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    • 6 hours, 22 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Yes - many meter studies - and an actos study
    • 6 hours, 22 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Only a few. Mainly blood tests and surveys. The others often have restrictions that don’t allow me to participate.
    • 6 hours, 23 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in the Look Ahead program by Brown University and Miriam Hospital. It was about diabetes, heart disease and weight control. I was in the control group and the first year I gained weight and found out I had heart disease. The stress test at the beginning of the trial showed an abnormality, so I already had a cardiologist when I needed my first of 16 stents.
    • 6 hours, 23 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in Tandem's trial for ControlIQ and several Dexco. Adhesive trials. Long ago I participated in a study for non-invasive blood glucose testing using a technique called Ramen Spectrum Analysis using different frequenciesof light, that trial could not raise funds to continue.
    • 6 hours, 25 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Various studies at the Joslin Clinic, the first one back in 2010-2011 for CGMs to be covered by medical insurance companies. I also have done a pizza study to determine how to gauge the longer response by the body to eating pizzas with all its fats.
    • 11 hours, 42 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      Several times. Found out that my pancreas is about 25% of the size it “ought to be” for someone my age. Who knew? Just turned down an opportunity to transform into a lab rat for 8 months on tests of a new insulin product. Weekly clinic visits, four finger sticks a day, two additional devices to tote around and a change in CGM brand. Sorry, not for me.
    • 11 hours, 42 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      I’ve participated in a couple different ones. One was muscle biopsies on the legs…looking at how long term diabetes may affect muscles. Another on different pumps
    • 12 hours, 33 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever participated in diabetes-related research?
      I have taken surveys about diabetes care and participate in All of US DNA research and I am doing that now answering these questions each day.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 1 day, 6 hours ago
      Derek West likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      All we are doing is treating the symptoms. We need a cure that doesn't require anti rejection inections.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 1 day, 9 hours ago
      Patricia Dalrymple likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 9 hours ago
      kristina blake likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 10 hours ago
      Carol Meares likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      The list is great. Medications need to be on the list too.
    • 1 day, 10 hours ago
      Kristi Warmecke likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 2 days, 7 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      I think access to healthcare - especially for those things we need to thrive (i.e. insulin, CGM's, pumps). I fear that things will go back to the pre-ACA days where people with pre-existing conditions can be refused coverage. Since the things we need (listed above) are Rx items and very expensive for paying out of pocket at retail prices, it will become close to impossible for us to live - not to mention thrive.
    • 2 days, 7 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 2 days, 8 hours ago
      Patricia Dalrymple likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
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    If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow’s question!

    Home > LC Polls > If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question!
    Previous

    If you’re a parent, how many of your children have T1D? Feel free to share more about your family’s situation in the comments, and how many other children you have without T1D!

    Next

    If you have experienced diabetes stigma, in what situations has it happened? (Select all that apply.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    8 Comments

    1. Kristen Clifford

      I AM the child with T1D, and I’m 38! LOL.

      4 years ago Log in to Reply
    2. DiabetesC

      👀

      4 years ago Log in to Reply
    3. Lakesha McDonald Kee

      I am a parent with T1D and now have a child with T1D.

      4 years ago Log in to Reply
    4. Mary Dexter

      I am not a child. Diagnosed at age 48.

      4 years ago Log in to Reply
    5. Yaffa Steubinger

      I don’t have a child with T1 but I passed on my T1 autoimmune gene to two of my grandsons.

      4 years ago Log in to Reply
    6. Bob Durstenfeld

      I am the grandparent of a child who is four, but was diagnosed at 18 months. Within the first month if DX she was on a Tandem pump with diluted insulin and a Dexcom CGM. THE follow app has been indispensable for our family.

      2
      4 years ago Log in to Reply
    7. Sue Herflicker

      I have 2 T1D son’s diagnosed at age 23 months and 4 years old. Both are now 35 and 27. I was diagnosed LADA at the age of 56. And my brother was diagnosed at age 4 now 57.

      4 years ago Log in to Reply
    8. kflying1@yahoo.com

      Not yet – though I have 4 children who have been diagnosed as pre-diabetic.

      4 years ago Log in to Reply

    If you are a parent of a person with T1D, which best describes your situation? If you have more than one child with T1D, please select all that apply and check back for tomorrow's question! Cancel reply

    You must be logged in to post a comment.




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