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    • 6 hours, 57 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 8 hours, 53 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 8 hours, 56 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 11 hours, 47 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 12 hours, 3 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 21 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 10 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 11 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 12 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    If you have transitioned to Medicare from private insurance, did you at first have to go any amount of time without a pump or CGM because you did not meet all of Medicare’s coverage requirements?

    Home > LC Polls > If you have transitioned to Medicare from private insurance, did you at first have to go any amount of time without a pump or CGM because you did not meet all of Medicare’s coverage requirements?
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    In honor of National Siblings Day, if you have T1D, did you also have a sibling growing up who had T1D? Tell us about what that was like in the comments!

    Next

    Do you think it would be beneficial to have an automated insulin delivery device that also measured your stress hormone levels, and used that in addition to your CGM readings to dose your insulin?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    20 Comments

    1. Ahh Life

      Pump or CGM’s medicare is quite good (except maybe the 5-year pump replacement policy), On test strips, however, medicare was/is/continues to be horrid. ⚡

      1
      2 years ago Log in to Reply
    2. Jim Andrews

      I transitioned to Medicare at the same time that my insulin pump went out of warranty so I was able to use it during the transition, which was probably a month. I started cgm when I transitioned to Medicare.

      2 years ago Log in to Reply
    3. Lawrence Stearns

      I don’t recall going without my pump or CGM when I went on Medicare. But, Medicare does not make health insurance easy. The rules just go on and on to make life more difficult for diabetics.

      1
      2 years ago Log in to Reply
    4. dave hedeen

      Medicare stated that I did not require testing 4 times daily, if patient was already using a cgm. Yet DME provider would not fill Dr. Rx unless that Item was also fulfilled. Order required 2 months to fill : > )
      I also had difficulty getting pharmacy to bill Medicare for pump insulin under DME provision. only CVS would fill a Medicare pump insulin Rx. no bartell, costco, or rite aid

      2 years ago Log in to Reply
    5. Retired and glad

      As i was preparing to transition to Medicare, I thoroughly researched all the plans, including Medicare Supplements and Medicare Advantage. The main thing I was looking for was coverage on my diabetic needs. the Advantage plan I picked was great in every area except one, timeframe for a new pump. My Medtronic pump’s warranty runs out in four years, while Medicare plans only allow replacement after five years. As far as test strips go, they provide one per day which for me is plenty, especially since I have a large supply from my regular insurance days. Although my CGM (Dexcom) doesn’t really need a finger stick I still like to test once a day to ensure it’s on track.

      2 years ago Log in to Reply
    6. Kristine Warmecke

      I had a small stockpile of both pump and CGM supplies when I transitioned to Medicare last year. I have gone without sensors, a transmitter and the correct infusion sites because of the DME company I was told I had to use when I first began my Advantage plan. Thanks to the awesome Tandem costumer service representative who called that company and then my insurance, I no longer have to deal with them and I get to work with a DME company that cares if you have the correct products or not.
      There’s not much any of us can do about having to wait to order until you only have 10 days left.🤦🏼‍♀️

      2 years ago Log in to Reply
    7. David Smith

      I transitioned to Medicare in 2019, and I was appalled at how much more paperwork was required for my Endocrinologist to get a prescription approved by Medicare. Way more than had to be done when I was working and on a Humana health care plan through work. Seems absurd – it’s not like someone with T1D is going to wake up one morning and suddenly not need their pump or CGM!

      2
      2 years ago Log in to Reply
    8. Barbara Long

      I am full Medicare age and beyond. I opted to continue working full time to avoid the Medicare horror stories I hear every day. (I’m an RN and work in health care). I imagine I’ll go on Medicare in a year or too. Certainly would love to retire.

      2 years ago Log in to Reply
    9. Bob Durstenfeld

      It has been awful. The switch from. Direct from manufacturer to DME provider has been maddeningly slow. I am glad I stock piled a few months of supplies. I still have not managed to get insulin under Part B or figured out how to get test strips four months in.

      2 years ago Log in to Reply
      1. Kristine Warmecke

        Bob that was my biggest challenge also. This year I asked if I could get fair pricing on my Novolog, as it went $100, OptemRX has now dropped me because I asked and my endocrinologist ask. We thought it was a fair question, Humalog is only $35, why should I have to pay $864 for insulin I’m not allergic to?

