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    • 3 hours, 53 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 3 hours, 54 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 3 hours, 55 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 3 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 2 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 20 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 20 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    If you have (or your child has) experienced diabetes burnout (feeling run down and not managing your diabetes in the way you normally would), how do you usually handle it? Select all that apply.

    Home > LC Polls > If you have (or your child has) experienced diabetes burnout (feeling run down and not managing your diabetes in the way you normally would), how do you usually handle it? Select all that apply.
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    Were you misdiagnosed with another condition before you were diagnosed with T1D?

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    If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    36 Comments

    1. Kristine Warmecke

      When my brother and I were younger (under 15) if they saw one of struggling big time with not wanting to manage our T1D, they would give us a “vacation from management”. Usually just a day of not doing our own injections and testing. A lot easier back in the days of urine testing and set insulin regimens.

      1
      1 year ago Log in to Reply
    2. Amanda Barras

      I also seek new therapies or medication that can make it easier to reach my goals.

      1
      1 year ago Log in to Reply
    3. Edward Geary

      Experience has taught me the “diabetes” is ultimately my problem to solve. So, with assistance if necessary, I start “drilling down” to identify the problem and patiently build back the mental stamina to cope with a situation that will not completely disappear and cannot be denied or ignored. This, in part, is why it’s such a lonely disease. Family particularly spouses can be supportive but in the end it’s between us and the diabetes. Stoicism helps acceptance. In health.

      5
      1 year ago Log in to Reply
    4. Steve Gold

      I’d seek out someone to chat with.
      When it comes to advice on Type 1, aka “insulin dependent” aka “IDDM” aka Juvenile onset it’s had many names over the 40 years I’ve had it there is one common theme there few people know about the practical aspects of Type 1. For me, I’ve found the best place to go is a medical professional that happens to have type 1. I’ve got the best advice from a MD, Nurse Practitioner and even a nutritionist that happens to have Type 1. Next in line are other diabetics there you must be a little careful that their opinions are based in facts, not something else. The list goes on… You just need to think about the person giving the advice.

      3
      1 year ago Log in to Reply
    5. AnitaS

      I don’t technically know if I get burn-out, but if I get slightly lax on keeping an eye out on my sugar levels, I don’t worry about it as by the next day I am ready to start being better about trying to keep my sugar levels where I want them.

      1
      1 year ago Log in to Reply
    6. Lynn Smith

      I pray. Along with all the other things in life that I talk to God about, I pray for Him to help me with my feelings of being overwhelmed by my health issues. Just talking to Him about it brings a sense of His presence and comfort.

      3
      1 year ago Log in to Reply
    7. KCR

      Meditation and self-compassion practices help me recenter when I feel overwhelmed by dealing with diabetes.

      5
      1 year ago Log in to Reply
    8. Drina Nicole Jewell

      When my son’s starts feeling the burnout he comes to me and asks me to step in and take over management for awhile. As for myself, I mean there isn’t anyone I can ask for help other than my son and I’m not putting that on him. So I push through.

      2
      1 year ago Log in to Reply
    9. Ernie Richmann

      Not sure I have had diabetes burnout but there have been times when I have been way lax on my diet- eating foods on the “do not” list. I exercise almost daily which I would do with or without diabetes just because I like to move- hiking, biking, walking, strength training.

      2
      1 year ago Log in to Reply
    10. Chris Albright

      I sometimes get frustrated managing this T1 disease but have never given up the daily efforts to manage thru it. There is not an option, you just have to ‘suck it up’ and work thru the grind……

      4
      1 year ago Log in to Reply
    11. Jneticdiabetic

      I have definitely felt burnt out, but not to be the point that I stopped taking care of myself. I have used a lot of the listed strategies to help when my T1D gets extra frustrating. Also had to learn to go easy on myself. Somedays T1D has a mind if it’s own.

