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    • 2 hours, 7 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 2 hours, 10 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I had ketones thrn I am sick. If mid to large I wd call my endo or if also vomiting or dehydrated from diarrhea. I wd go to the ER
    • 3 hours, 24 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 3 hours, 25 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 3 hours, 32 minutes ago
      KSannie likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 3 hours, 34 minutes ago
      Patricia Dalrymple likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 3 hours, 48 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I increase my basal and insulin ratios if I eat until I show no longer test positive. I do only test if I have been high for a longer than usual time.
    • 3 hours, 48 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 4 hours, 10 minutes ago
      Judith Halterman likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 4 hours, 13 minutes ago
      Derek West likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 19 hours, 22 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 1 day, 1 hour ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 1 day, 3 hours ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 4 hours ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 22 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 3 days, 1 hour ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 3 days, 2 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 19 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 13 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 2 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 3 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
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    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Home > LC Polls > If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?
    Previous

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?

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    Do you currently have an unexpired glucagon kit? If so, what kind? If you have more than one unexpired glucagon kit, please select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    20 Comments

    1. Gary Taylor

      The group health insurance I am part of has 7 different plans. Some of them include the option of a FSA. My plan, however, includes the option of an Health Savings Account (HSA) which I use.

      1
      3 years ago Log in to Reply
    2. Gary Rind

      when I had insurance that had the FSA option, I used it.

      1
      3 years ago Log in to Reply
    3. TEH

      No, not per se. However my previous employer’s retirement benefit has an spending account that they fund to that covers my Gap plan cost.

      3 years ago Log in to Reply
    4. Kris Sykes-David

      We have BC/BS federal that has a program where you can earn money by answering questions, submitting A1C results, etc. I use the money for prescriptions, co-pays, dental visits. It isn’t a lot of money, but every bit helps! The money also carries over from year to year.

      1
      3 years ago Log in to Reply
    5. Jneticdiabetic

      Oops. I selected Other, but probably should have selected “N/A – I do not have health insurance that includes an FSA option”. I opt into FSA as a separate option through my employer provided benefits.

      3 years ago Log in to Reply
    6. Marty

      I might be wrong, but I don’t think retired people on Medicare can have an FSA since it’s an employee benefit.

      1
      3 years ago Log in to Reply
    7. AnitaS

      I don’t recall being offered an FSA since becoming retired

      3 years ago Log in to Reply
    8. BARRY HUNSINGER

      I have Medicare, does not include FSA.

      2
      3 years ago Log in to Reply
    9. Lori Lehnen

      We have excellent health insurance through my husband’s work that covers most procedures/equipment/ prescriptions in full or with a small copay. He set aside fsa $ one year but we had a tough time spending it all by the end of the year (it wasn’t even that much set aside). That, plus the amount of paperwork, my husband determined it wasn’t worth his effort for what turned out to be a small amount of tax savings.

      1
      3 years ago Log in to Reply
    10. Douglas Kosmicki

      High deductible plan with a health savings account

      1
      3 years ago Log in to Reply
    11. ELYSSE HELLER

      I have the ability to use a FSA with my insurance plan but I have never used it because I do not know much about it. I did hear from one coworker that she took the FSA option and that it was a PIA to use and would not recommend it.

      3 years ago Log in to Reply
      1. Dave Akers

        Just be aware any money you place into FSA from your paycheck and then do not use in course of a year, you loose that money.

        3 years ago Log in to Reply
    12. KarenM6

      I said “other” because I’m not sure if the HSA is different from the FSA… they must be different, I just am not sure how.
      But, I have an HSA.

      3 years ago Log in to Reply
    13. Cristina Jorge Schwarz

      I use the HSA instead, since I rollover any leftover funds and use them for life, tax free.

      3 years ago Log in to Reply
    14. Dave Akers

      I recently got what’s called an HSA. Similar to FSA but big difference it’s a rolling balance year over year. It never goes away like an FSA “use it or loose it policy”. My goal is to save for a couple decades in this HSA and when I retire I have a bill of non taxable cash to use for medical expenses.

      1
      3 years ago Log in to Reply
      1. Michael Andrews

        SAME

        3 years ago Log in to Reply
    15. stillarobyn

      I have an HSA – I selected “Other” in the poll

      3 years ago Log in to Reply
    16. PamK

      I have an HSA, not an FSA account – – am on a high deductible plan.

      3 years ago Log in to Reply
    17. Michael Andrews

      I chose to have a High deductible plan with an HSA, and the current goal is not to touch any of the HSA money but instead leave it invested for long-term medical costs for when I’m older, in retirement, or for dependent health care costs. I’ve maxed my contributions out for the last 3 years – I only wish I’d started doing the HSA sooner instead of an FSA, which I did for a few years prior to the switch (I’ve only had T1D for 6.5 yrs) but having 3 more years of invested HSA money would be great. There should be a way to do catch-up contributions to an HSA back to the time of a serious diagnosis like T1D since the costs are unknown prior to a diagnosis, they add up, and they’re long-term and constant. I also have 5 young girls (all under 7), so who knows how many costs we’ll have for them in the future. So far, they’re all healthy, and there’s no indication of any Auto-immune issues, and hopefully, there never will be. I was diagnosed at 38, so hopefully, my T1D is just a fluke thing.

      3 years ago Log in to Reply
    18. JuJuB

      Like so many others, I have an HSA, not an FSA account – – am on a high deductible plan.

      3 years ago Log in to Reply

    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA? Cancel reply

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