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    • 7 hours, 4 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 7 hours, 54 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 8 hours, 50 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 33 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 52 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 10 hours, 24 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 28 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 23 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 24 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 53 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 2 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 12 hours, 7 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 23 hours, 22 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 23 hours, 23 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 23 hours, 23 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 3 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 4 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 6 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 7 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    If you are an adult with T1D, do you take medication to improve your kidney function? (ACE inhibitor)

    Home > LC Polls > If you are an adult with T1D, do you take medication to improve your kidney function? (ACE inhibitor)
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    36 Comments

    1. Lenora Ventura

      I began taking Lisinopril 2.5mg a few years back because my Endo recommended it for “protection” not improvement as recent studies have shown using it proactively. My kidneys are perfect after 37 years w/ T1D.

      1
      11 months ago Log in to Reply
      1. Barbara Bubar

        Yes, for prevention, a 2.5 mg. dose daily for the past year, after 72 years with Type 1.

        1
        11 months ago Log in to Reply
    2. LizB

      My current endo prescribed lisinopril last year. I do not currently have any kidney issues after 35 years with Type 1.

      1
      11 months ago Log in to Reply
    3. Becky Hertz

      Yes. I’m also taking Jardiance

      11 months ago Log in to Reply
    4. GLORIA MILLER

      I do not take anything since my kidneys are fine (so far) after almost 66 years T1.

      2
      11 months ago Log in to Reply
    5. anj1832

      My doctors told me to stop taking lisinopril when I was planning to get pregnant and told me to not resume it even after I had my son last December. They said if I’m planning to have more children, to not take it. However, if my lab results in February are elevated then I’ll probably go back on it.

      11 months ago Log in to Reply
    6. Greg Felton

      I was prescribed an ACE inhibitor more than 20 years ago as a precautionary measure. So far, so good.

      1
      11 months ago Log in to Reply
      1. Judith Marged

        Same with me…. no blood pressure problems, just taking mild dose Ace inhibitor for kidney protection for past 20 years.

        11 months ago Log in to Reply
    7. Kathy Hanavan

      I take it for BP (5 mgs) not for my kidneys. It seems that there is really no benefit to taking this as protection.

      1
      11 months ago Log in to Reply
      1. Kristine Warmecke

        I read many research papers in the early 2020’s saying that taking an ACE inhibitor could actually lead to CKD. I was shocked when I was reading these for my patient.

        11 months ago Log in to Reply
    8. Mick Martin

      Although I don’t take a medication to improve kidney function, I do take Lisinopril, a blood pressure, medication which has a protective effect on kidney function.

      Lisinopril inhibits the RAAS by blocking the action of Angiotensin II.

      1
      11 months ago Log in to Reply
    9. Gary Taylor

      I did for a while, but I developed a persistent annoying cough which is one of the side effects of ACE inhibitors.

      1
      11 months ago Log in to Reply
    10. Natalie Daley

      My doctor is the head of endochrinology and said Lisinipril and simvastanten are standard protocols for Type 1s; after almost 30 years of seeing him, he’s been right so far 😊

      11 months ago Log in to Reply
    11. Jneticdiabetic

      I was tried on a variety of low dose ACE inhibitors and angiotensin receptor blockers for kidney protection. My blood pressure was already on the low (barely among the living) side, so didn’t tolerate well. Prolonged dizziness upon rising. Stopped before starting my family due to fetal risks and was never restarted. That was 14 y ago.

      11 months ago Log in to Reply
    12. Daniel Bestvater

      No, my BP is on the low side so my endocrinologist has said no to an ACE inhibitor.

      11 months ago Log in to Reply
    13. Lawrence S.

      No. Interesting because kidney disease runs through many family members. My father was on dialysis for 12 years. My kidney tests have all been within normal range. But, no, I do not Take any ACE inhibitors.

      Generally, I don’t like to take drugs unless they are necesary.

      1
      11 months ago Log in to Reply
    14. Mig Vascos

      I’ve been taking Lisinopril 40 mg daily for so long that I don’t remember when I began or whether I was ever on a lower dose.
      I take it for my BP but I’m aware of it’s benefit to protect the kidneys. I was started on insulin in 1973, plus was wrongly treated as a T2D and not treated at all for at least 6 years before that. So far no kidney problems 🙏 .

      11 months ago Log in to Reply
    15. Daniel Diehl

      I take 5mg of Lisinopril daily to help with my blood pressure.
      I’ve been told it also helps in protecting my kidneys.

