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    • 10 hours, 48 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      It helped me track when and how much insulin I had injected. It also would show me how much I had on board so if I needed to take additional insulin it would help me not to stack too much at a time.
    • 10 hours, 48 minutes ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      I love it! Can't live without one.
    • 17 hours, 36 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 17 hours, 36 minutes ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 1 day, 8 hours ago
      Janis Senungetuk likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 1 day, 16 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 day, 16 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 16 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
    • 1 day, 17 hours ago
      Bill Williams likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 day, 18 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
    • 1 day, 18 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 18 hours ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.
    • 1 day, 18 hours ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 1 day, 18 hours ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 1 day, 19 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 day, 21 hours ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 22 hours ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I am required to see my Endo every three months by Medicare. Otherwise, I'd probably go 2 times per year.
    • 1 day, 22 hours ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I didn't have to change but I couldn't get a new one from Caremark because it wasn't on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!
    • 2 days, 15 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.
    • 2 days, 15 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 2 days, 15 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan) I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!
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    In honor of National Siblings Day, if you have T1D, did you also have a sibling growing up who had T1D? Tell us about what that was like in the comments!

    Home > LC Polls > In honor of National Siblings Day, if you have T1D, did you also have a sibling growing up who had T1D? Tell us about what that was like in the comments!
    Previous

    If you have T1D, have any of your siblings been screened for T1D antibodies?

    Next

    If you have transitioned to Medicare from private insurance, did you at first have to go any amount of time without a pump or CGM because you did not meet all of Medicare’s coverage requirements?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. Ahh Life

      No siblings, no aunts, no uncles, no cousins, no parents, no offspring have ever had T1D. And those people number 4 or 5 dozen. I am the sole lucky winner. Sigh! 💪( ͡❛ ‿ ͡❛҂)

      2
      3 years ago Log in to Reply
    2. Bill Williams

      My grandmother had T1D but none of her children, grandchildren or great grandchildren have had it except yours truly. My siblings were, however, the beneficiaries of a diet ruled by “Exchanges”.

      3 years ago Log in to Reply
    3. Verna Holcomb

      I was the only sibling really “growing up”, but my youngest sister was diagnosed in her teens, when I was away at college. That was a long night! My whole family (we’re 2 of 4 kids) was pretty on top of the whole insulin thing, partly because our father was also on insulin as a T2D. I was very lucky to not be alone as a kid – even if I was the only kid in my town with T1D!

      3 years ago Log in to Reply
    4. Bob Durstenfeld

      I had two out of three younger siblings with T1D, my dad also had it. It was the “normal” in our hour. Every one on the diabetes diet. In my house, my eldest of three sons has T1D and his daughter has it as well.

      3 years ago Log in to Reply
    5. Michelle Saunders

      My younger sister has type 1 also. We didn’t know the other existed until 9 years ago.I was 7 and she was 9 at diagnosis. She is 12 years younger than I am. We both share the same sad.

      3 years ago Log in to Reply
    6. connie ker

      I became a T1D at the age of 49 going through menopause (LADA). My brother was diagnosed with type 2 in the same year and is presently on insulin too. So we made it into later years, but we’re on the same insulins with MDI. I wear the Freestyle Libre which is so helpful for me living alone. He does not wear a CGM.

      3 years ago Log in to Reply
    7. Daniel Bestvater

      Three siblings. Each one of us has a different auto immune disease; type 1, rheumatoid arthritis, Crohn’s and celiac disease.

      3 years ago Log in to Reply
    8. Donna Brownley

      I am (was) an identical twin. When my sister and I were 11yrs old, she developed T1D. I was told that because we were identical, I would develop it too. I became T1D when I was 16 yrs old (Nov. 1977). We took different paths in caring for ourselves. She didn’t follow health recommendations and I did. She passed away from complications in 2003, just before our 42nd birthday. To this day, I do not have any complications.

      3 years ago Log in to Reply
    9. Jana Foley

      I am the only one of four children in my family to have T1D, but I have two of four children with it. My youngest two both have it and on their dad’s side of the family it is quite prevalent with one of his sisters, and several of his nieces and nephews also having it. .

