type 1 diabetes. We gave out glucose tablets to everyone. Not sure that got the right point across. We also had guests teach us about deafness (they performed Eye of the Tiger in ASL). I’m sure there were others but I can’t remember them now.

      1
      5 years ago Log in to Reply
    5. Greg Felton

      I had a ready-made science presentation through elementary school!

      2
      5 years ago Log in to Reply
    6. Lakesha McDonald Kee

      I became a T1D 36 years ago before all the privacy laws kicked in. When I returned to school from being in the hospital for a week or so after discovering I was diabetic the teacher had information about diabetes all over the board and had told the entire class!!! I was mortified but that was a time when you rolled with the punches’ and adjusted. I know now that the teacher meant well but I always think of what would happen if someone did that in this day and age :). So I didn’t voluntarily give a presentation but it was definitely presented!!! With that being said I never had a problem sharing my condition with anyone.

      1
      5 years ago Log in to Reply
    7. Amanda Barras

      When I was young, for the first few years of elementary, my mom had sent a VHS along to have the teacher show to the class so they would be aware of why I was acting a certain way, why I had to eat a snack, or why I had to go to the nurse more often.

      2
      5 years ago Log in to Reply
    8. Velika Peterson

      I gave a presentation on T1D in my daughter’s class each year from Kindergarten to Grade 5. This year she is in Middle School (a new kid in a new school, new country) and has said that she doesn’t want her classmates to know for a little while. We’ll see if she agrees to doing a presentation later in the year.

      5 years ago Log in to Reply
    9. Meerkat

      I worked at a junior high and did presentations in the health classes when they were studying the endocrine system.

      5 years ago Log in to Reply
    10. GLORIA MILLER

      The less attention I got the happier I was so I never would have considered giving any presentation about my disease. I was in the first grade when it was discovered I had diabetes many years ago.

      1
      5 years ago Log in to Reply
    11. Bill Williams

      I did my first presentation on living with diabetes in 2018 at a small college’s campus colloquium. I was 68 at the time. The audience consisted almost entirely of students who were concerned about helping their parents adapt to Type 2.

      5 years ago Log in to Reply
    12. Natalie Daley

      My daughter told her teacher her mom is a T1D, so her teacher asked me to talk to the kids. This is 25 years ago, and I wasn’t thrilled, but I thought it might be informative, and I was a teacher, but in college.
      I gathered up all my supplies, gave a brief presentation, and when I came to loading a syringe, one of the boys passed out. I have avoided all requests to discuss this with kids again.

      1
      5 years ago Log in to Reply
    13. Janis Senungetuk

      After dx in third grade I offered to give a presentation during health class, but my teacher wasn’t interested. I used my information for a science fair exhibit instead. Every year after that I put together a science fair exhibit that related in someway to life with T1 diabetes. I continued thru high school, winning an achievement award from the Midwest Research Institute my senior year.

      7
      5 years ago Log in to Reply
    14. Trish Seidle

      No way! When I was young I did everything possible to be ” normal”.

      2
      5 years ago Log in to Reply
    15. M C

      In the 1970’s I don’t believe it would have been wanted… Even friends knew little to nothing about what I was facing. Hoping things have changed for the better since then.

      1
      5 years ago Log in to Reply
    16. Sharon Lillibridge

      I did not let ANYONE know that I was t1D for the first 45 years and I am fully disc losed now because I am so crippled by it that I can’t hide it anymore.

      5 years ago Log in to Reply
    17. KarenM6

      Not as a young person. I don’t recall ever having to give a presentation where I got to choose the subject.
      In later years, when I did college as an adult, I had to take a speech class. I didn’t want to. I had to. But, one of the first speeches was a “demonstrate/teach something” type speech and I chose how to give a shot to a cat. In that short speech (I don’t think it could be over 2 or 3 minutes), I used a syringe and a stuffed animal. And I got in some diabetes information, but not a lot.

