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    • 1 hour, 37 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 1 hour, 37 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 1 hour, 48 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 1 hour, 48 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 1 hour, 56 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 2 hours, 9 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 2 hours, 44 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 2 hours, 44 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 2 hours, 45 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 5 hours, 54 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 8 hours, 42 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 19 hours, 24 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 20 hours, 51 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 20 hours, 51 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 20 hours, 51 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 23 hours, 4 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 23 hours, 4 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 23 hours, 5 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 23 hours, 47 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 1 hour ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 3 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease?

    Home > LC Polls > If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease?
    Previous

    If you use a continuous glucose monitor (CGM), have you ever been asked to remove it for a medical procedure? Share more about your experiences and what procedures you had to remove it for in the comments!

    Next

    What advice would you give to a caregiver of a teenager with T1D?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    19 Comments

    1. Molly Jones

      I chose other.
      I take potassium citrate and Crystal light to control kidney stones that recur due to my anti-seizure medication, topiramate.
      I have not been diagnosed with anything other than this side effect of a necessary medication.

      2 years ago Log in to Reply
    2. Lawrence S.

      No, thank Goodness. Kidney Disease runs in my family. But, I keep a close watch on my kidney functions.

      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      No I haven’t

      2 years ago Log in to Reply
    4. Donna Condi

      Not so far but my mother who did not have diabetes did have kidney issues so I wouldn’t be surprised if I end up with some.

      2 years ago Log in to Reply
    5. Don P

      where does one draw the line on ” disease ” or long term diabetic causes of minor concerns ?? ie, ……protein in urine

      2 years ago Log in to Reply
    6. GLORIA MILLER

      Almost 67 years with diabetes and no CKD to date. My husband, who is non-diabetic, has 14% kidney function and he is not overweight. You never know.

      1
      2 years ago Log in to Reply
    7. Bruce Schnitzler

      Urine protein level is occasionally above the threshold, but not consistently.

      2 years ago Log in to Reply
      1. Jennifer Otto

        Same!

        2 years ago Log in to Reply
    8. JOAN ULMER

      No, thank you my lord!

      2 years ago Log in to Reply
      1. Jennifer Otto

        Amen!

        2 years ago Log in to Reply
    9. Tina Roberts

      Not yet, but they are doing some testing right now.

      2 years ago Log in to Reply
    10. Mark Wedel

      Living unrelated donor kidney transplant 14 years ago…

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I received a kidney transplant two years ago.

      2 years ago Log in to Reply
    12. Patrick Burner

      Not yet but small traces of protein in urine labs.

      2 years ago Log in to Reply
    13. David Hedeen

      It would b informative to hear years of diabetes b4 kidney issue

      2 years ago Log in to Reply
    14. Bob Durstenfeld

      I said no, but I also know that my kidneys leak some protein after 67 years with T1D.

      2 years ago Log in to Reply
    15. Trina Blake

      I chose “other” since my kidney disease is unrelated to my T1D. I was born with “less than stellar” kidney function (reaching stage 2 kidney disease at 15 years old). At 30 I was Dx’d with rapid-onset T1D. My kidney function has worsened, but it could be the 40+ years with T1D or the congenital disease. Don’t know, but don’t sweat over it either.

      2 years ago Log in to Reply
    16. Jen Woolman

      Kidney function watch your sugar closely drink lots of water so your stay updated instead of pop or coffee or alcohol because we know those are not good on your kidneys function

      2 years ago Log in to Reply
    17. Jen Woolman

      No

      2 years ago Log in to Reply

    If you are an adult living with type 1 diabetes, have you also been diagnosed with kidney disease? Cancel reply

    You must be logged in to post a comment.




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