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    • 17 hours ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 17 hours, 1 minute ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 21 hours, 22 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 21 hours, 23 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 21 hours, 40 minutes ago
      Trina Blake likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I am curious. Do you routinely check the control glucose solution to be sure the meter is accurate?
    • 22 hours, 28 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 40 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 22 hours, 49 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 22 hours, 50 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 22 hours, 51 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 22 hours, 54 minutes ago
      Marthaeg likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 17 minutes ago
      Mike S likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 21 minutes ago
      KCR likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 22 minutes ago
      Jeff Marvel likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 1 day ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I use a CGM and my BG went over 180 seven times. Not unusual for BG go to 200+ after eating, then comes down. Yesterday and today my average BG was 150.
    • 1 day, 17 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 1 day, 17 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 1 day, 18 hours ago
      Lindsey Whitnell likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My "high" alarm is 130. When I hit that I consider: when I ate; could I have screwed up the bolus; what am I doing or will be doing; when I'll eat next. Rarely go over 150-160, by reacting and preventing highs found I actually use less insulin than just correct when it peaks....could never do this without a CGM I'm comfortable with, although with pens and an unmoving basel more fun (can't make fast adjustments for food, stress, heat, or activity). So the past several days zero over 180, just a few over 150.
    • 1 day, 20 hours ago
      Janis Senungetuk likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 20 hours ago
      Bruce Schnitzler likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      I had the same thing happen. I usually go below about 3 times but yesterday not at all. Amazing!
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      It's been an unusual 24 hours for me and I haven't gone below 70 at all. (If I'd a been asked last week, totally different answer!) :p But, I'm doing really great today. So... Yay! :D
    • 2 days, 9 hours ago
      ConnieT1D62 likes your comment at
      The food we choose to eat as people with T1D is so personal, and each food impacts every person differently. What foods do you prefer to eat for your first meal of the day? Share what works for you in the comments!
      I follow my wife’s old adage, “Eat breakfast like a king, lunch like a queen, and dinner like a pauper.” And in a very king-like fashion and since I am retired, I do it most mornings in a very leisurely 3 or 4 fashion. The best breakfasts, by far, are those you have with delightful conversationalists with people of wide-ranging interests. I start with 2 or 3 cups of strong, dark-roast black coffee, nursed liked an expensive cocktail rather than gulped. Then come berries—raspberries, black berries, blue berries, and a complete box of strawberries, followed by protein potions of turkey peperoni slices or an egg or two. The cereal consumed is a mix of three-Uncle Sam’s mixed with Grape Nuts mixed with All Bran. Either milk or yogurt is used to top the cereal. I know not the calories, but the carbs I can count down to the first decimal point. And decidedly, the meal’s main attributes are the time spent and the conversations.
    • 2 days, 10 hours ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    Clear All
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    If you are an adult with T1D, do you take medication to improve your kidney function? (ACE inhibitor)

    Home > LC Polls > If you are an adult with T1D, do you take medication to improve your kidney function? (ACE inhibitor)
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    36 Comments

    1. Lenora Ventura

      I began taking Lisinopril 2.5mg a few years back because my Endo recommended it for “protection” not improvement as recent studies have shown using it proactively. My kidneys are perfect after 37 years w/ T1D.

      1
      5 months ago Log in to Reply
      1. Barbara Bubar

        Yes, for prevention, a 2.5 mg. dose daily for the past year, after 72 years with Type 1.

        1
        5 months ago Log in to Reply
    2. LizB

      My current endo prescribed lisinopril last year. I do not currently have any kidney issues after 35 years with Type 1.

      1
      5 months ago Log in to Reply
    3. Becky Hertz

      Yes. I’m also taking Jardiance

      5 months ago Log in to Reply
    4. GLORIA MILLER

      I do not take anything since my kidneys are fine (so far) after almost 66 years T1.

      2
      5 months ago Log in to Reply
    5. anj1832

      My doctors told me to stop taking lisinopril when I was planning to get pregnant and told me to not resume it even after I had my son last December. They said if I’m planning to have more children, to not take it. However, if my lab results in February are elevated then I’ll probably go back on it.

      5 months ago Log in to Reply
    6. Greg Felton

      I was prescribed an ACE inhibitor more than 20 years ago as a precautionary measure. So far, so good.

      1
      5 months ago Log in to Reply
      1. Judith Marged

        Same with me…. no blood pressure problems, just taking mild dose Ace inhibitor for kidney protection for past 20 years.

        5 months ago Log in to Reply
    7. Kathy Hanavan

      I take it for BP (5 mgs) not for my kidneys. It seems that there is really no benefit to taking this as protection.

      1
      5 months ago Log in to Reply
      1. Kristine Warmecke

        I read many research papers in the early 2020’s saying that taking an ACE inhibitor could actually lead to CKD. I was shocked when I was reading these for my patient.

        5 months ago Log in to Reply
    8. Mick Martin

      Although I don’t take a medication to improve kidney function, I do take Lisinopril, a blood pressure, medication which has a protective effect on kidney function.

      Lisinopril inhibits the RAAS by blocking the action of Angiotensin II.

      1
      5 months ago Log in to Reply
    9. Gary Taylor

      I did for a while, but I developed a persistent annoying cough which is one of the side effects of ACE inhibitors.

      1
      5 months ago Log in to Reply
    10. Natalie Daley

      My doctor is the head of endochrinology and said Lisinipril and simvastanten are standard protocols for Type 1s; after almost 30 years of seeing him, he’s been right so far 😊

      5 months ago Log in to Reply
    11. Jneticdiabetic

      I was tried on a variety of low dose ACE inhibitors and angiotensin receptor blockers for kidney protection. My blood pressure was already on the low (barely among the living) side, so didn’t tolerate well. Prolonged dizziness upon rising. Stopped before starting my family due to fetal risks and was never restarted. That was 14 y ago.

