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  • Activity
    • 8 hours, 29 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 8 hours, 36 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 9 hours, 2 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 38 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 38 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 58 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 13 hours, 59 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 59 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 14 hours, 19 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 9 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Home > LC Polls > If you have T1D, have any of your family members listed below also had T1D? Select all that apply.
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    Do you think your (or your child’s) performance in school was affected by T1D?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    36 Comments

    1. Anne Blayney

      My grandmother’s cousin had T1D and passed away in the period between insulin being discovered, and insulin actually being refined and produced in enough quantities to be available as a treatment. (Imagine what that was like for the family!)

      2 years ago Log in to Reply
    2. Gary Taylor

      I was diagnosed when I was 18. My eldest child, a daughter, was diagnosed when she was 23 (or so?). I hope her children (2 daughters) do not also become T1D.

      2 years ago Log in to Reply
    3. TEH

      I think I had the right combination of propensity, environmental codituons and my kids getting the chicken pox to get T1

      2 years ago Log in to Reply
      1. Barb Robertson

        I also became t1 within 1 1/2 months after I’d gotten the chicken pox in 1962. I’m a big believer a virus can indeed cause t1

        2 years ago Log in to Reply
      2. Jneticdiabetic

        Chicken pox was also one theory behind my T1D diagnosis. I had a severe case of chicken pox on my 16th birthday. Diagnosed with T1D two years later.

        2 years ago Log in to Reply
      3. ConnieT1D62

        I was diagnosed at age 8 a few months after having the mumps. My brother and cousins all had the mumps at the same time, but I was the only one who developed T1D.

        2 years ago Log in to Reply
    4. connie ker

      I was married to a T1D and 16 years later I became a T1D with LADA. 4 years after that, one of our sons became a juvenile T1D. So there were 3 of us living under the same roof at the time. No one knows what triggers this disease, but if it is a virus maybe that is what happened to us??????

      2 years ago Log in to Reply
    5. Kaylea Bowers

      I’m the oldest and was diagnosed in 2000 at almost 11 years old. One of my sisters was then diagnosed in 2008 at 10 years old, and my brother was diagnosed in 2017 at 16 years old. No issues for my other sister and no other family history, so we have no idea why three of us were affected!

      1
      2 years ago Log in to Reply
    6. Kristine Warmecke

      Oops I answered incorrectly. I have 1 sibling and other non-first degree relatives.

      2 years ago Log in to Reply
    7. Retired and glad

      I was initially diagnosed with Type 2 in 1985. A year or so later we recognized my daughter was exhibiting diabetic symptoms and learned she had T1D at age 8. I have since been “upgraded” to LADA in 1993 and she has lived with her T1D for 38 years.

      2 years ago Log in to Reply
    8. M C

      I selected 0 family with T1D…. as none had developed T1D in a “natural” way…. One aunt, who was diagnosed with T1D after a severe car accident that crushed her pancreas, The other relative is my father, who had cancer treatments that weakened other internal organs, including the pancreas. He’d never even had Type 2 Diabetes. While still undergoing treatments, and 6 weeks after losing the love of his life, my mother, he developed T1D (combination of the weakened organ and shock). Doctors were confounded, as he became T1D at the age of 82, but the proof was in the monthly blood tests done, all showing normal blood glucose levels, as his cancer was being treated for the 2 years prior to the diagnosis!

      2 years ago Log in to Reply
    9. Bill Williams

      My grandmother is the only one that I know of.

      2 years ago Log in to Reply
    10. Danielle Eastman

      Absurdly, both parents, who can get us to 1%?

      2 years ago Log in to Reply
    11. Natalie Daley

      My grandmother was diagnosed in her forties as Type 2 and given pills

      2 years ago Log in to Reply
    12. Rebecca Lambert

      I was diagnosed as an adult (mid forties) with no family history. Since them my mother and uncle have been diagnosed (in their late sixties).

      2 years ago Log in to Reply
    13. Natalie Daley

      To continue: my brother was diagnosed at 23, and the Type 1 diagnosis was a 40th birthday present. Years after I realized my grandmother was also late onset Type 1. She died of gangrene to the misery and horror of her family at age 45 in 1933. I wasn’t treated as a Type 1 until I had lost 35 lbs at my doctor and a dietitian’s Rx and years later when they checked I had an A1c of 12. I then started on insulin.

      2 years ago Log in to Reply
    14. Bob Durstenfeld

      My dad was the first in his family to be diagnosed, in 1931, just after insulin was commercialized. He was an only child at the suggestion of my grandparents family doctor. I was diagosed at 18 months of age, two out of three younger brothers were diagnosed at ages four and six. My eldest of three sons was diagnosed with T1D at eight months of age, so far my two other sons are fine. My eldest son’s daughter was diagnosed at 18 months.

      2 years ago Log in to Reply
      1. Mary Coleman

        My mother was also diagnosed around 1930 31 at 11 years of age. I’ll be forever grateful that insulin was available to her. I was diagnosed with T1D at 40.

