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    • 11 hours, 12 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 18 hours, 13 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 18 hours, 13 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 18 hours, 24 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 18 hours, 24 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 18 hours, 31 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 18 hours, 45 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 19 hours, 20 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 19 hours, 20 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 19 hours, 20 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 22 hours, 29 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 1 hour ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 12 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 13 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 13 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 13 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 16 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 17 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 19 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    If you live with T1D, does another family member have a T1D diagnosis too? Choose all that apply.

    Home > LC Polls > If you live with T1D, does another family member have a T1D diagnosis too? Choose all that apply.
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    39 Comments

    1. Lynn Smith

      My late sister was diagnosed with diabetes, but I never knew whether she had T1 or T2. She was diagnosed in her late 40s or early 50s.

      2 years ago Log in to Reply
    2. Bob Durstenfeld

      We suspect, through genetic testing that my dad was the first to develop monogenic T1D, I was next and then two out of three younger of my brothers, followed by my eldest of three sons, and then the eldest of his two daughters.

      2 years ago Log in to Reply
    3. Ahh Life

      I am the sole winner and one champeen of a rather large family! Charles Atlas woulda been proud. 💪🏆¯\_(ツ)_/¯?

      2
      2 years ago Log in to Reply
    4. Kristen Clifford

      This is at least the third time, maybe as much as the fifth, that this question has been asked! Do you guys need help coming up with new stuff? Call me!

      1
      2 years ago Log in to Reply
    5. Shelly Smith

      The only ones with T1 were my mother’s two brothers. So far, I am the only one in my generation, (and thankfully so,) with the disease.

      2 years ago Log in to Reply
    6. Cindy Green

      My cousin, once removed (on my mother’s side) is the only other T1 in the family.

      2 years ago Log in to Reply
    7. Judith Marged

      I was diagnosed as T1D at 41. My great-nephew was recently diagnosed at age 16.

      2 years ago Log in to Reply
    8. Jane Cerullo

      Had a first cousins who had a lot of complications. He passed at an early age. I have LADA. My dad had diabetes type 2 but I think may have been LADA

      2 years ago Log in to Reply
    9. Phyllis Biederman

      I had an Aunt who developed LADA/Type 1 Dm at around the age of 40 years old. Contacted me to learn more and went on the use an insulin pump, but had difficulty learning how to eat healthy. Died in her late 70’s.

      2 years ago Log in to Reply
    10. Anita Stokar

      I had a cousin who had type1 also. She is no longer living however

      2 years ago Log in to Reply
    11. Donna Condi

      My brother was put on T2 meds for a few years before he started on Lantus and a year later he started on before meal Humalog. He started wearing Dexcom last year. So he is now insulin dependent. Is he now T1??

      2 years ago Log in to Reply
      1. Becky Hertz

        Only T1 if he has the antibodies. T2’s on insulin are just T2’s on insulin.

        2 years ago Log in to Reply
    12. Gerald Oefelein

      I had (deceased) a great uncle who had type 1. I remember the boiled syringes, animal insulin and all.

      2 years ago Log in to Reply
    13. Beckett Nelson

      Great grandfather on my dad’s side did and one of his cousins. Then great grandmother on my mom’s side did

      2 years ago Log in to Reply
    14. Debbie Dallmann

      Right now, I am the only one with T1D, but our granddaughter lives with us and she is pre-diabetic. We will know more from a doctor’s appointment next month.

      2 years ago Log in to Reply
    15. Anneyun

      One nephew.

      2 years ago Log in to Reply
    16. jamesmpii

      Paternal uncle

      2 years ago Log in to Reply
    17. Kate Kuhn

      We are a family of T1 Diabetics: Father, Sister, Son, Paternal Aunt, Paternal Uncle, 1st Cousin on Father’s side. We have our own support group!

      2 years ago Log in to Reply
    18. William Bennett

      Very large extended family, about 150 people, only one other T1: my 1st cousin’s daughter (2nd cousin?).

      2 years ago Log in to Reply
    19. Chari Purchatzke

      Nephew

      2 years ago Log in to Reply
    20. Lawrence S.

      I had a cousin whose son had T1D T1D. But, he passed away.

      2 years ago Log in to Reply
    21. Sheri Marcus

      My Grandfather on my moms side and aunt and uncle on my dads side.

      2 years ago Log in to Reply
    22. Carrolyn Barloco

      My sister’s son was diagnosed T1 at age 13.

      2 years ago Log in to Reply
    23. David Hedeen

      Niece

      2 years ago Log in to Reply
    24. Molly Jones

      I am the only one in my extended family with T1D. Every person in my mother’s family has at least one autoimmune condition, Hashimoto’s or Graves being shared by everyone.

      2 years ago Log in to Reply
    25. Edward Geary

      Nephew

      2 years ago Log in to Reply
    26. Yaffa Steubinger

      Actually 2 grandkids. Unfortunately my son’s two boys both have T1 – kaching!!!!

      2 years ago Log in to Reply
    27. KCR

      My dad was diagnosed Type 2 in the late 1980s but I have since wondered whether he might have been LADA/Type 1.

      2 years ago Log in to Reply
    28. ConnieT1D62

      I am the only one till living. My father and a first cousin in my mother’s lineage had T1D diagnosed in adulthood. They are both deceased.

      2 years ago Log in to Reply
    29. Conniekaycox

      Maternal first cousin female also type 1

      2 years ago Log in to Reply
    30. Mary Berube

      Niece

      2 years ago Log in to Reply
    31. Darla Yoder

      Cousin died 23

      2 years ago Log in to Reply
    32. John McHenery

      Children of one of my cousins but none of their parents.

      2 years ago Log in to Reply
    33. Jeff Balbirnie

      None, (Should be an option)

      2 years ago Log in to Reply
    34. PamK

      I chose both “Mom” and “Other” because I grew up the only T1 in my family. My mom was diagnosed with LADA when I was in my late 20’s.

      2 years ago Log in to Reply
    35. Debra Lanning

      Also a first cousin

      2 years ago Log in to Reply
    36. Mick Martin

      My late (younger) brother also had Type 1, as do 2 of my first cousins (on my mother’s side of the family. (I also have 2 brothers, both younger than myself, who have Type 2.)

      2 years ago Log in to Reply
    37. Catherine Davis

      My sister died at the age of 50. I just earned my gold medal for surviving with type 1 for 50 years.

      1 year ago Log in to Reply
    38. Kathleen Juzenas

      I marked my brother although he died earlier this year. I wasn’t sure if you wanted only living relatives.

      1 year ago Log in to Reply

    If you live with T1D, does another family member have a T1D diagnosis too? Choose all that apply. Cancel reply

    You must be logged in to post a comment.




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