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  • Activity
    • 3 hours, 24 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 3 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 3 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 4 hours, 39 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 4 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 4 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 4 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 4 hours, 46 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 4 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 4 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 4 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 4 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 5 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 5 hours, 32 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 5 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 5 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 5 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 5 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 5 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 5 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    In honor of National Siblings Day, if you have T1D, did you also have a sibling growing up who had T1D? Tell us about what that was like in the comments!

    Home > LC Polls > In honor of National Siblings Day, if you have T1D, did you also have a sibling growing up who had T1D? Tell us about what that was like in the comments!
    Previous

    If you have T1D, have any of your siblings been screened for T1D antibodies?

    Next

    If you have transitioned to Medicare from private insurance, did you at first have to go any amount of time without a pump or CGM because you did not meet all of Medicare’s coverage requirements?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. Ahh Life

      No siblings, no aunts, no uncles, no cousins, no parents, no offspring have ever had T1D. And those people number 4 or 5 dozen. I am the sole lucky winner. Sigh! 💪( ͡❛ ‿ ͡❛҂)

      2
      2 years ago Log in to Reply
    2. Bill Williams

      My grandmother had T1D but none of her children, grandchildren or great grandchildren have had it except yours truly. My siblings were, however, the beneficiaries of a diet ruled by “Exchanges”.

      2 years ago Log in to Reply
    3. Verna Holcomb

      I was the only sibling really “growing up”, but my youngest sister was diagnosed in her teens, when I was away at college. That was a long night! My whole family (we’re 2 of 4 kids) was pretty on top of the whole insulin thing, partly because our father was also on insulin as a T2D. I was very lucky to not be alone as a kid – even if I was the only kid in my town with T1D!

      2 years ago Log in to Reply
    4. Bob Durstenfeld

      I had two out of three younger siblings with T1D, my dad also had it. It was the “normal” in our hour. Every one on the diabetes diet. In my house, my eldest of three sons has T1D and his daughter has it as well.

      2 years ago Log in to Reply
    5. Michelle Saunders

      My younger sister has type 1 also. We didn’t know the other existed until 9 years ago.I was 7 and she was 9 at diagnosis. She is 12 years younger than I am. We both share the same sad.

      2 years ago Log in to Reply
    6. connie ker

      I became a T1D at the age of 49 going through menopause (LADA). My brother was diagnosed with type 2 in the same year and is presently on insulin too. So we made it into later years, but we’re on the same insulins with MDI. I wear the Freestyle Libre which is so helpful for me living alone. He does not wear a CGM.

      2 years ago Log in to Reply
    7. Daniel Bestvater

      Three siblings. Each one of us has a different auto immune disease; type 1, rheumatoid arthritis, Crohn’s and celiac disease.

      2 years ago Log in to Reply
    8. Donna Brownley

      I am (was) an identical twin. When my sister and I were 11yrs old, she developed T1D. I was told that because we were identical, I would develop it too. I became T1D when I was 16 yrs old (Nov. 1977). We took different paths in caring for ourselves. She didn’t follow health recommendations and I did. She passed away from complications in 2003, just before our 42nd birthday. To this day, I do not have any complications.

      2 years ago Log in to Reply
    9. Jana Foley

      I am the only one of four children in my family to have T1D, but I have two of four children with it. My youngest two both have it and on their dad’s side of the family it is quite prevalent with one of his sisters, and several of his nieces and nephews also having it. .

      2 years ago Log in to Reply
    10. HMW

      My sister has the auto-antibodies but did not get type 1 diabetes.

      2 years ago Log in to Reply
    11. Amanda Barras

      N/A No sibling.

      2 years ago Log in to Reply
    12. Janis Senungetuk

      N/A , no siblings.

      2 years ago Log in to Reply
    13. George Lovelace

      4 Brothers, all of whom have had some signs but never developed T1. One brother did have a T1 daughter.

      2 years ago Log in to Reply
    14. Christina Trudo

      Other- I have a sibling with T1, he is 6 years younger than I, so when he was diagnosed at 18 it was no longer our “growing up” years. (I had been diagnosed 13 years earlier).

      2 years ago Log in to Reply
    15. Carol Meares

      I was dxd at 39 and my younger sister was dxd around 3 years ago at age 60 I think. I am now 67. We didn’t grow up together with it but are now both on TSlim and Dex. We talk about management quite a bit but live in different States so haven’t seen each other lately because of CoVid.

      2 years ago Log in to Reply
    16. LizB

      I was diagnosed Type 1 at age 19 with zero history of diabetes on either side of my family. I remember the doctor in the hospital being surprised there was no family history and saying, “Well, sometimes it just happens”. 25 years later my sister was diagnosed with Type 1 in her late 40s. So we definitely did not grow up with it together.

      2 years ago Log in to Reply
    17. Ita Shapiro

      Both I and my beloved brother were diagnosed with t1d later in life
      Sadly, he passed away from DKA 20 months ago.

      2 years ago Log in to Reply
    18. Kristine Warmecke

      Yes, my younger brother was diagnosed 10 years before I was. He never wanted anyone to know he had it & is still like that, I on the other hand could careless who know’s I am. It was nice to have someone to share the frustrations with, we still do, and “I guess what I did” who understands.

      2 years ago Log in to Reply
    19. Henry Renn

      I was diagnosed at age 4 yrs, 7 mos. I knew T1 was a pain in the backside but I never realized that it was a terrible disease until one day, at 5:30 AM, eating breakfast with my Dad before school. I was 15+ years old & had T1 for 10 years. He told me that my youngest sister was diabetic & that my mother had been crying all night long. Dawned on me then that diabetes must be a really, really bad thing to have. I did not yet use the word, disease.

      2 years ago Log in to Reply
    20. Sue Herflicker

      Thats a hard one to answer because my brother was diagnosed at 4 years old and i wasn’t diagnosed until I was 57 so, yes I had a brother with diabetes growing up, but I myself wasn’t until 4 years ago. I did however raise 2 T1D boys, both diagnosed very young.

      2 years ago Log in to Reply
    21. Mark Fuller

      My brother was diagnosed at age 32 and I was diagnosed at age 42. Although we didn’t grow up with T1D ourselves, our grandfather and great grandmother on our mother’s side of the family both had T1D. Believe me it was difficult to witness what they had to go through to manage their diabetes back in the 1950’s and 1960’s.

      2 years ago Log in to Reply
    22. Kaylea Bowers

      I’m the oldest of four and was the first person in my family (any generation) to be diagnosed with T1D — just before my 11th birthday and I was probably a day or two from death (DKA + cerebral edema). One of my little sisters was diagnosed almost 8 years later, also around age 11 but didn’t get nearly as sick because we knew what the signs were. My baby brother was diagnosed 9 years after that at age 16 and was totally fine at diagnosis other than drinking/peeing a lot — that was the only warning sign my mom needed to take him in, and we were able to check his blood sugar before going to the hospital and it was in the upper 200s I think. My 29-year-old sister seems to be in the clear, and I pray she stays that way!

      I hate that 3 of us have T1D, but I’m so glad I was the first one to get it so I could be a resource for my younger siblings. And it’s a blessing that we all can understand what each other is going through.

      2 years ago Log in to Reply

    In honor of National Siblings Day, if you have T1D, did you also have a sibling growing up who had T1D? Tell us about what that was like in the comments! Cancel reply

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