18 Comments
How satisfied are you with your current T1D therapy regimen?
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It helps that I am well versed as I have had type 1 for 35 years in March. As an adult I have been lucky with most of my care team. I have had the same care team for the last 12 years and am not looking forward to any of them retiring. Thankfully I have a few years as we are all roughly the same age. 🙂 I have had in the past a pediatrician who as a teenager talked down to me. My mom listened to me and had me switched to a general doctor in our HMO.
I’ve had the same endo for more than 35 years, the problem is that my body keeps changing. He does a pretty good job of helping me adjust. After 60 years with T1D, I’ve developed some Type 2 attributes.
I built and maintain my own DIY Loop using my Omnipod and Dexcom. I have been Looping for 2 years in April and have been really satisfied with the results.
Compared to what the options were 20 years ago? I’m thrilled, and I’m definitely in the best control of my life so far. Compared to the tech and treatments that are in development, or, you know, not having diabetes at all? It’s hard to ever be fully satisfied when there’s always more that can be improved.
I am a senior with LADA type 1 for the past 23 years and am doing what I have done with MDI of Humalog and Lantus. My A1C is good and I have learned what I can and can’t do or eat……..however now that I wear an Abbott CGM, I can see the insulin work with the swings. It would be a perfect world for diabetics to see time in range a flat line on the graph, is this possible? Do any of you have a flat line after meals?
Currently have an order placed to switch pumps. I do decent on the pump and control I have now. But, it could be better. 6.3-6.5 but I don’t like the wide swings I get sometimes and the neediness of the pump/CGM I have now.
I agree with Anne, its a tremendous improvement over when I was first diagnosed. But there is plenty of room for improvement. Complete closed loop control, AKA fully aut ok matic or artificial pancreas is what I see as the end game. I completly understand the risks, hell I live with them daily. Come on FDA & pump manufacturers, lets stop slow rollong this!
Dex G6 and Tandem CIQ are giving me the Best numbers since 1963
Medtronic has been there for me since the public release of insulin pumps.. tech keeps getting better. Have come a long since beef/pork insulin and peeing on glucose/keto sticks
My endocrinologist is very knowledgeable and is not afraid to try new meds and therapies, especially if I ask about it. He likes my current pump, Tandem x2 with Control IQ, my A1C is down from 7.5 to 6.5. I’d like to have a new model of pump, but Covid stopped the clinical trials in 2020.
I believe that it will get better when I can get a cgm come on insurance
Visited my endo today and A1C was 5.8,a new world record for me. He started to talk about the Tandem CIQ combo but said I was great managing with my Medtronic 630 and G6 CGM. I don’t know if I will be able to give up my micromanagement!
I was diagnosed with Type 1 31 years ago when I was 32. I have been on Medtronic about 30 years. Everything I’ve read about Dexcom I am EXTREMELY excited as my warranty is finally up with Medtronic! Waiting now on my new Dexcom G6 CGM! My swings via Medtronic have been awful….extremely inaccurate readings, to the point I was receiving replacement Enlite Glucose Sensors roughly once a week, due to readings being 15, 20, 25, 30-50% different than my actual blood glucose. I’m hoping I can maintain my recent 7.3 A1C going forward. I haven’t been able to historically.
My A1c is very good at 5.5-5.7, but I have to manage almost every minute to get that. Control iQ was supposed to give me some relief with that but in order to maintain a lower average I have to fight it when it wants to bring me up to 110 when I’m at 90 or 100. I have always shot for 100. That goal works for me well. I wish I could set the target for 100 with Control iQ. Maybe some day? It sounds like a little difference to some people but it really isn’t to me.
A1C usually 5.8 to 5.9. Have a few lows but I’m aware of them. Adjusting nightly basal rate is working on cutting down lows. I don’t have a CGM and can’t decide whether I want something else stuck in my body. Am wary of night time low notifications not going off as soon as I adjust. Need my sleep. I wake up when go low at night because I get hot. I know it is dangerous to go low when asleep but have never had an incident in 20 years. On 630 Medtronic now. We will see when warranty up.
I’m happy with my A1Cs using Tresiba once a day as a long-acting. It has great early morning coverage. I can adjust it by 1-2 units each morning if I know I’m going to be taking Advair or Claritin. I like the Dexcom G6 – it’s pretty accurate, though I find it helpful to calibrate once a day with a finger stick. No thanks from me on the tubed pumps with all the special attention and babying they need. I’d rather pay attention to my body than a fussy pump and occlusions, which was my experience. After 29 years of day to day experience with my BGs, I am smarter than a pump.
I chose “somewhat satisfied”. My Time in Range (TIR) is decently good and A1C has never been over 6.9. Any insulin pump I’ve ever had cannot keep up with my system’s rapidly rising and falling BGs. Stress-related rises are difficult to manage. I am a ‘brittle’ diabetic for 54 years and my BG can drop so rapidly (180 to 69 in 30 minutes) that even though the pump shuts off the basal when I trend down, it’s not soon enough. Basal, carb ratios, and insulin sensitivity adjustments have not been successful in changing this situation.
I use Tandem IQ with Victoza. My life has become much, much easier and I don’t think about my diabetes all the time. I feel very good about just letting the system do it’s thing.