      3
      1 year ago Log in to Reply
    12. Andrew Stewart

      My burnout is not from managing my diabetes but from not doing it well. I’m very results oriented and want to do everything to the best of my abilities but the T1D game of maximizing TIR (time in range) is a game where it seems the rules constantly change. We all know this but still get caught trying for perfection at the micro level rather than the bigger picture (macro level). I need to remember that T1D is a marathon, not a sprint and it’s okay to slow down (insert your T1D pitfalls here) but keep going, it’s a slow process but quitting won’t speed it up.

      #BeWell

      10
      1 year ago Log in to Reply
      1. sweet charlie

        Yes!! I have lasted 69 years from age 21 without micro manageing T1D…

        1
        1 year ago Log in to Reply
    13. Ahh Life

      The question seriously lacks at least one answer:

      “I do not experience burn out. Ever.”

      After 71 years of doing the T1D “thing,” I have eyes burn out, nerves burn out, joints burn out, pancreas burn out. But the whole human being package? Not ‘til I’m nailed in the pine box. Then, you can do all the burning you want. 🔥

      6
      1 year ago Log in to Reply
    14. Keith LeMar

      I haven’t experienced diabetes burnout during over 55 years with T1D, but I do get very frustrated with the expense of managing the condition.

      2
      1 year ago Log in to Reply
      1. sweet charlie

        Me also!!! I think insulin price was about $1.00 a vile 70 years ago..

        1 year ago Log in to Reply
    15. George Lovelace

      58 yrs, been a few frustrations mostly dealing with Insurance lately. As far as control my Diabuddies and my Endo are my “go to’s”

      2
      1 year ago Log in to Reply
    16. Janis Senungetuk

      I’ve told others to “keep on trucking” and try hard to practice that myself. Conversations with the DOC for practical solutions can help when I clearly know what I’m having the most problems with. Asking my CDE for help has sometimes been useful, but her available time is strictly limited by her employer. So, I keep pushing myself to get up and keep moving forward.

      1
      1 year ago Log in to Reply
    17. TomH

      Yell and scream at the world…then get back to business.

      3
      1 year ago Log in to Reply
      1. Eileen Wagner

        If I could send you a picture I would! Are you on Facebook? I can look you up. 😊

        1 year ago Log in to Reply
    18. Eileen Wagner

      I was experiencing severe burnout after 35 years. I decided to get a diabetic tattoo. Not everyone’s thing, but it worked for me. 😁

      1
      1 year ago Log in to Reply
      1. Ms Cris

        I have been itching for my next tattoo, and get into this space with my burnout, too. I’m only 6 years in, but I am soooo sensitive (to insulin, carbs, and protein) and the frustration with that sensitivity gets to me. Little room for error. I love tattoos and piercings, they lift my spirits.

        1
        1 year ago Log in to Reply
    19. Lawrence S.

      Sometimes I feel overwhelmed dealing with the day to day high and low blood sugars. That, combined with the never ending daily stressors. I start thinking that there has to be a break coming. But, there is not. My best go to, to get through, is going out for a run or a bike ride. Occasionally, a walk. Then, get on with the next chore.

      1
      1 year ago Log in to Reply
    20. Patricia Dalrymple

      Before I was diagnosed (I’m LADA), I had to have my right nostril removed for a benign tumor that was growing aggressively. My plastic surgeon, a wonderful man, had done his residency in a burn unit. Whenever I am feeling sorry for myself, I remember the people who are way worse off than I am, I say a grateful prayer of thanks, I cheat a little (usually occurs after my Endo appt when I get good reviews) and get back in the wagon. I tell my husband when I go low: what a great disease – I have to eat to make myself better. I am positive by nature which makes life much easier to bear. Beats the alternative. Stay well my warriors.

      4
      1 year ago Log in to Reply
    21. Ms Cris

      First, I fully own the anger/frustration: yell, feel it, acknowledge it.

      Second, I tell myself I’m doing my personal best right now, that hour, that day. I’m stepping in to do the meticulous job of the pancreas: how the hell can I be expected to do as well 24/7? Be easy on myself.