      3 years ago Log in to Reply
    10. HMW

      My sister has the auto-antibodies but did not get type 1 diabetes.

      3 years ago Log in to Reply
    11. Amanda Barras

      N/A No sibling.

      3 years ago Log in to Reply
    12. Janis Senungetuk

      N/A , no siblings.

      3 years ago Log in to Reply
    13. George Lovelace

      4 Brothers, all of whom have had some signs but never developed T1. One brother did have a T1 daughter.

      3 years ago Log in to Reply
    14. Christina Trudo

      Other- I have a sibling with T1, he is 6 years younger than I, so when he was diagnosed at 18 it was no longer our “growing up” years. (I had been diagnosed 13 years earlier).

      3 years ago Log in to Reply
    15. Carol Meares

      I was dxd at 39 and my younger sister was dxd around 3 years ago at age 60 I think. I am now 67. We didn’t grow up together with it but are now both on TSlim and Dex. We talk about management quite a bit but live in different States so haven’t seen each other lately because of CoVid.

      3 years ago Log in to Reply
    16. LizB

      I was diagnosed Type 1 at age 19 with zero history of diabetes on either side of my family. I remember the doctor in the hospital being surprised there was no family history and saying, “Well, sometimes it just happens”. 25 years later my sister was diagnosed with Type 1 in her late 40s. So we definitely did not grow up with it together.

      3 years ago Log in to Reply
    17. Ita Shapiro

      Both I and my beloved brother were diagnosed with t1d later in life
      Sadly, he passed away from DKA 20 months ago.

      3 years ago Log in to Reply
    18. Kristine Warmecke

      Yes, my younger brother was diagnosed 10 years before I was. He never wanted anyone to know he had it & is still like that, I on the other hand could careless who know’s I am. It was nice to have someone to share the frustrations with, we still do, and “I guess what I did” who understands.

      3 years ago Log in to Reply
    19. Henry Renn

      I was diagnosed at age 4 yrs, 7 mos. I knew T1 was a pain in the backside but I never realized that it was a terrible disease until one day, at 5:30 AM, eating breakfast with my Dad before school. I was 15+ years old & had T1 for 10 years. He told me that my youngest sister was diabetic & that my mother had been crying all night long. Dawned on me then that diabetes must be a really, really bad thing to have. I did not yet use the word, disease.

      3 years ago Log in to Reply
    20. Sue Herflicker

      Thats a hard one to answer because my brother was diagnosed at 4 years old and i wasn’t diagnosed until I was 57 so, yes I had a brother with diabetes growing up, but I myself wasn’t until 4 years ago. I did however raise 2 T1D boys, both diagnosed very young.

      3 years ago Log in to Reply
    21. Mark Fuller

      My brother was diagnosed at age 32 and I was diagnosed at age 42. Although we didn’t grow up with T1D ourselves, our grandfather and great grandmother on our mother’s side of the family both had T1D. Believe me it was difficult to witness what they had to go through to manage their diabetes back in the 1950’s and 1960’s.

      3 years ago Log in to Reply
    22. Kaylea Bowers

      I’m the oldest of four and was the first person in my family (any generation) to be diagnosed with T1D — just before my 11th birthday and I was probably a day or two from death (DKA + cerebral edema). One of my little sisters was diagnosed almost 8 years later, also around age 11 but didn’t get nearly as sick because we knew what the signs were. My baby brother was diagnosed 9 years after that at age 16 and was totally fine at diagnosis other than drinking/peeing a lot — that was the only warning sign my mom needed to take him in, and we were able to check his blood sugar before going to the hospital and it was in the upper 200s I think. My 29-year-old sister seems to be in the clear, and I pray she stays that way!

      I hate that 3 of us have T1D, but I’m so glad I was the first one to get it so I could be a resource for my younger siblings. And it’s a blessing that we all can understand what each other is going through.

      3 years ago Log in to Reply

    In honor of National Siblings Day, if you have T1D, did you also have a sibling growing up who had T1D? Tell us about what that was like in the comments! Cancel reply

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