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    • 1 hour, 16 minutes ago
      Ahh Life likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      After 70 years with T1d and some reduced kidney function and seeing my dad's poor recovery after a kidney transplant, I have no desire to be subjected to chemicals that would further accelerate the demise of my kidneys.
    • 17 hours, 5 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 17 hours, 36 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 17 hours, 36 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 22 hours, 58 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 22 hours, 58 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 22 hours, 58 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 7 hours ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 9 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 1 day, 9 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 1 day, 9 hours ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 1 day, 15 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 1 day, 15 hours ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 19 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 19 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 19 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 19 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 19 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 19 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 19 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 21 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 21 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 21 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 21 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 21 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
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    If you are an adult with T1D, do you take medication to improve your kidney function? (ACE inhibitor)

    Home > LC Polls > If you are an adult with T1D, do you take medication to improve your kidney function? (ACE inhibitor)
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Lenora Ventura

      I began taking Lisinopril 2.5mg a few years back because my Endo recommended it for “protection” not improvement as recent studies have shown using it proactively. My kidneys are perfect after 37 years w/ T1D.

      1
      3 years ago Log in to Reply
      1. Barbara Bubar

        Yes, for prevention, a 2.5 mg. dose daily for the past year, after 72 years with Type 1.

        1
        3 years ago Log in to Reply
    2. LizB

      My current endo prescribed lisinopril last year. I do not currently have any kidney issues after 35 years with Type 1.

      1
      3 years ago Log in to Reply
    3. Becky Hertz

      Yes. I’m also taking Jardiance

      3 years ago Log in to Reply
    4. GLORIA MILLER

      I do not take anything since my kidneys are fine (so far) after almost 66 years T1.

      2
      3 years ago Log in to Reply
    5. anj1832

      My doctors told me to stop taking lisinopril when I was planning to get pregnant and told me to not resume it even after I had my son last December. They said if I’m planning to have more children, to not take it. However, if my lab results in February are elevated then I’ll probably go back on it.

      3 years ago Log in to Reply
    6. Greg Felton

      I was prescribed an ACE inhibitor more than 20 years ago as a precautionary measure. So far, so good.

      1
      3 years ago Log in to Reply
      1. Judith Marged

        Same with me…. no blood pressure problems, just taking mild dose Ace inhibitor for kidney protection for past 20 years.

        3 years ago Log in to Reply
    7. Kathy Hanavan

      I take it for BP (5 mgs) not for my kidneys. It seems that there is really no benefit to taking this as protection.

      1
      3 years ago Log in to Reply
      1. Kristine Warmecke

        I read many research papers in the early 2020’s saying that taking an ACE inhibitor could actually lead to CKD. I was shocked when I was reading these for my patient.

        3 years ago Log in to Reply
    8. Mick Martin

      Although I don’t take a medication to improve kidney function, I do take Lisinopril, a blood pressure, medication which has a protective effect on kidney function.

      Lisinopril inhibits the RAAS by blocking the action of Angiotensin II.

      1
      3 years ago Log in to Reply
    9. Gary Taylor

      I did for a while, but I developed a persistent annoying cough which is one of the side effects of ACE inhibitors.

      1
      3 years ago Log in to Reply
    10. Natalie Daley

      My doctor is the head of endochrinology and said Lisinipril and simvastanten are standard protocols for Type 1s; after almost 30 years of seeing him, he’s been right so far 😊

      3 years ago Log in to Reply
    11. Jneticdiabetic

      I was tried on a variety of low dose ACE inhibitors and angiotensin receptor blockers for kidney protection. My blood pressure was already on the low (barely among the living) side, so didn’t tolerate well. Prolonged dizziness upon rising. Stopped before starting my family due to fetal risks and was never restarted. That was 14 y ago.

      3 years ago Log in to Reply
    12. Daniel Bestvater

      No, my BP is on the low side so my endocrinologist has said no to an ACE inhibitor.

      3 years ago Log in to Reply
    13. Lawrence S.

      No. Interesting because kidney disease runs through many family members. My father was on dialysis for 12 years. My kidney tests have all been within normal range. But, no, I do not Take any ACE inhibitors.

      Generally, I don’t like to take drugs unless they are necesary.

      1
      3 years ago Log in to Reply
    14. Mig Vascos

      I’ve been taking Lisinopril 40 mg daily for so long that I don’t remember when I began or whether I was ever on a lower dose.
      I take it for my BP but I’m aware of it’s benefit to protect the kidneys. I was started on insulin in 1973, plus was wrongly treated as a T2D and not treated at all for at least 6 years before that. So far no kidney problems 🙏 .

      3 years ago Log in to Reply
    15. Daniel Diehl

      I take 5mg of Lisinopril daily to help with my blood pressure.
      I’ve been told it also helps in protecting my kidneys.