      11 months ago Log in to Reply
    16. Mary Thrall

      I couldn’t tolerate ACE inhibitors so I take an ARB.

      11 months ago Log in to Reply
    17. Rafaela

      I do and later developed high blood pressure so I’m taking it for both. The problem that develops is that now and then my blood pressure gets too low and I have to cut back on the Valsartin.

      11 months ago Log in to Reply
    18. Marsha Miller

      My Dr. prescribed me a low dose of Lisinopril several years ago. I take 2.5 mg. She said it is to protect my kidneys. I asked around about this, and everyone said this is a good idea.

      2
      11 months ago Log in to Reply
    19. Sue Martin

      I had a kidney transplant last year after being on dialysis for 2 1/2 years. I probably was on something to improve my kidney function but I don’t remember anything being called an ACE inhibitor.

      11 months ago Log in to Reply
    20. Eva

      I have taken an ACE inhibitor before when I had a tooth infection and they gave me antibiotics which made my blood pressure rise. I have the bad luck to experience bad side effects when given antibiotics. Since reverting back to normal, I don’t take it anymore. There isn’t any need.

      11 months ago Log in to Reply
    21. Kristine Warmecke

      I did for around 20 years, then I started fainting from hypotension, that was when ACE inhibitor went.

      11 months ago Log in to Reply
    22. Louise Robinson

      I was dx’d in 1976 and began taking lisinopril in the mid-late 1980’s. So far, I still have good kidney function, even after 46+ years with diabetes. Although my control wasn’t as tight for the first 20 years, in the past 25 years, I been very conscientious about keeping my A1c in the low 6’s. I transitioned from MDI and began using a Medtronic pump in 2011. Since beginning to use the T:slim X2 with Control IQ in October 2020, my last 2 A1c’s were the lowest ever at 5.8 and 5.7. Life is good!

      11 months ago Log in to Reply
    23. Kim Davis

      I initially did for about 25 years & then low BP threatened my daily life. So they stopped my ACE.

      1
      11 months ago Log in to Reply
    24. Phyllis Lewis

      I have kidney disease but I don’t know if the medicine i have been prescribed ia an ACE inhibitor.

      11 months ago Log in to Reply
    25. Janis Senungetuk

      I was prescribed a 20mg dose of an ACE inhibitor in 1986 to protect my kidney function. It was later increased to 40 mg daily because of high blood pressure. Three years ago I was dx with chronic kidney disease that my endo thinks began in 1970 when I had preeclampsia while pregnant with my daughter. I’m still taking the 40mg dose of the same ACE inhibitor with the addition of a 5mg Beta Blocker that was added 15 years ago because of high blood pressure.

      11 months ago Log in to Reply
    26. Ahh Life

      Cozaar was originally prescribed in 1993 as a preventive measure concerning a slightly elevated protein clearance at the time. That drug has been taken off the market and caused incessant coughing.

      Valsartan is now taken for blood pressure. Kidney function and protein clearance are well within normal range. 💪🏼

      11 months ago Log in to Reply
    27. Melinda Lipe

      I take an ARB, and it is also protective of kidneys.

      11 months ago Log in to Reply
    28. KarenM6

      I am on an ACE inhibitor, but protecting kidney function was not the main reason for me to take it.
      I have mildly high blood pressure but I do realize that that condition could fry my kidneys, too, and the ACE inhibitor would help. So, I am protecting my kidneys as a side effect.

      11 months ago Log in to Reply
    29. K Ro

      I take an ARB bc lisinopril gave me a bad cough

      11 months ago Log in to Reply
    30. Sharon Gerdik

      I am not able to take Ace-Inhibitors or Angiotensin Receptor Blockers because I have a severe allergy to them. I get severe bronchospasms. I asked a specialist about this and I was told I lack the gene that would allow me to take it. People have no idea about how having special genes or lack of genes affect us.

      11 months ago Log in to Reply
    31. mbulzomi@optonline.net

      Yes, lisinopril (Prinivil, Zestril).

      11 months ago Log in to Reply
    32. Phyllis Biederman

      Started with ACE, it caused dry cough. Switched to ARB instead.

      11 months ago Log in to Reply
    33. T1D4LongTime

      Yes! Decades ago, my endo recommended a ‘pril’ (ACE Inhibitor), a statin and low dose aspirin to help prevent T1D complications. He read a study that showed the cardiac meds prevented complications by over 90% (if I recall… that’s been a long time ago). After 56 years of brittle T1D, I have no T1D complications and healthy kidneys.

      11 months ago Log in to Reply

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