      5 years ago Log in to Reply
    18. ConnieT1D62

      No way. Schooled in the 1960s and 70s it was never considered as a thing to do. Even while attending nursing school in the 1980s I didn’t give any diabetes presentations to classmates.

      However, in the 1980s I was trained as a volunteer peer educator through the ADA and gave self-care empowerment talks and led support groups for young and older adults living with diabetes of all ages. Eventually I became certified as a diabetes nurse specialist and as a CDE/CDCES I have been invited to give education sessions to many groups and individuals of all ages, backgrounds and in all kinds of settings.

      2
      5 years ago Log in to Reply
    19. Karen Milton

      I gave a demonstration to my fifth grade class on how to give a shot (this was in 1966). I used an orange for the demo. At slumber parties my girlfriends watched me inject myself – there was a lot of squealing!

      1
      5 years ago Log in to Reply
    20. Catherine Thompson

      I didn’t personally give the presentations, but my mom always arranged for a diabetes nurse/educator to do a presentation to my class each year in elementary school. I always dreaded those days because I didn’t want the extra attention.

      5 years ago Log in to Reply
    21. PamK

      I’ve had diabetes since the age of 2 1/2. So, I had already been living with it before I started school. As a young T1D I had to eat snacks during class time. Most often, I had to go out into the hallway to eat in order to not “bother” the other students. This led to a lot of questions from my classmates on why I had to leave the room everyday.
      I had no problems with explaining to them that I have diabetes and what diabetes is. As I got older, this became less frequent, but whenever asked I would always explain. I also did a research paper on diabetes when I was in Jr High and gave a presentation on my findings.

      5 years ago Log in to Reply
      1. PamK

        PS: I also was on several panels, including one at Hahnemann Hospital School of Nursing in the 80’s. There were 4 or 5 of us speaking about being on an insulin pump. I think the nursing students learned a lot!
        I was also on a panel while in college in upstate NY. This consisted of nurses, doctors and me, a college kid. After I answered and/or added to others answers, the doctor I was sitting next to started referring questions directed at him to me!
        I also had newly diagnosed people referred to me with questions by the JDF (now JDRF) while I was in high school in the late 70’s.

        5 years ago Log in to Reply
    22. Molly Jones

      I quickly pressed “NA”, but should have chosen “I did not have T1D while in school”. (If there is a difference?)

      1
      5 years ago Log in to Reply
    23. Against Wall

      Yes part of science fair project

      5 years ago Log in to Reply
    24. Chris Deutsch

      I never gave a presentation while in school, but my daughter did a poster for their science fair when she was in middle school. 🙂

      5 years ago Log in to Reply
    25. NAK Marshall

      In 1960, 4th grade, nobody knew anybody who had it or knew anything about it, so mom came in while in elementary school and did a short explanation for the kids. She went in before school started to talk with the school nurse, etc. Once I was in Middle School I did my own presentations. Never was shy about it in any situation with any group of people throughout my 61 years of T1D.

      5 years ago Log in to Reply
    26. NAK Marshall

      P.S. I was a teacher for 40 years and also always gave an explanation to all my students about why they might see me suddenly eating or drinking at an odd time, and also showed them all my “Tech Stuff,” once all that was invented, if they wanted to see it. As I was a special ed teacher most of my career it was often a great “object lesson” as well: “We all have something tough!”

      5 years ago Log in to Reply
    27. Arlie Peck

      Not much possibility back in the late 1950-s and early 1960’s even though I was TD1. Schools didn’t do much accommodating back then or do much of anything to help except to allow me to keep a candy bar in my desk.

      5 years ago Log in to Reply
    28. Cheryl Seibert

      Back in the mid-60s and 70s, when I was in grade school and high school, I only knew one other T1D classmate (my senior year). I attended a fairly large school also. It was not a disease a lot of people had in my town. My “ailment” wasn’t something anyone wanted to know about or talk about. Now, I give a presentation each year to College Pharmacy students.

      4 years ago Log in to Reply

    If you (or your child) had T1D while in school, did you give presentations to classmates to teach them about T1D? Cancel reply

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