        2 years ago Log in to Reply
    10. BARRY HUNSINGER

      I stocked up before going on Medicare. I know Medicare does not cover my current CGM (Guardian 3 from Medtronics ). Even after being diagnosed 27 years ago as Type 1, I also had to schedules a c-peptide and antibody test before they will approve any CGM. Now waiting to see my endo to finish this approval.

      2 years ago Log in to Reply
    11. Carol Meares

      I have hospital only on Medicare because I kept my insurance. It is a pain for billing because Medicare has to be billed first, then denied before my insurance is billed marked by me as gross inefficiency in our healthcare system. My supplies continued smoothly but the billing was all messed up and the insurance company refused to pay my medical costs until I straightened it out. I didn’t understand that Medicare needed to be billed first. That first year with the switch was daunting.

      2 years ago Log in to Reply
    12. connie ker

      I was on the state of Indiana High Risk insurance coverage before going onto Medicare. I don’t have a pump and was not on a CGM at the time but the doors opened up for less costly insurance coverage.

      2 years ago Log in to Reply
    13. Jana Foley

      I did not have any trouble during a transition because I was already on Medicare from a disability, but recent changes have made it much more challenging to reorder both pump and CGM supplies with the company I use. I’m wondering if I can choose a different third party supplier as this one wants to keep charging me and I have a zero copy on both devices.

      2 years ago Log in to Reply
    14. Amanda Barras

      I would think N/A and Never Been on Medicare would be interchangeable and should be noted more specifically. I’m not old enough for Medicare, so I picked N/A, but feel many others might have picked Never been on.

      2 years ago Log in to Reply
    15. Janis Senungetuk

      Medicare is my secondary insurance. Primary coverage is thru my wife’s employer. I waited until I was already enrolled in Medicare to start using a pump and had to jump through all of the required hoops , after 60 years w T1, for Medicare to accept any DME claims. After I had the pump, an Animas Vibe, I applied directly to Dexcom for a G5 CGM. That took close to 5 months to be approved by Medicare. Dexcom wouldn’t file claims with both , billing me for the Medicare portion. That led to two years of constant hassles with both Dexcom and Medicare and often left me without CGM supplies. Dexcom eventually wrote off the balance and I now get my supplies through a medical supply company.

      2 years ago Log in to Reply
    16. Douglas Halford

      Medicare has policies which cause me problems constantly. I use CGM. Their policy is to renew after 31 days when a box lasts 30 days. After a few months I am many days without CGM sensor which is extremely dangerous for me since I am totally hypoglycemic unaware. And since I use a Dexcom G6, they do not cover test strips. For infusion sets they require you to use them for 3 days. I have been using a pump since 1979 so I rotate sites frequently. Some I use get peeled up due to rubbing so I use them for 2 days again causing me to be short. Thankfully, my Dr. provides me a few extra infusion sets or Dexcom Sensors when needed. Finally if on a pump, they require you to use it past the warranty date for a year before they will replace. They obviously do not look out for the patient.

      1
      2 years ago Log in to Reply
      1. ANN GALLUZZO

        Medicare goes along with the manufacturer’s recommendations for infusion sets. I use Trusteel and the manufacturer recommends changing these every 2 days, which is what I need to do. Medicare pays for 45 every 90 days, no problem.

        2 years ago Log in to Reply
    17. Donna Condi

      I had a stockpile of supplies before going on Medicare but used much of my stockpile while waiting for the supplies to start coming. I ended up having to pay for a month of Dexcom’s because they didn’t arrive in time. I didn’t know all the Medicare rules before I began which slowed down the process even more. And neither my endo’s office nurse nor Walgreens staff helped with my confusion.
      I had just gone through breast cancer and found changing to Medicare and trying to get my diabetes supplies was much harder.

      2 years ago Log in to Reply
    18. Nicholas Argento

      The current requirements for Medicare pump coverage require you prove you make little insulin or have anti-beta cell antibodies, and also requires you to be re-evaluated every 3 months indefinitely, regardless of medical need or individual circumstances, in order to get pump supplies. This later requirement has no basis in evidence and puts people at risk: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7196863/ . Medicare officials have not been willing to change any of the policies despite being presented with that and a lot of other evidence of adverse effects if the policies.
      Maybe if enough voters complain to their US senators and detail the problems these policies cause, they would pressure Medicare to update it policies.

      1
      2 years ago Log in to Reply

    If you have transitioned to Medicare from private insurance, did you at first have to go any amount of time without a pump or CGM because you did not meet all of Medicare’s coverage requirements? Cancel reply

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