        2 years ago Log in to Reply
    15. William Bennett

      My first cousin’s daughter (i.e., second cousin). Otherwise no other cases in my very large extended family. No one with T2 either, afaik.

      2 years ago Log in to Reply
    16. Ahh Life

      17 blood relative aunts & uncles, 28 cousins, 3 siblings, 2 parents all add up to a grand total of zero. Guess I am the winner and new champeen weighing in at 154 pounds. Lucky me. I won the luck of the heterozygote draw. (>‿◠)✌

      2 years ago Log in to Reply
    17. Christina Trudo

      a brother, and his son (my nephew.) no ancestors that we know of. My sister has been type 2 for many years and is now undergoing a change which could signal the onset of “type 1.5” or other.

      2 years ago Log in to Reply
    18. Carol Meares

      One sister is also LADA and 2 cousins once removed are juvenile T1D

      2 years ago Log in to Reply
    19. Janis Senungetuk

      My maternal grandfather had T1D, dx as a young adult just as insulin was made available, and my second cousin on my father’s side was dx. as a young child.

      2 years ago Log in to Reply
    20. Cyndi Nader

      Interesting 44% no relatives with T1D. I think we need to be researching what in our environment or food that our body are reacting to setting of T1D. I was 27 athlete when diagnosis. People get T1D and T2D mixed up. I wast 5’6″ 125-130 lbs. Not overweight.

      2 years ago Log in to Reply
    21. Amy Jo

      While I am the only T1D in my (very large) extended family, interestingly my maternal grandmother, my mom, and her 7 sisters all have autoimmune hypothyroid.

      2 years ago Log in to Reply
    22. Bekki Weston

      My older brother (by 3 yrs) was dx about 15 years ago; we were all in a quandary, as no known family history; then I was dx about about 6 years ago at age 58. I was going thru a very stressful period in my life prior to that.

      2 years ago Log in to Reply
    23. Molly Jones

      I’m the only one with T1D, but everyone in my mother’s side has hypothyroidism and many others have other autoimmune conditions.

      2 years ago Log in to Reply
    24. kilupx

      My brother (1.5 years older) was diagnosed at age 10. I was diagnosed with LADA at age 66. No other type 1s in the family though my father and his sister suffered from terrible autoimmune psoriasis and I have hypothyroidism and rheumatoid arthritis.

      2 years ago Log in to Reply
    25. Janice B

      My Grandfathers sister had T1D. She was diagnosed in the late 1920’s. Lived to be 65 which I think was remarkable at the time

      2 years ago Log in to Reply
    26. Donna Condi

      At 42 I was diagnosed as T2 and went on insulin two years later. It was two years later after that when I officially heard from my endo that I was a T1 diabetic. At 50 my younger brother was put on T2meds. A few years later he was put on Lantus. And about two years later he began taking Humalog with meals. As far as I know he has never been told he is T1.

      2 years ago Log in to Reply
    27. Ahh Life

      Answers are fascinating in their distinctiveness and diversity. Some humorous, some helpful, and some downright deadly. It’s a wonder any of us survived. But thanks for the shot at it Drs. Banting and Best. ʕ( ͡❛ ͜ʖ ͡❛)ʔ ʕ( ͡❛ ͜ʖ ͡❛)ʔ

      2 years ago Log in to Reply
    28. Henry Renn

      Correction: I’m almost 70, dx age 4.5 , my sister age 60 was dx around same age. I was 2nd child of 4 & sister was last of 4. I sister almost 65 had severe allergies & asthma.
      Although there had been T2 diabetes in previous generations I was 1st T1 in immediate & extended family. Other T1’s – Maternal side: 1st cousin, female 3 yr younger, dx age 5; 2 daughters of 8 yr older male cousin.
      Paternal – I was 1st T1; 1 older, male 1st cousin’s son dx very young.
      So far no other individuals of any generation of my family have developed T1.

      2 years ago Log in to Reply
    29. Daria Korkuna

      I don’t have a T1D, but my son and my mom have it.

      2 years ago Log in to Reply
    30. Germaine Sarda

      I was dx’d at 8, brothers were at 25 and 30, one niece at 8, three nephews at 12, 18 and 24. My brother says we don’t have a gene pool, but rather a genetic cesspool.

      We’re pretty sure our Great Grandmother died from T1 in 1915 since she was robust, took ill and died a month later of what they deemed “the decline”.

      We continue to hope that we seven are all it will hit.

      2 years ago Log in to Reply
    31. keith johnson

      I really feel like I have two paternal aunts with type 1 diabetes. I also have one first cousin and one second cuz its in with type 1 diabetes. Distantly I have to type 1 diabetic it’s not related by blood

      2 years ago Log in to Reply
      1. keith johnson

        opps. Speech to text. I have one paternal aunt, one first cousin, a second cousin, and an non biological aunt with T1D

        2 years ago Log in to Reply

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