      3 years ago Log in to Reply
    16. Mary Thrall

      I couldn’t tolerate ACE inhibitors so I take an ARB.

      3 years ago Log in to Reply
    17. Rafaela

      I do and later developed high blood pressure so I’m taking it for both. The problem that develops is that now and then my blood pressure gets too low and I have to cut back on the Valsartin.

      3 years ago Log in to Reply
    18. Marsha Miller

      My Dr. prescribed me a low dose of Lisinopril several years ago. I take 2.5 mg. She said it is to protect my kidneys. I asked around about this, and everyone said this is a good idea.

      2
      3 years ago Log in to Reply
    19. Sue Martin

      I had a kidney transplant last year after being on dialysis for 2 1/2 years. I probably was on something to improve my kidney function but I don’t remember anything being called an ACE inhibitor.

      3 years ago Log in to Reply
    20. Eva

      I have taken an ACE inhibitor before when I had a tooth infection and they gave me antibiotics which made my blood pressure rise. I have the bad luck to experience bad side effects when given antibiotics. Since reverting back to normal, I don’t take it anymore. There isn’t any need.

      3 years ago Log in to Reply
    21. Kristine Warmecke

      I did for around 20 years, then I started fainting from hypotension, that was when ACE inhibitor went.

      3 years ago Log in to Reply
    22. Louise Robinson

      I was dx’d in 1976 and began taking lisinopril in the mid-late 1980’s. So far, I still have good kidney function, even after 46+ years with diabetes. Although my control wasn’t as tight for the first 20 years, in the past 25 years, I been very conscientious about keeping my A1c in the low 6’s. I transitioned from MDI and began using a Medtronic pump in 2011. Since beginning to use the T:slim X2 with Control IQ in October 2020, my last 2 A1c’s were the lowest ever at 5.8 and 5.7. Life is good!

      3 years ago Log in to Reply
    23. Kim Davis

      I initially did for about 25 years & then low BP threatened my daily life. So they stopped my ACE.

      1
      3 years ago Log in to Reply
    24. Phyllis Lewis

      I have kidney disease but I don’t know if the medicine i have been prescribed ia an ACE inhibitor.

      3 years ago Log in to Reply
    25. Janis Senungetuk

      I was prescribed a 20mg dose of an ACE inhibitor in 1986 to protect my kidney function. It was later increased to 40 mg daily because of high blood pressure. Three years ago I was dx with chronic kidney disease that my endo thinks began in 1970 when I had preeclampsia while pregnant with my daughter. I’m still taking the 40mg dose of the same ACE inhibitor with the addition of a 5mg Beta Blocker that was added 15 years ago because of high blood pressure.

      3 years ago Log in to Reply
    26. Ahh Life

      Cozaar was originally prescribed in 1993 as a preventive measure concerning a slightly elevated protein clearance at the time. That drug has been taken off the market and caused incessant coughing.

      Valsartan is now taken for blood pressure. Kidney function and protein clearance are well within normal range. 💪🏼

      3 years ago Log in to Reply
    27. Melinda Lipe

      I take an ARB, and it is also protective of kidneys.

      3 years ago Log in to Reply
    28. KarenM6

      I am on an ACE inhibitor, but protecting kidney function was not the main reason for me to take it.
      I have mildly high blood pressure but I do realize that that condition could fry my kidneys, too, and the ACE inhibitor would help. So, I am protecting my kidneys as a side effect.

      3 years ago Log in to Reply
    29. K Ro

      I take an ARB bc lisinopril gave me a bad cough

      3 years ago Log in to Reply
    30. Sharon Gerdik

      I am not able to take Ace-Inhibitors or Angiotensin Receptor Blockers because I have a severe allergy to them. I get severe bronchospasms. I asked a specialist about this and I was told I lack the gene that would allow me to take it. People have no idea about how having special genes or lack of genes affect us.

      3 years ago Log in to Reply
    31. mbulzomi@optonline.net

      Yes, lisinopril (Prinivil, Zestril).

      3 years ago Log in to Reply
    32. Phyllis Biederman

      Started with ACE, it caused dry cough. Switched to ARB instead.

      3 years ago Log in to Reply
    33. T1D4LongTime

      Yes! Decades ago, my endo recommended a ‘pril’ (ACE Inhibitor), a statin and low dose aspirin to help prevent T1D complications. He read a study that showed the cardiac meds prevented complications by over 90% (if I recall… that’s been a long time ago). After 56 years of brittle T1D, I have no T1D complications and healthy kidneys.

      3 years ago Log in to Reply

    If you are an adult with T1D, do you take medication to improve your kidney function? (ACE inhibitor) Cancel reply

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