      Third, I am lucky to have a therapist who specializes in major life changes – like T1D. Thanks to her, I have tools/methods to get me through these episodes. And she’s someone I can unload on, be honest with. I hate being a burden on my family and friends, she takes that on so I can have better personal relationships.

      I re-read The Four Agreements/Fifth Agreement over and over.

      1
      1 year ago Log in to Reply
    22. Molly Jones

      I chose N/A as I don’t think I have had been burnt out in any of my medical conditions enough to become lackadaisical. The future of this body and brain are reminders to try and stay on top.

      1 year ago Log in to Reply
    23. ConnieT1D62

      When it happens, I let it all hang out and fall down and then pick myself up, dust myself off, and get back on track all over again. Diabetes burn-out episodes are rare and usually don’t last very long when they do happen because after 60 years of living with T1D doing what need to be done to function as my own beta cells comes second nature to me. I take full responsibility to do what needs to be done to manage my self-care choices and routines because I cannot rely on anyone else to do if for me.

      1
      1 year ago Log in to Reply
      1. Tom Rintelmann

        I concur with Connie. After 42 years with T1D, an occassionalburnouthappens.
        It’s my responsibility, but venting to my wife for a day helps. Like Connie I just pick myself up and remember why I need to remain diligent.

        1
        1 year ago Log in to Reply
    24. Stephen Woodward

      “Oh sh-*, F~!%, D@mi+, As*$”e Get Over it!” Short and sweat, then dive back in and get on with it, it will be ok.

      1 year ago Log in to Reply
    25. James Hoare

      sleep, perchance to dream, wake up, start again.

      1
      1 year ago Log in to Reply
    26. Katie L

      I feel like there should have been an option for “get really frustrated and depressed for a while”.

      2
      1 year ago Log in to Reply
    27. Wanacure

      Diabetes burnout? I don’t think that burns me out. It’s everything else! Trump, the January 6 insurrection, my frustration with getting online, my cellphone frustration, having to mow the damn lawn, my messy house, the cost of maintenance, money worries, these are just some of the things that burn me out. I don’t have time or space for diabetes burnout. In addition to the 5 “handles” I checked, I’ve found keeping a daily written record of feelings, goals, accomplishments, questions, problems is very helpful. Cognitive behavioral therapy helps. So does having lunch with friends, and playing scrabble, and just chilling out all at the local Senior Center. And there’s the public library. And PBS and NPR. In the past I handled stress by 6-8 drinks of alcohol (beer, dry wine, vodka, rum, whiskey, absinthe, ouzo, gin, scotch, etc) at home alone. My doctor told me not to keep booze at home; too tempting. Better I should go out for a drink socially. I’m fortunate to have several brew pubs within walking distance (1.5 miles) plus a saloon. One of them is dog friendly, so I could go there, pet dogs, savor a craft IPA followed by craft imperial stout while using the free WiFi, chat with friendly folks. But for the time being, I’m not drinking at all.

      1 year ago Log in to Reply
      1. Patricia Dalrymple

        I love this!

        1 year ago Log in to Reply
    28. Amanda Mitchell

      I don’t believe I’ve found a way to deal with burnout. Get angry and scream more. Create more colorful words to describe the pump. Throw something. Logical minds knows it’s stupid. Investing in a punching bag would be a better choice. When I’m done throwing a tantrum I usually just remind myself that it’s this or death, so I’d better buck up buttercup.

      1 year ago Log in to Reply
    29. Brad Larson

      Have learned for myself that burnout usually coincides with being out of control. Tighter control and physical activity cures it.

      1 year ago Log in to Reply
    30. Cheryl Seibert

      I chose Talk to my husband, figure it out myself (I debug every problem LOL!), and talk to my endo. I laughed at “Reduce stress”. Ha! Not possible…. but going outside and exercising helps with the stress.

      1 year ago Log in to Reply

    If you have (or your child has) experienced diabetes burnout (feeling run down and not managing your diabetes in the way you normally would), how do you usually handle it? Select all that apply. Cancel reply

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