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    • 5 hours, 18 minutes ago
      lis be likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 8 hours, 11 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 9 hours, 33 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 9 hours, 33 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 13 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 11 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 11 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 11 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 3 days, 6 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days, 8 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 11 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 12 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 13 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 14 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 14 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 15 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 15 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 6 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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    How satisfied are you with your T1D care provider’s knowledge of and time spent on gynecological issues (e.g., pregnancy, sexual dysfunction, yeast infections) as part of your routine diabetes care?

    Home > LC Polls > How satisfied are you with your T1D care provider’s knowledge of and time spent on gynecological issues (e.g., pregnancy, sexual dysfunction, yeast infections) as part of your routine diabetes care?
    Previous

    Has your diabetes or another health care provider talked to you about polycystic ovarian syndrome (PCOS)?

    Next

    If you use a pump or CGM, do you use overlay tapes on your device sites to help them stick?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Sue Compo

      She doesn’t “deal” with questions. I just get sent to a “specialist

      1
      4 years ago Log in to Reply
    2. Joan McGinnis

      I have a gynecologist who is very knowledgeable and am happy I do.

      4 years ago Log in to Reply
    3. Mary Dexter

      Zero time spent. My lips move but my words are ignored. Dyspareunia was diagnosed, then ignored, and cannot be linked to nerve damage because that would reflect badly on them and might result in lower ratings.

      4 years ago Log in to Reply
    4. PamK

      The only question I have ever discussed with this endo is how menopause was affecting my blood sugar levels. The answer he gave was a short “stock” answer that, “Yes, it can.” No hints as to how to adapt or adjust my settings. Very unhelpful!

      4 years ago Log in to Reply
    5. Marcia Pulleyblank

      The issues haven’t come up in discussion.

      4 years ago Log in to Reply
    6. lis be

      I wish that gyno’s would understand the effects that hormones have on blood sugars near periods, perimenopause, menopause etc. It seems to still be a bizarrely taboo topic and does not seem to be taught with any degree of seriousness in medical schools. When I told my doctor it was affecting my sugars she said she had never heard of that and prescribed anti-anxiety medicine. hormones, testosterone and cortisol (stress) included can absolutely spike blood sugars.

      1
      4 years ago Log in to Reply
      1. lis be

        (I should have said gyno’s, endo’s and primary care doctors all need to be more informed on the effects of..)

        1
        4 years ago Log in to Reply
    7. Janis Senungetuk

      In over the past 8 years there has been zero mention/question of any gynecological issues. From other conversations we’ve had I know that my endo is very ageist and evidently thinks that at 75 I would have no interest in continuing sexual activity.

      4 years ago Log in to Reply
    8. Amanda Barras

      Disappointed in mine.
      Stopped hormonal birth control, gained 20 lbs, she wanted to put me back on but a different brand just for weight. I said I didn’t like the idea, as I had side effects with the last 2 brands I was on, and explained them. I decided to give it a shot because this was different than previous medications. I only took it a week and had horrible cystic acne break out. Did research on active ingredients to find it was the same as the one I had warned her about that I had problems with. So, no, only talk to your on/gyn, not your T1 doc about meds they know nothing about. As well, I do believe woman have side effects from diabetes too in the sexual category not just men’s dysfunction, but they don’t ever ask or want to talk about that.

      1
      4 years ago Log in to Reply
    9. Jneticdiabetic

      My diabetes nurse practitioner acknowledges the challenges I raise with my blood sugars during perimenopause are real and has been trying to help with adjusting my insulin pump settings. She’s awesome, it’s just hard to predict the increasingly unpredictable. Maybe in the future we’ll have continuous monitors that can also measure stress and reproductive hormone levels.
      I put somewhat satisfied because I don’t think my diabetes care providers have ever initiated discussions in this area.

      4 years ago Log in to Reply
    10. CindyGoddard

      My T1D Doctor has never discussed these issues

      2
      4 years ago Log in to Reply
    11. connie ker

      My endo NP tells me to see the GYN I am associated with because female issues are better served at that office.

      1
      4 years ago Log in to Reply
    12. barbara johnstone

      Fair

      4 years ago Log in to Reply
    13. barbara johnstone

      Have not discussed it with him. Gyn only suggested Replenz!

      4 years ago Log in to Reply
    14. kilupx

      I got type 1 at age 66 so childbearing and menopause were not topics for discussion. I see a gynecologist regularly and have no gynecological problems so I have never had to ask my young male endo about these topics and he hasn’t asked me.

      4 years ago Log in to Reply
    15. AnitaS

      I am satisfied without talking to her about that aspect of my health care because I do have a gynecologist if I have any problems. I could possibly bring this up with my T1 diabetes care person if I had problems, but luckily I don’t.

      4 years ago Log in to Reply

    How satisfied are you with your T1D care provider’s knowledge of and time spent on gynecological issues (e.g., pregnancy, sexual dysfunction, yeast infections) as part of your routine diabetes care? Cancel reply

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