      5 months ago Log in to Reply
    12. Daniel Bestvater

      No, my BP is on the low side so my endocrinologist has said no to an ACE inhibitor.

      5 months ago Log in to Reply
    13. Lawrence S.

      No. Interesting because kidney disease runs through many family members. My father was on dialysis for 12 years. My kidney tests have all been within normal range. But, no, I do not Take any ACE inhibitors.

      Generally, I don’t like to take drugs unless they are necesary.

      1
      5 months ago Log in to Reply
    14. Mig Vascos

      I’ve been taking Lisinopril 40 mg daily for so long that I don’t remember when I began or whether I was ever on a lower dose.
      I take it for my BP but I’m aware of it’s benefit to protect the kidneys. I was started on insulin in 1973, plus was wrongly treated as a T2D and not treated at all for at least 6 years before that. So far no kidney problems 🙏 .

      5 months ago Log in to Reply
    15. Daniel Diehl

      I take 5mg of Lisinopril daily to help with my blood pressure.
      I’ve been told it also helps in protecting my kidneys.

      5 months ago Log in to Reply
    16. Mary Thrall

      I couldn’t tolerate ACE inhibitors so I take an ARB.

      5 months ago Log in to Reply
    17. Rafaela

      I do and later developed high blood pressure so I’m taking it for both. The problem that develops is that now and then my blood pressure gets too low and I have to cut back on the Valsartin.

      5 months ago Log in to Reply
    18. Marsha Miller

      My Dr. prescribed me a low dose of Lisinopril several years ago. I take 2.5 mg. She said it is to protect my kidneys. I asked around about this, and everyone said this is a good idea.

      2
      5 months ago Log in to Reply
    19. Sue Martin

      I had a kidney transplant last year after being on dialysis for 2 1/2 years. I probably was on something to improve my kidney function but I don’t remember anything being called an ACE inhibitor.

      5 months ago Log in to Reply
    20. Eva

      I have taken an ACE inhibitor before when I had a tooth infection and they gave me antibiotics which made my blood pressure rise. I have the bad luck to experience bad side effects when given antibiotics. Since reverting back to normal, I don’t take it anymore. There isn’t any need.

      5 months ago Log in to Reply
    21. Kristine Warmecke

      I did for around 20 years, then I started fainting from hypotension, that was when ACE inhibitor went.

      5 months ago Log in to Reply
    22. Louise Robinson

      I was dx’d in 1976 and began taking lisinopril in the mid-late 1980’s. So far, I still have good kidney function, even after 46+ years with diabetes. Although my control wasn’t as tight for the first 20 years, in the past 25 years, I been very conscientious about keeping my A1c in the low 6’s. I transitioned from MDI and began using a Medtronic pump in 2011. Since beginning to use the T:slim X2 with Control IQ in October 2020, my last 2 A1c’s were the lowest ever at 5.8 and 5.7. Life is good!

      5 months ago Log in to Reply
    23. Kim Davis

      I initially did for about 25 years & then low BP threatened my daily life. So they stopped my ACE.

      1
      5 months ago Log in to Reply
    24. Phyllis Lewis

      I have kidney disease but I don’t know if the medicine i have been prescribed ia an ACE inhibitor.

      5 months ago Log in to Reply
    25. Janis Senungetuk

      I was prescribed a 20mg dose of an ACE inhibitor in 1986 to protect my kidney function. It was later increased to 40 mg daily because of high blood pressure. Three years ago I was dx with chronic kidney disease that my endo thinks began in 1970 when I had preeclampsia while pregnant with my daughter. I’m still taking the 40mg dose of the same ACE inhibitor with the addition of a 5mg Beta Blocker that was added 15 years ago because of high blood pressure.

      5 months ago Log in to Reply
    26. Ahh Life

      Cozaar was originally prescribed in 1993 as a preventive measure concerning a slightly elevated protein clearance at the time. That drug has been taken off the market and caused incessant coughing.

      Valsartan is now taken for blood pressure. Kidney function and protein clearance are well within normal range. 💪🏼

      5 months ago Log in to Reply
    27. Melinda Lipe

      I take an ARB, and it is also protective of kidneys.

      5 months ago Log in to Reply
    28. KarenM6

      I am on an ACE inhibitor, but protecting kidney function was not the main reason for me to take it.
      I have mildly high blood pressure but I do realize that that condition could fry my kidneys, too, and the ACE inhibitor would help. So, I am protecting my kidneys as a side effect.

      5 months ago Log in to Reply
    29. K Ro

      I take an ARB bc lisinopril gave me a bad cough

      5 months ago Log in to Reply
    30. Sharon Gerdik

      I am not able to take Ace-Inhibitors or Angiotensin Receptor Blockers because I have a severe allergy to them. I get severe bronchospasms. I asked a specialist about this and I was told I lack the gene that would allow me to take it. People have no idea about how having special genes or lack of genes affect us.

      5 months ago Log in to Reply
    31. mbulzomi@optonline.net

      Yes, lisinopril (Prinivil, Zestril).

      5 months ago Log in to Reply
    32. Phyllis Biederman

      Started with ACE, it caused dry cough. Switched to ARB instead.

      5 months ago Log in to Reply
    33. T1D4LongTime

      Yes! Decades ago, my endo recommended a ‘pril’ (ACE Inhibitor), a statin and low dose aspirin to help prevent T1D complications. He read a study that showed the cardiac meds prevented complications by over 90% (if I recall… that’s been a long time ago). After 56 years of brittle T1D, I have no T1D complications and healthy kidneys.

      5 months ago Log in to Reply

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